Tag Archive | Hypopa athlete

Take 5, or is it 6 or 7?

Life is about transformation.

Metamorphosis

Changing from one stage to the next. Often we get comfortable in one stage and don’t like the thought of change. Most often the metamorphosis is not up to us and will happen whether we like it or not. Change is hard. Change is often unexpected. Change is inevitable.

The thing about change though is that often we are not ready for it. We have reached a level of comfort and we want to stay in the comfort zone. This does not mean that the comfort zone is all that comfortable, but we are used to it. We know it. We accept it. We can deal with the known because the unknown is frightening.

Surprise.

Time to move out of your comfy zone. You can not stop a change any more than the caterpillar can stay in it’s cocoon forever. It needs to break free and let the sun shine on it’s wings and fly. If it does not emerge from it’s cocoon it will wither and die.

So here I am. Now 5 Weeks till NYC Marathon getting ready to figure it all out again. I’ve been thinking this last week about my training. I’ve trained for marathons healthy. I’ve trained for marathons with hypoparathyroidism without Natpara. I’ve been training with hypoparathyroidism with Natpara which let me tell you is soooooo much nicer. Now 5 weeks till NYC Marathon I’m getting ready to figure it all out again.

Last year when I trained, I was able to build my miles up learning when I needed to ad more calcium, what would effect my levels, and how I needed to adjust my training. I was able to build up the miles slowly and plan accordingly. This training cycle with Natpara has been different as I have not been so symptomatic and it was going nicely. Now as my body adjusts to being off the Natpara even without the added stress of running, I need to figure out how much calcium to take, when to take it and also how much Calcitriol and supplements to take to find a balance. Add training for NY to the mix and it is a little stressful. My body and even mentally I’m trying to work it all out. Instead of having the summer to figure it out and get it together, I literally have weeks.

It can be done. It will be done. I was scrambling. Doubting. Wondering how to pull it all together. A good friend shared with me an 8 week marathon training plan with low millage. I’ve been putting in the miles. I have the base. I can do this. It is not designed for someone who is looking to race, PR, or push. It is designed for someone like me who just wants to get to the finish line. So I’m jumping in with 5 weeks to go and let this next transformation be what it will be.

I’m Not Unpacking

You already know the whole Natpara thing has thrown me for a loop. It’s to be expected, but I’ve got literally a week of it left so I might as well make the best of it. It’s hard though when you see posts of people in your hypopara support groups already suffering with the effects of coming off of it and some already in the ER. It’s no joke.

What I keep thinking of though is that prior to Natpara I was lucky enough not to have visited an ER. So chances are pretty good that I won’t now either. At least that’s what I keep telling myself because you just never know because now it’s not just the hypopara but body adjusting to not having Natpara. I’m hopefully optimistic especially because I am also lucky enough to have a doctor not just well versed in Hypopara but also in Natpara. I trust her judgement and the instructions she gives to make this as smooth as possible. It will be a balancing act. Not too low. Not too high which is just as bad. We are looking for just right. Fingers crossed.

So yeah, I admit that I’m nervous. I think that I might be a fool if I wasn’t. But since the medicine is no longer available, I’ve got no choice expect to face it head on with as positive an outlook as I can.

Now Lastly I will admit that I’ve also been thinking about how NYC Marathon is in 8 weeks. Training has been going good in my opinion. I’ve been for the most part following my plan. I’ve been getting out the door. Doing what needs to be done to be able to cover the distance. I have not been concerned with paces as that has never been part of the goal. That being said paces have been better than I have expected. Part of me was starting to think that I might actually have a 5:15-5:30 marathon in me.

Well that’s out the door.

I have been experiencing a little tiny pity party these last few day. Not getting in one run since the news came out. Part of me is like…. why bother? A What will it matter pity party.

So it’s time to dust off the stink of the pity party. The Party is over and I refuse to unpack here, because I don’t know what is coming anyway. Besides I was never doing this marathon for me, but for Sandy Hook Promise anyway. So be what may, I will do what I can. At any pace that I can. Smart and safe as I can (don’t worry Mom). I will do this any way that I can, but I will do it.

So with that being said…. It’s time to run again.

I

Fire

I’m preparing to start training for NYC Marathon. I’m dotting my i’s and crossing my t’s. Picking my training plan. Kind of doing some pre training. Thinking about goals. All the things that I’m supposed to be doing. With all that being said, I am noticing one thing missing this go around.

