Showing Up

We show up for work. We show up for school. We show up for our friends, for all our responsibilities and we show up for so many things that we don’t even want to but feel we need to. We show up for everyone and everything else that often we forget to show up for ourselves.

Wait what????

We forget to show up for ourselves by letting people treat us wrong for too long. For not standing up for ourselves. For constantly putting the to do list before ourselves. No don’t get me wrong, there are times where it is pertinent and necessary for others and our to do list to come first. The problem is we often make that a pattern. We often make that the norm. We often say I need to do this, this, and this first. Then I will take care of myself

STOP THAT!

I realized that part of my issue with getting back on track is that before I would do a work out, before I would plan for my meals, before I would take care of myself; I felt I needed to take care of everything else. That everything else list has and always will be long long… Long… And never ending

I’m working towards my CDA. Lots of time there.

I started a home baking business and often have orders

I have a job outside the home that I am required to show up for.

I have a home and family that requires tending

Here’s the thing, though… I never put myself on the list or at the top of the list recently. And if I’m not on the list, then I’m not a priority. The things that I need to do for me are not getting done. I make sure everyone else in my home is taken care of up to, and including my pets. I forgot about me

Wow, many things on my to do list need to be done. There is still time in the day for me though. It will require planning/. It will require prioritizing. Most of all it will require knowing that I should….. No, that I need to be on the list as well!! So with that being said , I am making myself a priority. Yes cookies need to be baked, dinners need to be made and jobs need to be done, but there is still time for me.

Do you make time for you? So many of us especially mothers are used to putting everyone and everything before us but when the pattern does not allow for any time, there is a problem.

Since I have started putting myself on the list……

Workouts are getting done

My own meal planning is getting priority (loving meal service).

Feeling better and actually less stressed

How do you show up for yourself?

How Did I Get Here?

I’m taking a stroll down memory lane as I have some new followers and people new to my journey. So I just want to take a stroll down memory lane as I feel like I am finally in a place of true acceptance, understanding and most of all hope! Yes, hope…..

When I first was told that I needed to have my thyroid removed due to a number of large nodules, I literally thought it was going to be a blip on the radar. I knew many people who had their thyroid out without any problems. My surgeon made it sound easy peasy lemon squeezy. He said the biggest complication might be to have to take extra calcium supplements. So no biggy. I was not concerned. My biggest concern was scheduling it around my racing and training schedule. I purposely scheduled it two weeks after running the 2016 NYC Marathon. I was training for a 4:30 but blew it running the first half like there wasn’t a second half. That is and was a whole different post. LOL…

Anywho….

After the surgery, we realized by not just my calcium levels but also the severe tetany that something was off. So I was diagnosed with Hypoparathyroidism and so the journey began. At the time, my whole focus was keeping my life, my running, and everything the way it was prior to surgery. I didn’t want to make any concessions. I didn’t want anything too change and I wanted to keep doing what I was doing. I wanted life to be like the surgeon told me and just have to take some extra calcium and go about my business. Period. End of Story…. Or so I thought.

At the time, I was seeing and endocrinologist who also had this same mindset. He just looked at Serum (blood) calcium levels and called it a day. It worked. It probably would still be working, but there would have been consequences. There was no running other tests to see how all that calcium and Calcitriol was affecting my body. There was just, your calcium levels are good and call it a day. But the “problem” was that I did my own research. I found the Hypopara Association and learned because you know you only have one body. What I learned of scared me. So I found a doctor who was not only well versed in Hypopara, but so well versed that she runs FDA studies and is known in Hypopara community. So things changed.

So in 2018, I saw this specialist who was concerned especially after running a 24 hour urine calcium test and it was 578. Normal level is 200 and for Hypopara, she said 300 in good. This high level can lead to lots of issues and non of them good especially for the kidneys. So we adjusted both calcium intake and lowered cacitriol too, This brought my serum calcium levels down to the low 8’s which is makes me live in the low calcium zone. The trick is to keep it just in the sweet spot. Really fun without a home monitoring test, but that is a different story.

There was a blip where I was on Natpara, a hormone replacement therapy. When I was on that for 6 months, life was good. Both serum and urine calcium levels were good. I felt good. I felt like me. It was a thing of beauty… Right up until it was recalled. The medicine worked just as intended but the issue was with dispensing mehanism which is what made the recall so frustrating to to those of us who knew it’s worth. Not much to do but roll with it.

