Tag Archive | Hypoparathyroidism

Swimming with No Life Guard

The transition off of Natpara is about what I had expected, but not nearly as easy as I had hoped.   A lot of it is just the old familiar crap but with an overwhelming sense of fear.   Now some may say this fear is misplaced and it’s no big deal, but they should try living in the shoes of someone with Hypoparathyroidism.    Fear may just be what keeps so many of us with stable levels because we are so aware to any changes.   A tingle hear, numbness there, pain here, racing heart there.     These things make us pay attention.   Adjust.   Wonder and keep going.

You see it’s all a guessing game.   Unless you are someone who has easy access to labs which is no one, you spend your day self monitoring. While there are obviously many symptoms that are different with high and low calcium levels, it is not always easy to tell. There are many overlapping symptoms too.   That just ads to the challenge and fun of the game of managing it all especially during transition.    Do I need to ad more calcium?   Did I ad too much calcium?    Is that just a normal numbness because I was sitting too long?    Did I have brain fog just because I’m getting older.    It’s all so fun and yet not fun at all.

I will say that amongst my Hypopara groups, one of the biggest stressers right now is the fear of the unknown and feeling like you are on your own.   Even those of us with very knowledgable doctors feel this way.  

I’ll be honest I had already been thinking about going back to my local Endo who I currently see for my thyroid levels but was thinking of having her handle the Hypopara stuff too.   She is smart and while not the expert that my specialized doctor is, she is accessible in a way that the other one is not.   Plus I’ve felt for a while now that if there were any issues, she is local and I would be able to easily get to her.  The flip side is my expert doctor specializes in Hypopara issues, understands it and all the quirks. Plus she is super nice.   Her level of understanding of this disorder can not be disputed. This is why I’ve been going back and forth on what to do and never made any changes because things were stable and you never rock a stable boat.

Well the boat is rocking now.    Here’s the thing…. Everyone wants the best. It’s normal, but sometimes the best isn’t always what you think it is or what you need. Without a doubt my expert doctor is extremely well versed in all Hypopara issues. She understands it in a way that most Endos don’t. She is caring. She is knowledgable and she gets it. On the flip side, her office and her are not always readily accessible.   Labs take time. And while I do have her cell phone number in case of emergency; if there is an emergency she not here.

I currently feel like I am swimming in shark infested water without a lifeguard. I know the sharks are out there, but I don’t know if they are going to strike and if they do; I’m not sure if there is anyone who will be there to blow the whistle to help me.

I already have an appointment scheduled next month with the local Endo for thyroid stuff who I have messaged about coming off Natpara, but rightly so she feels that other doctor should continue to handle the transition. I was kind of hoping that she would take the co-lead but I’m thinking due to various valid reasons that doesn’t work so well. In a perfect world she could order the labs which she can get quickly and confer with expert. It is not a perfect world.

So I’m still treading water. I feel the effects of the low calcium. I’m taking the meds. I’m feeling the hypopara symptoms rear their ugly head. I’m plugging away. I’m being cautious. I’m plotting. I’m planning. Believe it or not I’m still training….. Although carefully, cautiously, smartly and not like I was prior to coming off the meds. I will get to the finish line of NY, but to do that I need to get this calcium stuff under control.

So with that I will be stalking the lab portal to see results of this mornings blood work. I will make adjustments. I will just keep going. That’s the only choice any of us have.

Be Positive

I’m a pretty positive person. I usually take a wait and see approach to life. Usually don’t focus on the negative. That being said, life is messy and complicated and as much as we want to you can’t always post about rainbows and puppy dogs.

I see people on social media who post nothing but positive things. Even going so far as to apologize if something is miscontrud as negative. I am not judging them as that is their choice, but to me it’s not a real choice as life is not all good or all bad. Pretending otherwise is just that pretending.

Sometimes people are crappy. Sometimes XYZ is Crappy. Sometimes life is crappy. Sometimes you don’t want to put on a happy face and sometimes your just not feeling it. That’s life unless your Mr Rogers. It’s ok to get mad. It’s ok to express frustration, disappointment, and even be what might be considered negative. That’s life as long as you don’t just focus on the negative, that’s ok. It’s a balance.