Fire.

Don’t get me wrong….. I’m excited to be getting ready to train and run NYC Marathon for Sandy Hook Promise. I’ve got the fire to get to both start and finish line. Let me explain….

When I first started this journey years ago, I had fire and determination. I pushed myself to the limit. I trained. I ran far. I ran fast. I pushed myself to and past limits that I didn’t know I could push through. I got up early. I ran late at night. I had serious goals. Some I reached. Some I didn’t. But I always pushed through.

Now….

I like to sleep in….. I’m comfy on the couch at night. I’m missing that fire to push the limits. Don’t get me wrong, I’ve been running (not as much as I thought for pretraining). I’ve been running some local 5K and being pretty consistent in my times. Faster than I thought I’d be. I’ve run 3 5K’s this year. All of them, I said I was just going to run and see what happened. All of them were hard and I pushed myself. All of them I finished around 31 minutes.

Now that being said, I think the reason my fire is a little damp right now is I’m not sure what is going to happen as I start adding the miles. Am I going to fall apart. Is my body which thanks to my Natpara has been feeling good going to give me issues. I’m worried. I like the way I’ve been feeling. You know… feeling like me. I think that I may be afraid to rock the boat. I keep saying I don’t want to go back to how I felt both mentally and physically before I started my Natpara. I love running. I love racing. I love being able to cross any finish line but a marathon finish line is special especially when running for a cause you believe in. That being said as much as I love that…… I love waking up not feeling like grandma. I love not needing a nap in the afternoon. I love not having muscle cramps, spasms and all of those other funky sypmptoms of being hypopara.

So I guess what I will say is…… I have the fire, but I’m afraid to let it burn too brightly right now. I’m going to tend to it. I’m going to care for it, but I’m not going to let it burn out because while I love running; I love being able to live my life like I did before my surgery.

If there is one thing about being hypopara is that it does make you more cautious. Where I used to throw caution to the wind and let the chips fall where they may because I knew I could easily pick up the pieces; I don’t do that now. When they fall, they fall too hard and it takes too long to pick them up.

So I will go into my training following a very low key plan. I will put in the miles. I will do what I need to do and as the 3 miles turns 5 and so forth and so forth; I will reassess. I will adjust. What I will not do is stop….

So I guess I do have more fire than I thought:)

Perspective

We all come at life from different perspectives.    We all look at things just a little different based on our own personal experiences and over time even our own perspective shifts.

Before I ever got off the couch, I could not imagine why anyone would want to run for fun.   Running was something other people did.   People who did were nuts.   Sane people did not run.   Now that may be true, but once I got off the couch and started running my perspective changed.   I became one of “those crazy runners” even if it took me a while to think of myself as a runner.

Now when I started though, I had no thought of “good” pace or finish time and didn’t really put much thought into it.  Ok, I put no thought into it.   I rolled into my first half marathon by just signing up after it was suggested on a long run that I was taking just to take.   I had very little thought on strategy, pace, or even finish time.   I laugh now because in the car on the way to the race, I was in awe and amazed at the other runners talking of such things.    I felt like an idiot to be honest.    When they asked me what my plan was, I was like to finish.   We started together, but I told them to just run without me because I had no clue and didn’t want to hold them back.   Then a funny thing happened, I realized that they were always in my view.   I was stalking them:)   Then they realized I was back there and I joined the party!

I finished in 2:09:24.

Perspective shifted.

I was a runner, but I was just “normal runner.”   I would never do a marathon.

I have since run 5.   The first one was just not to die and then I actually started training for time.

But I would never be one of those crazy runners to run an Ultra.

I have run one 50K,   Truth be told, I secretly (shhhh, don’t tell anyone) want to run one again.  This is in the future, but I think it will happen again one day.

Perspective is a funny thing.

First I couldn’t imagine running.   Then I couldn’t imagine not running.   And now, I’m doing all I can to keep myself running.  Perspective has changed once again.

When I ran the NYCM marathon two weeks before my thyroid was removed in 2016, I was chasing the elusive 4:30 marathon.   I, probably, could have gotten it if I had not run the first half of the marathon like a half totally forgetting that the wall is no joke and not to be messed with.   But I still finished in under 5 hours.   Whew.

Perspective.