Anyway, here we are years later. I’ve learned so much. What I’ve learned and finally come to terms with……. I can run faster. I can run longer distances. I can do so much, but to me for now I realized that the tradeoff of adding the extra calcium is no longer something I am willing to do. My urine calcium levels are still high even with lower serum calcium levels. They are not nearly as high as they used to be and I am “happy” with that. I just realized that long-term impact on my body is not worth pushing for short term gain. That is why as much a I would love to train and run another marathon, it is no longer in the card till another hormone replacement therapy is available. It is just not what my body needs. Besides, I am hopeful as there are new treatments on the horizone.

Besides, my body even at this level can do amazing things! This year, I have decided to do an event a month. Nothing longer than a 10K but probably going to be mostly 5 K’s. I am lucky. I am finally content….. Most of all, I am still moving!!!

Getting a Little Help

Last time I met with the nutritionist, we were talking about ways that I can eat healthy without stressing out. I realized between day job, home baking business, preparing for my CDA and life in general that I have not been bringing my A game when it came to food prep at home. I’ve been in a bit of a rut. While I enjoy cooking, cooking can be time consuming and it was always at the bottom of my list. I found myself making the same meals in one formation or another week after week. This also led to something that wasn’t meeting all my nutritional goals or needs. She also suggested that I make extra portions for dinner giving me a healthier lunch option the next day. You know the whole one good choice leads to another good choice thing.

My problem was time. My problem as mentioned that I was in a rut. My problem again was getting home at almost 6:00 from work and the last thing wanting to do is spend time prepping and cooking. I also am not a big lets prep for the week kind of person. So that lead me to look for some inspiration.

Now before I go into this, I must say this is NOT a sponsored post. I wish it was, but my little blog is not catching anyones eye to say “Hey lets sponsor this woman” but if they are out there…. Go for it:). Lol

Anywho……

When my son was in college apartment, I signed him up for a food prep service. As his mother, I did like that besides giving him good meals,; it also taught him how to cook. I was going to use this same service, but went with a different one because I got a coupon in the mail. My bad though because at checkout, I forgot to put the code. I didn’t realize because I was getting a first time user discount. The home coupon was better, but it is what it is. Besides, the meals were just what I needed

Case in point…..

Beef Tenderloin & Balsamic Steak Sauce – Now I don’t eat meat, but I got this one for hubby and son. They both loved it. The meat was good quality and I did eat the sides of asparagus and potatoes. The dogs were sad there was not leftovers, but they did get some sauce mixed in with their dinner too. There was no complaints from anyone.

Garlic Butter Shrimp Scampi – I make scampi all the time at home, but this was nice to not have to worry about or plan and I’ve never added broccoli. Garlic bread was a nice touch to go with it.

Falafe Power Bowls – This may have been my favorite meal of the box. I’ve done falafels at home before but usually there is so much work to them that it can be overwhelming. The meal card said 15 minutes and it didn’t lie. Plus making it into a bowl with spinach adds a nice boost of natural calcium! I would definitely order this one again.

Vegan Harissa Apriocot Glazed Tofu – I did not tell hubby this was vegan only that it was tofu. shockingly my hubby who will eat tofu but usually complains, this time said Tofu was really good. So there is that. Plus he wasn’t wrong. It was delish. The tofu was firm and packaged where I didn’t need to press it. So ready to go. This dish had a lemon cilantro couscous which is something that I would never make at home. It had a good compliment to the tofu in place of a rice that I would normally make and it has better nutritional value.

Packaging was perfect where I didn’t need to worry about unboxing the second it arrived. Everything came that was needed except for things like butter and oil. Everything was really yummy. The first box, I may have over ordered with 4 meals doubling some portions for lunch. That being said, I did eat the left overs for lunch and nothing went to waste. Plus having extra for lunch beats a PB&J any day.

I adjusted portions and have a second box coming this week. I am still in need of getting out of my cooking rut. I can’t manufacture more time and I really do want to try to eat healthier. This week I am excited to be getting Toasted Coconut Tempura Shrimp and some other goodies.

Bottom line is I need the help right now and am happy to allow someone else to prep a few of my meals!

Have you ever done a food service and if so, who did you use?

