Tag Archive | Hypopara

Been a Minute

So my last post about unmotivated seemed to start my summer theme, but…..

It’s been a minute and I thought I would re-introduce myself and my new motivation.

Hello there!

My name is Christine and I think I am a runner?

I think….

But I am also a home baker busy with my new Cottage Food Baking business. Baking, researching, practicing, plotting.

I also work part time outside the home at a child care center. If you have ever worked with 3 year olds, you know that it is exhausting in a fun kids are too cute way.

I am also a home maker. Although 1 of my boys is a college graduate this past June and now in the work force, I still have one more college student at home and a High School student.

I also have Hypoparathyroidism which makes everything a balancing act.

I love to garden.

I am a busy, busy, bee….

I am also a blogger? At least think I am. I’ve written many a blog posts in my mind never to have actually made it to WordPress. I hope to change that. I hope to change a lot of things. So with that let’s catch up!

Although I haven’t been blogging or training, I have actually been moving (somewhat). I’ve been pretraining training. For what you ask.

I am running the NYC Virtual Marathon for Sandy Hook Promise. Those of you here a while know that I had made it to the in person marathon team for the 3rd time, but this year gave my spot up for a few reasons. I was at peace with that. Then Uvalde and I wanted back in. So I am now ”running” and raising money for Sandy Hook Promise as part of a virtual marathon team. Even though it will still be 26.2 miles, the pressure is off.

You can support my fundraising efforts here – https://fundraisers.hakuapp.com/christine-chaillet-1?fbclid=IwAR02hdj0avNFAMl3Ygl6bfu77vtYo03Sr0bSttsji_YwetlCUFZMB5BUMVc

Now before entering to do the virtual marathon, I had already signed up to do a Sprint Triathlon. This is one that I have never done, but have wanted to do. Sprint Triathlons have a special place in my heart as my very first race was a Sprint Triathlon – The NJ Iron Girl.

This was the race that started my crazy journey. That I started blogging to share my progress. That motivated me to run and made me realize that I actually like running. That got me where I am today because I cross trained and liked it which is the main reason I liked the idea of jumping back into a tri. Although I do not enjoy the swim as much as others. The swim will be in the bay at LBI. It also requires training. I always say with a tri…. The bike, you can coast. The run, you can walk, but the swim….. you will drown. Not really because they always have safety measures, but you get it.

So I have been pre training. I’ve been doing some biking. Still running sporadically, but really no swimming except some laps at the summer pool. This will all change next week…….

Because my training plan will officially start and I will be off the couch and out the door!

The Load is Heavy

This post is for my Hypopara friends……

For those of us who have been waiting and waiting and waiting….. and yet again waiting for them to resolve the Natpara issue, this last week was a kick in the gut.

For those of you who have never heard of Natapara, I will give you a very brief unscientific explanation. For those of us who live with Hyopara (Hyparathyroidism), it a nutshell it means our parathyroid glands do not work or work properly. Never heard of a parathyroid? Well that’s because it is one of those things that the body usually never has a problem with. Most (not all) of us came to the Hypopara world due to a problem with thyroid surgery where the parathyroid glands (there are 4) were damaged. At least that’s how I got here. Your parathyroid glands produce a hormone that is responsible for helping your body regulate calcium levels. Not a big deal you think, until you look at this chart.

Anywho……

For a brief moment, all of this was secondary because I got to be on Natpara, a daily injection of the synthetic parathyroid hormone. I was on it for a blip before it got recalled. My body worked the way it was supposed to work without a barrage of pills, self checks and symptoms. I also no longer worried about my kidneys since all levels than were in normal range. Then for reasons that really don’t make sense, this option was taken away. When I say doesn’t make sense it is because it is still available in others parts of the world, just not in the US. So back to daily routine.

Whatever……

As the saying though goes though….. Just because I carry it well does not mean the load is not heavy. It is heavy. Sometimes you get so used to carrying the heavy load that you forget it is there, but it is always there. You stop really speaking about it because you just do what you need to do and even those in your circle don’t see the struggles. Always lurking. Waiting to remind you that it is there. It is those moments that are frustrating. I also know that I am lucky because even with my Hypoparthyrioidism I am able to accomplish and do so much.