Chicago last year, I once again went back to having a goal of just finishing which is what I did.    I walked the last few miles.   I finished in 5:48:52.    I was happy.   I finished.    It was probably the hardest race that I have ever ran even with the slowest time.

Perspective.

I was lucky to be able to do Chicago.   I am lucky that my Hypoparathyroidism allows me to do all the things that I do.  So many with this disease would love to do what I am able to do.   I am very lucky, because it could be much worse.   For now, all is good.   I may have more aches, pains, weight, and such; but I am still able to get out there.

Perspective.

I sometimes think that I need to just enjoy the process now because as with anyone I don’t know what the future will bring.   For now, things are good and I need to just enjoy it all.   The aches.   The pains.   The heavy breathing.

And even with all of it, I am so lucky and it’s all the way you look at things.

When I had my first 24 hour urine test, my levels were off the charts.   My urine calcium level was over 570.   The normal level is supposed to be 200.   In talking to my doctor about changes to medications, she said that for someone with my condition our goal is to have these levels around 300.    The flip side though is that after getting used to a normal calcium level in the 9’s, I would lower my dosages to bring it down to the 8’s again.   What  a difference a point will make, but it’s all good.

I just got the results from my second 24 hour urine test.   The results were coming from my primary doctors office and they would send them to my endocrinologist.   Anyway, the office called and they were very upset as my levels were sooooo high.   The woman nicely was going on and on about how serious this could be with problems with osteoporosis and more importantly lead to kidney stones and damaged kidneys.   She was trying to get her point across how serious it was, when I asked what my levels were.   She replied that they were very high at 263.

Perspetive

I laughed and told her that was great because it had been over 570.

So just like life, running really comes down to our perspective.    I may never be the runner that I was for just a short brief blip, but it really doesn’t matter.

I’m still a runner.

And who knows…  Things could still change because that is just the way life works.

attitude

 

I’m Ready

I’ve been having a rough go of it lately. I’ve been stuck. Afraid to move forward.  Afraid of not being enough.  Afraid of things out of my control.  Afraid of failure, but who defines success and failure?

I’ve been stuck wandering in the fog for so long that I thought I would never see clearly again and even though I knew my vision was impaired I clung to it.   It is only after you come out of the fog that you can look at things with open eyes.   I’m ready now.   After one false start after another, I am truly ready now.   I can feel the difference.

I am looking at things clearer than I have in a while.   I do not have 20/20 yet, but really does anyone?    We all carry so much baggage that colors our world.   The trick is knowing what to hold onto and what to let go.   What really sucks is when you pack for summer only to find out that you are stuck in winter.    It is a work in progress, but I feel like I’m getting there in many aspects of my life.

As for my running….. I can finally say that I am coming to terms that things will be different.    Things will be harder.   My body will need more recovery time and be more sore than it had in the past.  I will wake up and my my body will ache.  Things will not feel the same.

BUT…..

Many things will remain the same.

I will still get peace of mind and clarity when running.

I will still feel the accomplishment of finishing a run.

I still will bond with friends while running.

I will still cross finish lines and most of all I will still run for me.

With this acceptance, I am finally able to let go of the ego that I spoke of.   I thought I was holding onto something, but really I was keeping myself from moving forward.   I am tired of standing still and am ready to move on from the past.    One of the reasons that I couldn’t commit to training was because somehow I felt less because I would pick a plan that the pre-hypopara me could have easily kept to, but the me of today can not.   Maybe there will be a day, but that day is not today.

I’ve been thinking of the NYC Half a lot.   NYRR always puts on great events, but these big events are spectacular.   The crowds.   The running on closed NYC streets.   It is an amazing feeling to run through Times Square like this race does.   As I said before, I want to enjoy it.   I want to be ready for it.    I want to embrace where I am today.   Not yesterday.   Not tomorrow.   Not next year.  Today.

So with this thought process, I picked a training plans for Training Peaks for a half marathon with a 2:30 finish time.   Now, I will be honest…. I am not sure that I can do a 2:30 finish.   It might be just a hair out of where I am, but it might not.   It is also much more realistic that 2:15.   Besides you will never know what you can do if you don’t push a little more than you think that you can do.  So I will push, but I will push wisely.

It is time to face this with open eyes, laced up shoes, and the knowledge that as long as I am doing the best that I can that there is no failure.   Failure is not trying.

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