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Stepping Out of Fear

May22

Often we live in fear and don’t even realize it. We wait for the shoe to drop. We expect the worst. We don’t even realize that it is there, because it almost becomes part of us. What fear does most though is the way it holds us back. We think, if I do this then X will happen. I can’t do this because Y will happen. So then nothing happens. We stand still and fear wins even if we don’t recognize it as what it is.

I have been letting fear hold me back. Now, don’t get me wrong….. there is a HUGE difference between being responsible, smart and listening to experts advice. There is also something to be said for not going in all willy nilly and not taking facts into consideration.

FACTS……

I have Hypoparthyroidism

I need to balance keeping my serum calcium levels in check while keeping my urine levels in check. (Yes, it is harder than it sounds)

Currently, running longer distances requires more calcium supplements which raises urine calcium levels. As does running faster paces.

I am currently under the care of a Endocrinologist whom not only do I feel, but 100% know understands this crazy disorder.

I am very lucky!

So with all of these hard and true facts, there is also some truth that needs to be faced. Due to fear of pushing my body too hard, I realized that I have not been pushing it enough. There are also some extenuating circumstances.

EXTENUATING CIRCUMSTANCES……

There are only so many hours in the day and I have been burning the bridge at both ends….. between work, taking classes for CDA (Child Development Associate), my home baking business, my home, and trying to have a life; I have not been pushing myself to follow a routine.

But there is light at the tunnel. I have completed all my CDA classes, had the required evaluation and preparing to take the state test next month. I am also looking forward to only working 3 mornings a week over the summer and I realize I set the schedule for my home baking business.

Yesterday, I continued my goal of running one event a month. I haven’t been running or training as mentioned above. Yet, I ended up running (walking some) and finishing well.

As my friend said who I ran with (slightly paraphrasing) …….. You don’t run or train, yet you pull running a 5K out of your ass like you did the 10K in January. So shut up.

So with that….. I will not shut up because you know I can’t. What I will do though is stop letting the fear of failure, the fear of not being where I think I should be therefor keeping me from where I could go, and the fear of what if’s from keeping me from what I can do.

What I can do is face each day with hope, the knowledge that it will be what it will be and there are no guarantees.

Back to Basics

May2

Often when starting out, we pick up where we left off. If we were a runner, we go out for a longer run than we should. If we were a yogi, we don’t go to the beginner yoga class. If we were a gym rat, we pick up the heavier weights. Very rarely do we go back to the beginning…… or is that just me?????

Please tell me it’s not just me??????

So here’s the thing, stepping back to “shorter” distances in running has me going back to the basics with my running. I am thinking about form. I am thinking about control of my pace. I’m thinking about speed workouts. The basics.

I have also been thinking about my cross training. Back in the day, I 3 was a champion cross trainer. I did classes. I rode my bike. I was a 3-4 day a week crossfiter. I was a badass.

Here’s the thing…… I am still a badass. I am just a different level badass. What makes me a badass is not the amount of weight I’m lifting, how fast I’m running, or any of those things. It is that I consistently (mostly) show up. That I keep plugging away. Bobbing and weaving and just keep going. That being said, I realized that just like my running; I need to step back.

I’ve been doing the Fiton classes which I really enjoy. I’ve been using weights and machines in my home gym. I’ve been doing all these things trying to push myself into a level that I am not at or comfortable sustaining. This makes it easier to stop showing up, because I’m showing up to a party I am not properly dressed for. So I’m stepping back and getting ready for the party. Just like when I started this fitness journey back in 2014 or so I didn’t start with Crossfit, I need to start with the basics.

This is not a step back. It is reality. It is meeting my body where it is and not where I want it to be, think it should be, or pretend it is. Reality isn’t always what we want, but if you pretend it is something else often you will give up and never really move forward. So how am I going back to the basics? Just like it sounds…… I am starting from the beginning.

I am doing beginner workouts on Fiton. I am not trying to be more than what I am. I am rebuilding. I am putting the weights down and starting from scratch doing body weight workouts. I am doing knee pushups, low impact. I am being smart. I will add these things as my body regains strength, endurance and in a way that builds up to it.