Find Your Joy

While no one believed me even though they knew I wasn’t really running or training, the truth is out there:). This is the first year that when NYC marathon lottery came out, I did not have even an inkling of an itch to put my name into it. I got the emails and was like… nope….. delete…. No thank you.

I just got the email from Sandy Hook Promise to put my name into for consideration for charity runner……. Nope….. not this year….. will continue to love and support the team….. but…. Nope…. Delete.

This is how I know I am finally, finally, finally at peace with not running so hard. Not training so hard. Honestly, I could take “so hard” out of those last two statements as I haven’t been doing either lately but I am trying to find my groove.

For right now, I think I might actually finally be at peace for what I am both physically and mentally able to do right now. I think I finally realized that for right now in my life this is not something that I need to or should be doing. I 100% believe that I am not done being a marathon runner and 100% believe there will come a time where I will both want and actually run another marathon. For right now though, I just do not need or want it in my life.

I am taking the Maria Kondo approach to my running. Does it bring me joy?

The answer has been no – not at those miles, not at feeling like it was something that was expected that I “needed” to do, or that I was doing just to do. There was no joy. No passion. So that begs the question, why put my body and mind through it? Running and training for anything more than a 10K has not been joyful. It has been to hard for many reasons. It shouldn’t be so hard.

Here is the thing too…….

Since I recognized and admitted this truth, I am moving more. I am doing yoga. I am doing stretching. I am doing some strength training. I am walking. I am finding the joy and health in recognizing that while my body is not anything close to perfect, it can still move.

Life is hard enough without making it harder on yourself for the sake of making it hard…… without adding something that we were forcing ourselves to think we needed to do it for various reasons. Since my surgery in 2016, I have said I needed to step back and give my body a break. Yet, I never did. I always had one “valid” reason after another why I needed to run another marathon, why I needed to keep pushing. It was always about I need to keep pushing….. If I give my body a rest, than somehow that shows how week I am. That the hypopara wins….

Guess what?

That is crap. Everyone’s body changes. Everyone’s goals changes. Yes, prior to my surgery I was chasing a sub 4 marathon. Guess what? I’m not going to get there. I wanted it and could have had it prior to surgery if I didn’t blow my pacing, but thats a different story. Anyway, I guess it’s been a long time coming and although I thought I’d done it before, but the fact that I kept signing up for marathons showed I really didn’t……… I get that my body is not the same. I get that for right now, I just don’t want to.

Let me be clear.

I do not want to run, train, or sign up for anything more than a 10K. It is freeing to not only say this but finally realizing that I really mean it. It is also freeing to say that I think that I will run long distances again…… ONLY when it will bring me joy.

Find your joy……..

Embrace your joy…..

Most of all……… Be Kind to yourself and know that what ever you do should both bring you joy and is enough.

Tell Me Why?

I’ve been thinking a lot about my Why?

Why can’t I loose weight?

Why is it so hard to start and so easy to give up?

Why does it matter because I’m at the point as hard as I try it’s not working?

Why are my legs so sore all the time?

Why don’t I have the energy I use to have?

Why does it even matter at this point?

Why? Why? Why? Why????

Some answers are easy enough and may sound like a broken record.

I don’t have the energy and my muscles are sore because of the low calcium due to the Hypoparathyroidism. That in leads to the why can’t I loos weight because you have to be mor active for that to happen, but there are other factors in play. You know the “a woman your age” factor. They “your metabolism isn’t what it used to be factor.” Plus I will say that due to the lack of energy and other unknown reasons many in the hypopara community often speak of the difficulty of loosing weight. Although I think based on the massive diet industry that is not unique to us but does add another layer.

I was recently looking at running pictures prior to my surgery.

The days that I was training hard, running fast (sub 2 half) and kicking ass. I had drive. I had ambition. I had the ability to push myself past where I thought it could go. And I’m now in the chicken or egg stage because I don’t know if I no longer have this drive because I know I can’t push myself or if I stopped pushing myself and lost the drive. To be honest though, I think it is because I realized that in order to run the long miles, in order to run the faster paces, in order to expel so much energy that means taking more calcium which in the long run is not what my body needs (the high urine calcium levels show that pretty accurately). I know I can do it. I know I can just pop more calcium and my blood calcium levels will remain stable, but that isn’t something I’m willing to do. You only get one body and I’m trying to do the best that I can.