But for now, I know that many in the Hypopara community have no choice but to keep carrying our heavy load because we all got notified that Natpara is not coming back. It makes no sense to know that there is something out there that will take away the symptoms, help to protect kidneys because we were no longer taking high doses of calcitrol and calcium, where your face doesn’t start to tingle telling you that your calcium is dropping (that’s what mine does but everyone is different), your feet uncontrollable cramp up, or have muscle spasms in legs. Just sitting here waiting for the other shoe to drop as you deal with the life of hypopara……… because in the end

What choice do we have

especially when the only viable one was taken from us.

This Is Different

So after NYCM, I said that I didn’t want to run anymore marathons. I meant it. I meant it for several reasons. One, honestly, is that I was getting bored of running. I vividly remember going for a training run one day. I was running fine. I wasn’t tired. I was running/walking fine but I was bored. Now part of it is because I mostly train on my own, but I seriously just was tired of running. Not tired from running, but of running.

I don’t even know if I have run since the marathon which better change as I did sign up for the Fred Lebow half marathon in January.

I will also admit that I have been thinking about triathlons again. My very first race that I ever did before getting off the couch that got me to where I am now was a Sprint Triathlon. It was a big motivator. It also great at making me cross train because it wasn’t really cross training but training. I had one thought that kept me motivated to train especially the swim….

With the Run, you can walk

With the bike, you can coast

With the swim, you will drown….

So train.

Prepare

I am excited about this. This is truly going back to square one.

No coasting.

Train some more.

Most of all, I am feeling a sense of excitement as this will be all new again. I haven’t done a Triathlon since 2016 and never with Hypopara. I may be 100% wrong, but for some reason I think this will be less stress on my body. I also think that with transitions it might be easier to decide when and where to add calcium during training.

Now while this may really feel like it has come out of left field, it has not. I have been mulling over the thought of a triathlon for a while. It’s been in the back of my mind festering. And like all things that fester, eventually you have to do something.

So here I am. Signed up and trying to drag as many of my friends down the crazy train with me…….. This is something all good friends do!

Plugging Along

Plugging along. That’s what I do…….. It’s really all any of us can do. Sometimes it is hard to keep going. Sometimes it’s easier. What really doesn’t matter is how fast, how slow, or even how hard you push. What matters is that you keep going.

I remember when I ran my first big race, one of my kids asked me if I was going to win. I told him not a chance and that I was just training to be able to finish the race. One thing that so many people get stuck on is what is the point if you can’t be the best of the best. The thing is they are missing the point. You don’t have to be the best of the best. You just need to be the best version of yourself. No one can do you better at being you than you.

So often in life we let what others think of our accomplishments diminish them. We compare ourselves and when we do that often we do not compare ourselves favorably. We ask ourselves the wrong questions – Why can’t I be as fast as xyz? Why can’t I run as far as xyz? It’s bad enough when we do this with our running, I won’t even get into when we do it in other aspects of our lives ….. But…….. But……But…. What if instead of asking how we compare to xyz, we ask

Am I being the best version of myself?

Am I doing what makes me happy?

Am I doing all that I can?

These and only these answers are in our control. These answers we can realistically and honestly answer. These are questions that if we don’t like the answers, we can evaluate and change so that eventually we get an answer that we want. We have no control over so many things in our lives, but we do have control over the way we react, what we do and how we live our lives

Case in point –

I was texting with a friend about my blog today. She made the comment, “I think it’s because it’s relatable. It’s not some picture perfect mom or athlete”.

When I started this blog it was to share my progress as I trained for my first (and supposed to be only) Sprint Triathlon. I shared what I learned as I learned it. I’ve never pretended to be more than I am….. I middle aged mom trying to do the best that I can. Sometimes my best isn’t what I want it to be, but it is what it is.

So here I am a few months into 2021 trying to be the best version of myself. Trying to find the sweat spot of running with Hypopara while being realistic. I have not been happy with my running. Not because I wasn’t running fast enough but because of the way I felt after and during. My new approach after my break has been much better both mentally and physically. I can realistically say that this month I will hit the 100 mile mark for running/walking with most of those miles being running miles. Even better, I have done these miles in a way that is best for my body.