In doing this I have found that I am being more consistent. I am recognizing that I can push myself with where I am now and eventually by doing so I will get to where I want to be. You can’t get to your destination if you always trying to start at the finish line.

So here I am, back to where I was when I first started this blog. The beginning. Although with the hypopara, weighing more than I did back then, and now being several years older I might be starting even further back…….. That’s ok though because I know where I want to go, have a plan how to get there and am not giving up which is half the battle.

It’s once again….. Go time.

Cheers to getting back to the basics!

Showing Up

Mar29

We show up for work. We show up for school. We show up for our friends, for all our responsibilities and we show up for so many things that we don’t even want to but feel we need to. We show up for everyone and everything else that often we forget to show up for ourselves.

Wait what????

We forget to show up for ourselves by letting people treat us wrong for too long. For not standing up for ourselves. For constantly putting the to do list before ourselves. No don’t get me wrong, there are times where it is pertinent and necessary for others and our to do list to come first. The problem is we often make that a pattern. We often make that the norm. We often say I need to do this, this, and this first. Then I will take care of myself

STOP THAT!

I realized that part of my issue with getting back on track is that before I would do a work out, before I would plan for my meals, before I would take care of myself; I felt I needed to take care of everything else. That everything else list has and always will be long long… Long… And never ending

I’m working towards my CDA. Lots of time there.

I started a home baking business and often have orders

I have a job outside the home that I am required to show up for.

I have a home and family that requires tending

Here’s the thing, though… I never put myself on the list or at the top of the list recently. And if I’m not on the list, then I’m not a priority. The things that I need to do for me are not getting done. I make sure everyone else in my home is taken care of up to, and including my pets. I forgot about me

Wow, many things on my to do list need to be done. There is still time in the day for me though. It will require planning/. It will require prioritizing. Most of all it will require knowing that I should….. No, that I need to be on the list as well!! So with that being said , I am making myself a priority. Yes cookies need to be baked, dinners need to be made and jobs need to be done, but there is still time for me.

Do you make time for you? So many of us especially mothers are used to putting everyone and everything before us but when the pattern does not allow for any time, there is a problem.

Since I have started putting myself on the list……

Workouts are getting done

My own meal planning is getting priority (loving meal service).

Feeling better and actually less stressed

How do you show up for yourself?

How Did I Get Here?

Mar23

I’m taking a stroll down memory lane as I have some new followers and people new to my journey. So I just want to take a stroll down memory lane as I feel like I am finally in a place of true acceptance, understanding and most of all hope! Yes, hope…..

When I first was told that I needed to have my thyroid removed due to a number of large nodules, I literally thought it was going to be a blip on the radar. I knew many people who had their thyroid out without any problems. My surgeon made it sound easy peasy lemon squeezy. He said the biggest complication might be to have to take extra calcium supplements. So no biggy. I was not concerned. My biggest concern was scheduling it around my racing and training schedule. I purposely scheduled it two weeks after running the 2016 NYC Marathon. I was training for a 4:30 but blew it running the first half like there wasn’t a second half. That is and was a whole different post. LOL…

Anywho….

After the surgery, we realized by not just my calcium levels but also the severe tetany that something was off. So I was diagnosed with Hypoparathyroidism and so the journey began. At the time, my whole focus was keeping my life, my running, and everything the way it was prior to surgery. I didn’t want to make any concessions. I didn’t want anything too change and I wanted to keep doing what I was doing. I wanted life to be like the surgeon told me and just have to take some extra calcium and go about my business. Period. End of Story…. Or so I thought.

At the time, I was seeing and endocrinologist who also had this same mindset. He just looked at Serum (blood) calcium levels and called it a day. It worked. It probably would still be working, but there would have been consequences. There was no running other tests to see how all that calcium and Calcitriol was affecting my body. There was just, your calcium levels are good and call it a day. But the “problem” was that I did my own research. I found the Hypopara Association and learned because you know you only have one body. What I learned of scared me. So I found a doctor who was not only well versed in Hypopara, but so well versed that she runs FDA studies and is known in Hypopara community. So things changed.

So in 2018, I saw this specialist who was concerned especially after running a 24 hour urine calcium test and it was 578. Normal level is 200 and for Hypopara, she said 300 in good. This high level can lead to lots of issues and non of them good especially for the kidneys. So we adjusted both calcium intake and lowered cacitriol too, This brought my serum calcium levels down to the low 8’s which is makes me live in the low calcium zone. The trick is to keep it just in the sweet spot. Really fun without a home monitoring test, but that is a different story.