I have said that I won’t run another marathon until I am back on some (like there are many to choose from) PTH hormone replacement therapy. Natpara isn’t coming back. There is a new one on the horizon (TransCon) but is not FDA approved. Then there is the real worry that even when approved that it will be cost prohibited and insurance won’t cover it. When I was on Natpara, they had a rebate plan to make it “affordable” as when I say it was big money I mean it was big money. Like $10,000 a month money without rebate. Ascendis Pharma owner of TransCon in an earnings call made it seem like there would be no rebate since they literally own the corner of this therapy and it will be a money maker. So there’s that….

Anywho….

Last week when talking to the Nutrionist I said it’s been a roller coaster because I just can’t seem to care because nothing I do is making a difference. I can’t eat my way out of Hypopara. I can’t change my diet enough to not take the calictriol and all the calcium that is so hard on the kidneys. So that lead me to be like….WTF I might as well just eat that pint of Ben and Jerry’s. She got it and she is actually going to do some research on Hypopara to see if there is something we can do for my diet to add more natural calcium that might not be so hard on the kidneys. Between that and FINALLY being able to get an appointment with a specialist who is not only familiar but an expert on hypopara, I have a little hope. Although something the Nutritionist said did stick with me…….

She pointed out (paraphrasing) that while working with her and following the plan might not actually be doing the magic trick I wanted, it is still beneficial. In that it can help to keep other health issues at bay – Keep my cholesterol in check (as it is just under being high). Keep my sugar levels in check. So many other health issues from hypertension to diabetes to even my sleep apnea can benefit from following a healthy diet.

So theres that.

So how am I doing with my goals of dinner and exercise? I’m making progress. I’m being more intentional. Most of all I’m trying.

My why for so long was to reach for something that for now is just out of reach. My why needs to be to just do the best I can with the hand that I have been dealt. Like running a race, life is about learning to bob and weave. I kind of forgot that…

Middle of the Road

Showing up for ourselves seems easy enough, yet might be the hardest thing we do in our lives. We always make space for everyone else – For what we need to do for them……. What they need…….. What we can do to make the happy…….. on and on the list goes of what we will and can do for others.

Here is a news flash…….

Not only is it ok to show up for ourselves. Not only is it a necessity, but it should be at the top of the list not the bottom!

Today I had my meeting with my nutritionist. I will admit it, I thought not only more than once but up until I logged into my video appointment of cancelling. I had several very good reasons why cancelling (ok not good, but really good excuses). They all made sense from what does it matter to I haven’t done any of the things I was supposed this last month. I also admit that the only reason I showed up was not for myself but because I figured if I cancelled last minute I would still (rightfully) be charged for the appointment.

So I begrudgingly showed up.

It was the right thing to do mostly for myself even if that wasn’t what propelled me to log in.

I honestly told her that I almost didn’t show up because I wasn’t in the right space and didn’t know if anything we had been doing was even making a difference and worth it…… She’s good and we talked through it. I left in a much better thought pattern than I went in with. She also has my number more than I realized.

In talking to her, she pointed out that I am an all or nothing person. She was like that is wonderful on one hand because it propels you to run marathons and do amazing thing, but the flip side is not as good. So the goal this month is to try and be middle of the road and know that it is 100% ok to be middle of the road! Focus on what I can do. What is in my control. So maybe for right now I am not training the way I used to be, but that doesn’t mean that I need to be stationary. Middle of the road…….

I walked away with a focus for the next month not just on my nutrition goals but also on movement goals. Baby steps on both.

Nutrition….. I have breakfast down with my smoothies (yup, still do them). We are not focussing on actual goals this month as far as numbers of proteins vs carb and such. The focus is just to show up. To think about what I can do to meet my meal goals and how to get there. So by focusing on dinner, that might carry over to lunch as I am going to make extra portions to possibly utilize for lunches. I am also going to look into meal prep services to help get me back on track just being cautious of sodium. But one step at a time…. Which leads to movement

Right now my body is constantly sore. Legs often feel like they have done much more than they actually have done….. so lets take a step back. Slow down. Do something daily either a walk, stretching, but something every day. It doesn’t have to be all or nothing….. it can be middle of the road.