Remember that we can only do what we can do and sometimes the best thing we can give ourselves is the gift of time to re-access, re-evaluate, and most of all just keep plugging along because eventually you get where you want to go.

Lucky # 7

Tomorrow I will be stepping up the start line for my seventh marathon. Hopefully it will by the end of the day I can say that I have finished all 7. We all know that there isn’t much that is going to stop me from getting there. No matter what I wouldn’t trade it for anything.

With each marathon, I’ve learned something. Learned how to push myself. Learned that I am stronger than I realize. Learned that no matter what there is always a little more in the tank.

My first marathon, Philly, was a fluke. That year, I had trained and completed the Runner’s World Hat Trick (5k, 10k, and Half marathon all in two days). When it was over a friend nudged me to sign up for Philly the following month. One 20 mile training run later, I was in. I finished in 4:46:20. This is before I knew anything about running, so I do see humor in that I didn’t push for the 4:45 time..

Then over the next few years would run a marathon a year. For my second marathon, Marine Corps, I trained with a coach. I finished in 4:38:14. This is my current and more than likely my PR for marathon finish times. I should have PR’d my first New York as I was well trained for it, but went out way too fast not following the plan. This is a mistake I will not make tomorrow.

Two weeks after that first New York Marathon was my thyroid surgery leaving me not just without my thyroid, but also working parathyroid glands. I was determined not to let being Hypopara take away my running and the Chicago Marathon was supposed to be my one hypopara marathon and done. A way to snub my nose at it. I learned a lot in Chicago. I learned that for me the set run/walk plan doesn’t work for me. I learned that my body does NOT like running in the heat as it was very hot that year. Most of all, I learned that I can just keep going. All things being considered, an hour slower is pretty awesome.

But then, then it became about something more. Last year when I got picked to be part of the Sandy Hook Promise Team, I could not have been any more honored. I still remember sitting in a Toys R Us parking lot talking on the phone with a friend in 2013, a year after the shooting in Sandy Hook. She could not understand my pain over the horrific shooting when I was not personally involved, but I was involved. I’m a mother, that year my youngest son was also in Kindergarten. I took it very personally because this tragedy as we’ve learned over the years can happen anywhere. She couldn’t understand my pain and told me that I needed to do something as I wasn’t “getting over it.” I didn’t want to get over it, I wanted to do something. So here we are.

Although, even before last year I was involved. I did what I could, but I wanted to do more. This is my more. I can and do share the message of inclusion, stopping gun violence, and making a change. My personal friends know this to be true. I remember one year on Wear Orange for Gun Safety another friend that I ran into at a baseball game while I was wearing my orange shirt saying to me, “Isn’t every day Wear Orange day for you?” She meant this is the nicest way possible because she knows I am always spreading the message.

So here I am getting ready to run my second marathon as part of Team Sandy Hook Promise. At a lunch today it was said, “You weren’t just a number coming into Sandy Hook Promise. You were selected. Your stories and passion are what got you here……. We picked you from the heart.” So I run knowing that this isn’t about me. This is my way to not just share the Sandy Hook Promise message which I do, but about helping to support an organization that is doing so much good. Last year was my slowest marathon to date at 6:10:13; but my most memorable and favorite one.

I am honored. It is more than words. It is a truthful statement.

My goal. My only goal tomorrow is to wear my Sandy Hook Promise shirt with pride. Ok, I may also have a goal of 5:45 time but that is secondary. I know it won’t be easy, but nothing in life worthwhile is a walk in the park. I will get that walk in the park crossing the finish line. I’ve learned a lot about running since my first marathon. I’ve learned a lot about what my body can do even after becoming Hypopara. I will do what it takes knowing that I will have not just the support of family and friends, but the Sandy Hook Promise community.

This picture was taken last year during the marathon. I have taken MANY race day photos. I have NEVER taken one like this with the sun shining down on me. I look at this as a sign that I was not alone. So as I run these 26 miles, I know that the saying 26 miles for 26 angels is more than a catch phrase. It is real.

It’s go time.