There was a blip where I was on Natpara, a hormone replacement therapy. When I was on that for 6 months, life was good. Both serum and urine calcium levels were good. I felt good. I felt like me. It was a thing of beauty… Right up until it was recalled. The medicine worked just as intended but the issue was with dispensing mehanism which is what made the recall so frustrating to to those of us who knew it’s worth. Not much to do but roll with it.

Anyway, here we are years later. I’ve learned so much. What I’ve learned and finally come to terms with……. I can run faster. I can run longer distances. I can do so much, but to me for now I realized that the tradeoff of adding the extra calcium is no longer something I am willing to do. My urine calcium levels are still high even with lower serum calcium levels. They are not nearly as high as they used to be and I am “happy” with that. I just realized that long-term impact on my body is not worth pushing for short term gain. That is why as much a I would love to train and run another marathon, it is no longer in the card till another hormone replacement therapy is available. It is just not what my body needs. Besides, I am hopeful as there are new treatments on the horizone.

Besides, my body even at this level can do amazing things! This year, I have decided to do an event a month. Nothing longer than a 10K but probably going to be mostly 5 K’s. I am lucky. I am finally content….. Most of all, I am still moving!!!

Find Your Joy

Mar3

While no one believed me even though they knew I wasn’t really running or training, the truth is out there:). This is the first year that when NYC marathon lottery came out, I did not have even an inkling of an itch to put my name into it. I got the emails and was like… nope….. delete…. No thank you.

I just got the email from Sandy Hook Promise to put my name into for consideration for charity runner……. Nope….. not this year….. will continue to love and support the team….. but…. Nope…. Delete.

This is how I know I am finally, finally, finally at peace with not running so hard. Not training so hard. Honestly, I could take “so hard” out of those last two statements as I haven’t been doing either lately but I am trying to find my groove.

For right now, I think I might actually finally be at peace for what I am both physically and mentally able to do right now. I think I finally realized that for right now in my life this is not something that I need to or should be doing. I 100% believe that I am not done being a marathon runner and 100% believe there will come a time where I will both want and actually run another marathon. For right now though, I just do not need or want it in my life.

I am taking the Maria Kondo approach to my running. Does it bring me joy?

The answer has been no – not at those miles, not at feeling like it was something that was expected that I “needed” to do, or that I was doing just to do. There was no joy. No passion. So that begs the question, why put my body and mind through it? Running and training for anything more than a 10K has not been joyful. It has been to hard for many reasons. It shouldn’t be so hard.

Here is the thing too…….

Since I recognized and admitted this truth, I am moving more. I am doing yoga. I am doing stretching. I am doing some strength training. I am walking. I am finding the joy and health in recognizing that while my body is not anything close to perfect, it can still move.

Life is hard enough without making it harder on yourself for the sake of making it hard…… without adding something that we were forcing ourselves to think we needed to do it for various reasons. Since my surgery in 2016, I have said I needed to step back and give my body a break. Yet, I never did. I always had one “valid” reason after another why I needed to run another marathon, why I needed to keep pushing. It was always about I need to keep pushing….. If I give my body a rest, than somehow that shows how week I am. That the hypopara wins….

Guess what?

That is crap. Everyone’s body changes. Everyone’s goals changes. Yes, prior to my surgery I was chasing a sub 4 marathon. Guess what? I’m not going to get there. I wanted it and could have had it prior to surgery if I didn’t blow my pacing, but thats a different story. Anyway, I guess it’s been a long time coming and although I thought I’d done it before, but the fact that I kept signing up for marathons showed I really didn’t……… I get that my body is not the same. I get that for right now, I just don’t want to.

Let me be clear.

I do not want to run, train, or sign up for anything more than a 10K. It is freeing to not only say this but finally realizing that I really mean it. It is also freeing to say that I think that I will run long distances again…… ONLY when it will bring me joy.

Find your joy……..

Embrace your joy…..

Most of all……… Be Kind to yourself and know that what ever you do should both bring you joy and is enough.