Life has it’s ups. Life has it’s downs. In order to appreciate the ups, you must acknowledge the downs. Acknowledging the downs does not mean that suddenly you are going to be negative Nelly. It just means you are acknowledging that life is complicated and we don’t live Stepford Lives. I can appreciate the good, while acknowledging the suck.

So right now, I still feel like I’m in a holding pattern. Counting the days till the magic juice runs dry. That is 4. Part of me doesn’t like the holding pattern I’m in. Part of me is grateful for it as it has given me time to prepare….. talk to my doctor, order my meds, plan. But now I’ve done all these things, so now it’s just enjoy these 4 days and worry about day 5.

I’m also angry because I accepted the new normal of having to inject myself every day and take just a few calcium supplements a day. I’m angry because I thought this was going to last more than the 5 months and I should have started sooner. I’m angry because of the lack of information on how long this will take and when the medicine may be available again. I’m angry because I felt like I had my life back.

I’m also feeling a little defeated. Finally start getting things together and now this. And again, I know it could be worse and I’ve been lucky Some people might also think I’m being dramatic. Those people would be wrong and really don’t know the truth of this disorder, my life, or what I do to make things look easy. That being said, you would never say to a diabetic, “Well you’ve only a little diabetics.” Yes, I’m lucky in my symptoms. I’m lucky that I’ve been able to do so much. I’m lucky that my schedule will allow be self care as needed, but I still have Hypopara with all that comes with that.

I’m also nervous and these next 4 days I will probably see more Hypopara stories to make me slightly more. As I said before coming off the Natpara is no joke. In my Hypopara support group, someone tracked that there are already 14 who have had to go to ER with 7 being admitted. Again, don’t know what will happen, but it is a little nerve racking. I, honestly, don’t expect that to happen to me because I’ve never had to in the past. I’m hoping for a smooth transition, but it’s always in the back of your mind. If there is one thing Hypopara people spend a lot of time worrying about is their calcium levels, symptoms, and how to handle it all.

Here’s the crux of it too…….. I’ve got about 7 more weeks till the NYC Marathon. Training for a marathon is no joke under any circumstances. I’ve trained before without Natpara, but I use the word train loosely. I’ve trained prior to being Hypopara. I will admit that there comes a point in every training cycle where it kind of sucks, but you know you’ve got to do it. I can do it again. That being said, I’m going to be doing the dance of adjusting my meds while finishing my training. And did I ever mention that sweat and exercise effect your calcium levels. I’m sure I mentioned it. Luckily, I am usually in tune to my symptoms, have a doctor I can text if symptomatic, and am pretty good about keeping my levels. All while working and taking care of my family. Hmmm.

Lastly, I’ve still got $800 to raise for Sandy Hook Promise in these next few weeks while doing everything else.

Easy Peasy Lemon Squeezy.

So while I’m being super Negative Nelly that is also not the true story. Yes, all of these feelings, worries, thoughts are valid but there is another side to the coin. I know that I am lucky. I know that it will work out. I’m optimistic that things will go smoothly. That levels will remain stable and I will just keep on keeping on.

You can recognize the negative while embracing the positive. I always say….. Hope for the Best. Prepare for the worst. Most of all accept it all.

I’m Not Unpacking

You already know the whole Natpara thing has thrown me for a loop. It’s to be expected, but I’ve got literally a week of it left so I might as well make the best of it. It’s hard though when you see posts of people in your hypopara support groups already suffering with the effects of coming off of it and some already in the ER. It’s no joke.

What I keep thinking of though is that prior to Natpara I was lucky enough not to have visited an ER. So chances are pretty good that I won’t now either. At least that’s what I keep telling myself because you just never know because now it’s not just the hypopara but body adjusting to not having Natpara. I’m hopefully optimistic especially because I am also lucky enough to have a doctor not just well versed in Hypopara but also in Natpara. I trust her judgement and the instructions she gives to make this as smooth as possible. It will be a balancing act. Not too low. Not too high which is just as bad. We are looking for just right. Fingers crossed.

So yeah, I admit that I’m nervous. I think that I might be a fool if I wasn’t. But since the medicine is no longer available, I’ve got no choice expect to face it head on with as positive an outlook as I can.