So here is to finding the middle of the road and realizing that it is a good space to be

Lastly I am going to send her my latest labs, so she can do some research to see if she can be of better service with nutritional needs. Told you she was good:)

Living with Hypoparathyroidism

I have a confession to make……

I miss Running.

I miss running fast.

I miss competing.

I miss waking up and not feeling like I’ve run a marathon when I’ve done nothing.

I miss having a body that works the way it is supposed to.

Yes, I am having a pity party today. It happens from time to time. You would think after 7 years of having Hypopartyhroidism that it wouldn’t, especially when I know how lucky I am compared to others that struggle so much more. That being said, my struggles and pity party don’t take away from their struggles or any struggles you are having. We all have our baggage filled with things we wish we didn’t have to carry or wish on anyone else.

Here’s the thing…..

I am tired of constantly having low serum calcium levels and all the fun that brings (said with heavy sarcasm).

I am also tired of at the same time having high urine output calcium levels and all the worry and stress that comes with that.   Like waiting for the shoe to drop but the shoe is kidney stones and damage.   Just waiting…. never sure if it is coming, but knowing that you have to be prepared.   Like the unwanted visitor that says they are going to drop in but you aren’t sure if they really are coming and if so when they will arrive.   

The stress is real.

The worry is real.

My feelings are both real, valid, and in hypopara community probably more widely shared than people outside it realize.   Anytime you have a rare out of the box diagnosis, it is hard finding the care you need.   It’s not that the doctors don’t care, but they might not understand and just look at the numbers.   The numbers don’t always tell the story and often you feel like you are hypochondriac.   Often the doctors will make you feel that way too (insert any rare disorder)

Lastly….. I miss going to doctors and feeling like they know what they are supposed to know to treat me.   I never questioned that prior to 2016.   I’ve learned since then that if you are outside the box, they might think they might know more than you but chances are you’ve done your homework and they might not have.    Now don’t get me wrong, I know in the whole scheme of things they know more than me but when it comes to me and my diagnosis I’ve probably done more research than them.

I’m trying to find a doctor that I can go to and know they know what they know, but when you have a NORD (National Organization of Rare Disorders)  diagnosis that is often harder than it should be. I will further add that insurance is also a stomping block as is the cost of treatment, but those are a whole different post/issue.

So I’ve been struggling. I’ve been keeping it all in. I’ve been quiet in my communications, but I’m trying to climb out of my shell, be open and honest, and put it all out there. We all have our struggles. We all feel like we don’t want to burden others. We all feel like it is our burden to carry alone, but the truth is that when we share these burdens with those in our lives (don’t worry I’ve done that too)…… while it doesn’t make them go away, it does seem to lighten the load.

So if you are carrying a burden…… If you are struggling (with ANYTHING)……. If you feel like no one will understand…… If you feel like everyone has their own shit and you don’t want to add to it with your problems………. You might just find, that they want to know. That they are there for you and that being there for each other in the good and bad is what makes your tribe your tribe and if you don’t think you have a tribe reach out to someone and you might be surprised.

Complicated

Complicated Relationships

I have lots of complicated relationships. To be honest, who doesn’t?

I love my blog, but I have not been great about blogging recently…… Complicated

I love to run, but haven’t been running much lately……. Complicated.

I want a clean house, but I hate to waste time cleaning it….. Complicated

I want to be a size 8 or honestly I would take 10 at this point, yet really don’t do what is necessary to make that happen…… Complicated.

I miss running with my friends, yet don’t seem to have the time to meet up with them as our schedules don’t mix….. Complicated.

I have a VERY complicated relationship with food.   To be honest, who doesn’t?

The problem I have is the all or nothing mentality and often we might be the ones complicating things more than they need to be.

As I previously mentioned, I’ve met with a nutrionist a few times now. She has given me some good feedback. We have talked about different food choices, adding more protein to diet and less carbs, and looking at better options overall. Things that most of us all know, but she has given some good tips. Overall it has been worth it.

Here is the complication though……. While I know everything she says is valid, I am beginning to wonder if I have the conviction to actually follow through. So far the answer to that will be a resounding no. I can’t even get myself to track my food choices for a day or two. Now maybe it’s because I know where I’m going off track and I don’t want a paper trail to remind me. Maybe it’s because I’m not determined enough to follow through. Maybe….. Maybe….. Maybe….