Tell Me Why?

Feb21

I’ve been thinking a lot about my Why?

Why can’t I loose weight?

Why is it so hard to start and so easy to give up?

Why does it matter because I’m at the point as hard as I try it’s not working?

Why are my legs so sore all the time?

Why don’t I have the energy I use to have?

Why does it even matter at this point?

Why? Why? Why? Why????

Some answers are easy enough and may sound like a broken record.

I don’t have the energy and my muscles are sore because of the low calcium due to the Hypoparathyroidism. That in leads to the why can’t I loos weight because you have to be mor active for that to happen, but there are other factors in play. You know the “a woman your age” factor. They “your metabolism isn’t what it used to be factor.” Plus I will say that due to the lack of energy and other unknown reasons many in the hypopara community often speak of the difficulty of loosing weight. Although I think based on the massive diet industry that is not unique to us but does add another layer.

I was recently looking at running pictures prior to my surgery.

The days that I was training hard, running fast (sub 2 half) and kicking ass. I had drive. I had ambition. I had the ability to push myself past where I thought it could go. And I’m now in the chicken or egg stage because I don’t know if I no longer have this drive because I know I can’t push myself or if I stopped pushing myself and lost the drive. To be honest though, I think it is because I realized that in order to run the long miles, in order to run the faster paces, in order to expel so much energy that means taking more calcium which in the long run is not what my body needs (the high urine calcium levels show that pretty accurately). I know I can do it. I know I can just pop more calcium and my blood calcium levels will remain stable, but that isn’t something I’m willing to do. You only get one body and I’m trying to do the best that I can.

I have said that I won’t run another marathon until I am back on some (like there are many to choose from) PTH hormone replacement therapy. Natpara isn’t coming back. There is a new one on the horizon (TransCon) but is not FDA approved. Then there is the real worry that even when approved that it will be cost prohibited and insurance won’t cover it. When I was on Natpara, they had a rebate plan to make it “affordable” as when I say it was big money I mean it was big money. Like $10,000 a month money without rebate. Ascendis Pharma owner of TransCon in an earnings call made it seem like there would be no rebate since they literally own the corner of this therapy and it will be a money maker. So there’s that….

Anywho….

Last week when talking to the Nutrionist I said it’s been a roller coaster because I just can’t seem to care because nothing I do is making a difference. I can’t eat my way out of Hypopara. I can’t change my diet enough to not take the calictriol and all the calcium that is so hard on the kidneys. So that lead me to be like….WTF I might as well just eat that pint of Ben and Jerry’s. She got it and she is actually going to do some research on Hypopara to see if there is something we can do for my diet to add more natural calcium that might not be so hard on the kidneys. Between that and FINALLY being able to get an appointment with a specialist who is not only familiar but an expert on hypopara, I have a little hope. Although something the Nutritionist said did stick with me…….

She pointed out (paraphrasing) that while working with her and following the plan might not actually be doing the magic trick I wanted, it is still beneficial. In that it can help to keep other health issues at bay – Keep my cholesterol in check (as it is just under being high). Keep my sugar levels in check. So many other health issues from hypertension to diabetes to even my sleep apnea can benefit from following a healthy diet.

So theres that.

So how am I doing with my goals of dinner and exercise? I’m making progress. I’m being more intentional. Most of all I’m trying.

My why for so long was to reach for something that for now is just out of reach. My why needs to be to just do the best I can with the hand that I have been dealt. Like running a race, life is about learning to bob and weave. I kind of forgot that…

Middle of the Road

Feb16

Showing up for ourselves seems easy enough, yet might be the hardest thing we do in our lives. We always make space for everyone else – For what we need to do for them……. What they need…….. What we can do to make the happy…….. on and on the list goes of what we will and can do for others.

Here is a news flash…….

Not only is it ok to show up for ourselves. Not only is it a necessity, but it should be at the top of the list not the bottom!

Today I had my meeting with my nutritionist. I will admit it, I thought not only more than once but up until I logged into my video appointment of cancelling. I had several very good reasons why cancelling (ok not good, but really good excuses). They all made sense from what does it matter to I haven’t done any of the things I was supposed this last month. I also admit that the only reason I showed up was not for myself but because I figured if I cancelled last minute I would still (rightfully) be charged for the appointment.