Now Lastly I will admit that I’ve also been thinking about how NYC Marathon is in 8 weeks. Training has been going good in my opinion. I’ve been for the most part following my plan. I’ve been getting out the door. Doing what needs to be done to be able to cover the distance. I have not been concerned with paces as that has never been part of the goal. That being said paces have been better than I have expected. Part of me was starting to think that I might actually have a 5:15-5:30 marathon in me.

Well that’s out the door.

I have been experiencing a little tiny pity party these last few day. Not getting in one run since the news came out. Part of me is like…. why bother? A What will it matter pity party.

So it’s time to dust off the stink of the pity party. The Party is over and I refuse to unpack here, because I don’t know what is coming anyway. Besides I was never doing this marathon for me, but for Sandy Hook Promise anyway. So be what may, I will do what I can. At any pace that I can. Smart and safe as I can (don’t worry Mom). I will do this any way that I can, but I will do it.

So with that being said…. It’s time to run again.

I

Behind the Curtain

We all like to put our best foot forward. We all like to have a view of ourselves we present to the outside world. Sometimes the presentation is real and sometimes it’s not. I admit that if you randomly stop by my house, often you will find it in chaos, but if I know you are coming it will have the presentation of being in order. This is why when some people scroll through Facebook, they may get depressed because everyone looks like they have a perfect life, but if you look behind the curtain….

That perfect family vacation picture a friend posted…. You might not see all the yelling it took to get everyone to stand still and smile.

That perfect dinner a friend posted….. You might not see the night that dinner was thrown out and they had to order out

That perfect marriage your friend always boasts about….. Well who knows.

Perfect lives are never perfect.

A Hypopara friend said this about me in our support group the other day…

I have to say this as someone who has followed your journey, I am so impressed by you! You recently started Natpara and was doing better on your runs and now things are changing again (hopefully temporarily,) the way you are handling it all (don’t know if you feel the same on the inside,) but on the outside it has been source of strength for me. *Hugs* my friend!

Like everyone in our small Hypopara community on Natpara, this came out of left field. We were all rocked. The morning before the news was released I literally uttered the words about Natpara, “I can’t go back.”

Well now I have no choice. Maybe it’s temporary. Maybe it’s not, but either way; It is what it is. What it is is sucky. For some it may lead to hospital stays, Calcuim crashes, and a host of things. I admit that I am angry. I am frustrated by lack of info. I am scared. Survey any Hypopara patient and I would bet that our number one fear is Calcuim crash. Second is probably Kidney damage.

I further admit that I am lucky. Even before starting Natpara I was able to do more than so many could. Don’t get me wrong it took it’s toll and I often told my family that I made it look easy to them; but it was pretty damn hard to get through the day. I fear going back to feeling that way. I fear the side effects of low calcium, hurting my kidneys, and not feeling like me again.

But these are the breaks. These are the cards being dealt me today (although I do have one week of Natpara). I learned a long, long, long time ago that in life there is much out of our control. Yes, you can get mad. You can get frustrated. You can be sad. What you can’t do is not deal with the reality that is before you. When you don’t that is when you will have problems.

So this next week, I will continue to touch base with my doctor. I will stock up on my meds. I will figure out how and when to take 2,500 mg of Calcuim and 100 mg Calcitrol during the day because your body can only absorb 500 mg at a time. Plus I can’t take it near my thyroid meds which I was already having issues with. I will plan. I will plot. I will fill up my pill box and I will adjust.

Meanwhile I still am planning to run a marathon. That will be for tomorrow’s post…….

Curve Ball

For those who have been here a while, you know my struggles with my Hypoparathyroidism. You know how going on my daily injection of Natpara has been a life saver. It was all coming together. I even made it back to the trails.

Then life throws a fast, hard, curve ball.

Natpara is being recalled.

Out of nowhere. My Natpara community is collectively freaking out. Righthly so. Apparently according to the press release “When the septum is repeatedly punctured, it is possible that small rubber fragments may detach into the cartridge.” Sounds like it might be a problem but what could a little rubber hurt.

Danger Will Robertson. Danger.