There are so many reasons we don’t reach where we think we want to go and I maybe to the point where I, honestly, am not sure I want to got there anymore.

I just had my physical in December. Cholesterol only went up 4 points and blood pressure is still really good. So while I have all the other stuff with my Hypopara going against me, relatively everything else is looking ok.

So now the questions I need to ask……

What do I really want and what am I willing to do for it?

Simple.

Yet, complicated….

Answers will be coming shortly and probably changing as time passes.

Any Day is the Day

The problem with creating goals is that we either make goals that are too big or goals that are too small. We need to find the Goldilocks of goals to actually be able to do what we want. And when I say we, I mean me. Here is the thing……. I am not at a place where I am going to make a goal for a specific pace, number of events, streaking, or even number of pounds.

Here’s the problem…….

When goals are too small, you reach them. Check it off your list and move on. But that is hardly ever the problem. Often we make BIG BIG goals which sometimes require not just small changes but overall life change. You can’t change everything at once or it gets both too overwhelming and actually unreachable. And we are at that time of year again where people will resovle to turn it all around.

Here is the harsh truth. Some statistics show that 25% fail with in the first week. After 6 months, only 46% are still on track and by year end only 9% feel that they kept their resolutions.

Now this is not to say that you shouldn’t make resolutions. Goals. Want to do better. Definitely, we should all strive to do better…..

but….

but…

What if we do it in a more realistic way. A smarter way. A way where we might actually reach our goals. The problem though is (for me) it can’t be an all or nothing approach from the beginning because if thats the case I will be out by the end of first week.

Yes, I know my end goal is to eat healthier, loose some pounds, get on a track with an exercise program. That is a lot to take on our once and I know I won’t do it all the first day of January! So I am going to make small goals along the way. Reachable goals with attainable, verifiable checkmarks.

  1. Start tracking food. I need to do this as I am meeting with nutritionist on the 12th. So I have to track for this appointment to actually mean anything. (Attainable and realistic goal).
  2. I am not training for anything right now. Not planning to do so either, but I have a home gym and really no excuse not to use it. I also know that streaking isn’t for me. I’m tired. I work. I have a life, but I need to be active for 30 minutes at least 4 days a week. This will be 4 days more than I am right now, so theres that bonus.

Thats it for now. I can’t realistically make more of a plan than that because if I do, I am setting myself up for failure. So with that I am starting my year off with hope! Every year, every day, every hour, and even if you need to hold onto it every minute is a new opportunity. A new chance to reach, to dream, to plan.

So on this first day of the year, it is always a time to reflect. Reflect on where we came from. The struggles we’ve overcome. The joys and triumphs. To think about what we want to accomplish. What we want to plan. Where we want to end up. So while time really is a man-made constraint and we don’t need to wait for this first day to make a change, this is a day we are wired to do so. The bottom line though, is that if you don’t do it today, you can still do it tomorrow or any day you choice. For me, I choice today.

And with that, I will lace up and do my local Hangover 5k…… And I’m off.

30 Minutes

It is that time of year again. You know the time where you are running around trying to get everything done, making everything jolly and bright while at the same time working, taking care of the house, working some more and also trying to be present for your loved ones.

Yeah, that time of year….. Oh wait, that really seems like all year long. Although December brings a whole new level of things that “must” get done. So with that said, I am going to challenge myself to spend 30 minutes a day doing something healthy for myself. I’ve never been one for running streaks and to be honest with as sore as my legs have been lately I know I won’t be doing one soon. This is why this challenge is just what I need.

30 minutes

30 Days

That’s it. Can be more, but no less. Can be yoga, walking, biking. stretching, weight training, running, or combo of it all and even more. I need to claim these 30 minutes. Not just for my body but for my mind. 30 minutes to unplug, unwind and just focus on taking care of myself.

The beauty of this challenge is that I have taken some of my friends along for the ride. So we are going to keep ourselves honest. Plus they are all training for the NYC Half which I am so thankful that I didn’t get in which is a big indicator how happy I am to e giving myself a break from training for anything longer than a 5K.

We all need this. I have already realized how beneficial this has been for me mentally. There is no goal in trying to run further or faster, lift more weights, plank longer. The goal is just to take 30 minutes to do something physical.

Who else is up for the challenge? You know your worth it!