So I begrudgingly showed up.

It was the right thing to do mostly for myself even if that wasn’t what propelled me to log in.

I honestly told her that I almost didn’t show up because I wasn’t in the right space and didn’t know if anything we had been doing was even making a difference and worth it…… She’s good and we talked through it. I left in a much better thought pattern than I went in with. She also has my number more than I realized.

In talking to her, she pointed out that I am an all or nothing person. She was like that is wonderful on one hand because it propels you to run marathons and do amazing thing, but the flip side is not as good. So the goal this month is to try and be middle of the road and know that it is 100% ok to be middle of the road! Focus on what I can do. What is in my control. So maybe for right now I am not training the way I used to be, but that doesn’t mean that I need to be stationary. Middle of the road…….

I walked away with a focus for the next month not just on my nutrition goals but also on movement goals. Baby steps on both.

Nutrition….. I have breakfast down with my smoothies (yup, still do them). We are not focussing on actual goals this month as far as numbers of proteins vs carb and such. The focus is just to show up. To think about what I can do to meet my meal goals and how to get there. So by focusing on dinner, that might carry over to lunch as I am going to make extra portions to possibly utilize for lunches. I am also going to look into meal prep services to help get me back on track just being cautious of sodium. But one step at a time…. Which leads to movement

Right now my body is constantly sore. Legs often feel like they have done much more than they actually have done….. so lets take a step back. Slow down. Do something daily either a walk, stretching, but something every day. It doesn’t have to be all or nothing….. it can be middle of the road.

So here is to finding the middle of the road and realizing that it is a good space to be

Lastly I am going to send her my latest labs, so she can do some research to see if she can be of better service with nutritional needs. Told you she was good:)

Living with Hypoparathyroidism

Feb15

I have a confession to make……

I miss Running.

I miss running fast.

I miss competing.

I miss waking up and not feeling like I’ve run a marathon when I’ve done nothing.

I miss having a body that works the way it is supposed to.

Yes, I am having a pity party today. It happens from time to time. You would think after 7 years of having Hypopartyhroidism that it wouldn’t, especially when I know how lucky I am compared to others that struggle so much more. That being said, my struggles and pity party don’t take away from their struggles or any struggles you are having. We all have our baggage filled with things we wish we didn’t have to carry or wish on anyone else.

Here’s the thing…..

I am tired of constantly having low serum calcium levels and all the fun that brings (said with heavy sarcasm).

I am also tired of at the same time having high urine output calcium levels and all the worry and stress that comes with that.   Like waiting for the shoe to drop but the shoe is kidney stones and damage.   Just waiting…. never sure if it is coming, but knowing that you have to be prepared.   Like the unwanted visitor that says they are going to drop in but you aren’t sure if they really are coming and if so when they will arrive.   

The stress is real.

The worry is real.

My feelings are both real, valid, and in hypopara community probably more widely shared than people outside it realize.   Anytime you have a rare out of the box diagnosis, it is hard finding the care you need.   It’s not that the doctors don’t care, but they might not understand and just look at the numbers.   The numbers don’t always tell the story and often you feel like you are hypochondriac.   Often the doctors will make you feel that way too (insert any rare disorder)

Lastly….. I miss going to doctors and feeling like they know what they are supposed to know to treat me.   I never questioned that prior to 2016.   I’ve learned since then that if you are outside the box, they might think they might know more than you but chances are you’ve done your homework and they might not have.    Now don’t get me wrong, I know in the whole scheme of things they know more than me but when it comes to me and my diagnosis I’ve probably done more research than them.

I’m trying to find a doctor that I can go to and know they know what they know, but when you have a NORD (National Organization of Rare Disorders)  diagnosis that is often harder than it should be. I will further add that insurance is also a stomping block as is the cost of treatment, but those are a whole different post/issue.

So I’ve been struggling. I’ve been keeping it all in. I’ve been quiet in my communications, but I’m trying to climb out of my shell, be open and honest, and put it all out there. We all have our struggles. We all feel like we don’t want to burden others. We all feel like it is our burden to carry alone, but the truth is that when we share these burdens with those in our lives (don’t worry I’ve done that too)…… while it doesn’t make them go away, it does seem to lighten the load.

So if you are carrying a burden…… If you are struggling (with ANYTHING)……. If you feel like no one will understand…… If you feel like everyone has their own shit and you don’t want to add to it with your problems………. You might just find, that they want to know. That they are there for you and that being there for each other in the good and bad is what makes your tribe your tribe and if you don’t think you have a tribe reach out to someone and you might be surprised.

Any Day is the Day

Jan1

The problem with creating goals is that we either make goals that are too big or goals that are too small. We need to find the Goldilocks of goals to actually be able to do what we want. And when I say we, I mean me. Here is the thing……. I am not at a place where I am going to make a goal for a specific pace, number of events, streaking, or even number of pounds.

Here’s the problem…….

When goals are too small, you reach them. Check it off your list and move on. But that is hardly ever the problem. Often we make BIG BIG goals which sometimes require not just small changes but overall life change. You can’t change everything at once or it gets both too overwhelming and actually unreachable. And we are at that time of year again where people will resovle to turn it all around.

Here is the harsh truth. Some statistics show that 25% fail with in the first week. After 6 months, only 46% are still on track and by year end only 9% feel that they kept their resolutions.

Now this is not to say that you shouldn’t make resolutions. Goals. Want to do better. Definitely, we should all strive to do better…..

but….

but…

What if we do it in a more realistic way. A smarter way. A way where we might actually reach our goals. The problem though is (for me) it can’t be an all or nothing approach from the beginning because if thats the case I will be out by the end of first week.

Yes, I know my end goal is to eat healthier, loose some pounds, get on a track with an exercise program. That is a lot to take on our once and I know I won’t do it all the first day of January! So I am going to make small goals along the way. Reachable goals with attainable, verifiable checkmarks.

  1. Start tracking food. I need to do this as I am meeting with nutritionist on the 12th. So I have to track for this appointment to actually mean anything. (Attainable and realistic goal).
  2. I am not training for anything right now. Not planning to do so either, but I have a home gym and really no excuse not to use it. I also know that streaking isn’t for me. I’m tired. I work. I have a life, but I need to be active for 30 minutes at least 4 days a week. This will be 4 days more than I am right now, so theres that bonus.

Thats it for now. I can’t realistically make more of a plan than that because if I do, I am setting myself up for failure. So with that I am starting my year off with hope! Every year, every day, every hour, and even if you need to hold onto it every minute is a new opportunity. A new chance to reach, to dream, to plan.

So on this first day of the year, it is always a time to reflect. Reflect on where we came from. The struggles we’ve overcome. The joys and triumphs. To think about what we want to accomplish. What we want to plan. Where we want to end up. So while time really is a man-made constraint and we don’t need to wait for this first day to make a change, this is a day we are wired to do so. The bottom line though, is that if you don’t do it today, you can still do it tomorrow or any day you choice. For me, I choice today.

And with that, I will lace up and do my local Hangover 5k…… And I’m off.

30 Minutes

Dec2

It is that time of year again. You know the time where you are running around trying to get everything done, making everything jolly and bright while at the same time working, taking care of the house, working some more and also trying to be present for your loved ones.

Yeah, that time of year….. Oh wait, that really seems like all year long. Although December brings a whole new level of things that “must” get done. So with that said, I am going to challenge myself to spend 30 minutes a day doing something healthy for myself. I’ve never been one for running streaks and to be honest with as sore as my legs have been lately I know I won’t be doing one soon. This is why this challenge is just what I need.

30 minutes

30 Days

That’s it. Can be more, but no less. Can be yoga, walking, biking. stretching, weight training, running, or combo of it all and even more. I need to claim these 30 minutes. Not just for my body but for my mind. 30 minutes to unplug, unwind and just focus on taking care of myself.

The beauty of this challenge is that I have taken some of my friends along for the ride. So we are going to keep ourselves honest. Plus they are all training for the NYC Half which I am so thankful that I didn’t get in which is a big indicator how happy I am to e giving myself a break from training for anything longer than a 5K.

We all need this. I have already realized how beneficial this has been for me mentally. There is no goal in trying to run further or faster, lift more weights, plank longer. The goal is just to take 30 minutes to do something physical.

Who else is up for the challenge? You know your worth it!