The bigger danger is now that this medicine which has given me me back will no longer be available. Then the bigger danger is when you come off this medicine, you have to substantially increase your pre Natpara dosage of Calcitrol and Calcium. I hope my kidneys don’t mind. I hope my levels stable quickly.

Good Times

Good Times

As I said to my husband, I guess I’m back to my daily naps, fatigue, leg cramps, muscle spasms and all the other fun side effects that Natpara helped with. And you know you are a marathon runner, when you also think, “Well crap, there goes my marathon finish time. ” And no I wasn’t training for a PR, but I was hoping for a decent time while enjoying the day. I hope I can continue to train as I have been because it’s been pretty good.

So one step forward. Two Steps back. Coming off this (or any) medicine is no joke. I’ve got to follow doctors orders. I’ve got to be smart about it. Go back to being a world class guesser as the only way to know if your calcium is low is through blood work. They really need to come up with a finger prick like a diabetic.

So while training has been going good and I will continue to do what I need to do, it might not all be as pretty as I hope it will be. I’m hoping that my friends will still run the trails with me because after this setback I think I need them more than before.

Life is not garaunteed and it is filled with ups and downs. My roller coaster ride is just on a bit of a rickety part of the track and maybe the downhill won’t be as bad as I think. Either way, I’ve got my seatbelt on and I’m ready for the ride. It’s the only way to live… Hands in the air and just enjoying the ride.

So I need to process this. I need to deal with this. I need to accept this. I need to call pharmacy and fill some scripts. For all my…. I can’t go back talk. I guess I’m going back.

Great Expectations

We all have them. We all have the thought of how things should be. The what if? The maybe it will happen this way. Maybe it should happen this way. The if then thought process.

What happens when things don’t live up to these expectations which more often than not is true. Sometimes these expectations are not based in reality. Sometimes we don’t like the reality. Sometimes we ignore the reality to our own peril. Sometimes we think our expectations weren’t so lofty, but in reflection we realize that we didn’t prepare for the reality of life and how it doesn’t always measure up to our great expectations. That’s ok too because while not what we thought it would be, sometimes reality isn’t as bad as we think as long as we can let go of the expectations

I’ll be honest. I’ve been on my Natpara for a few months now. It has been amazing the changes. On face value, I could not ask for more but… I had great expecations. I thought that taking it would be like a reset to prior to my surgery and I could just take one shot a day and go about my life.

Reality…..The one shot a day has given me so much back including being more friendly on my kidneys. No more muscle cramps, muscle spasms, dead tired beyond tired, and all the other fun side effects of being Hypopara. Reality is pretty darn good. My expecations though were overblown. I thought that I would no longer need to keep a pill box and reminder to take my calcium and other supplements. Yes, I’m taking much less calcium now but I thought I’d be taking none.

And while my running has improved exponentially, I am still out of shape. I still need to walk. I am still not where I was or thought I would be. I still need a reset of expectations. Expectations are not reality but a dream. They are goals. They are a driving force, but when life doesn’t live up to them you have two choices. You can choose to be disappointed or you can choose to look around, accept and appreciate the reality of where you are on a given point in your life.

Sometimes with running, we get so focused on the hitting a certain time, training a certain way, or realizing that maybe we can get to the finish line but we must adjust our expectations to do so. It’s easier said than done, but reality is what it is. Training will be what it will be and each person must do what is right for them and their body. Sometimes it’s all about what we are willing to accept. I have learned to accept a 6 hour marathon time when once I had dreams of a 4:15. If I had not faced the reality of where my body was last year, I would have been disappointed with that 6 plus our time but to date it was my favorite marathon.

Truthfully in the recess of my mind, I still dream of the 4:30/4:15 marathon. Reality is that will never happen for various reasons. Although I never say never. Truthfully, I believe that this year I might be able to make a 5:30 time and 5:00 if I’m lucky. Is it where I would want to be? Nope. Is it honestly where I will most likely be? Probably. If I did not adjust my expectations/goals, I would not be able to enjoy the process and the eventual finish. I can do this. I will get there, but only if I am honest with where I am right now.

Another year. Another race. Maybe I can adjust those great expecations, but for now…. I would rather do what I can than not do anything at all. That is the point.

Do what you can.

Accept where you are.

Enjoy the journey and smile for the finish.

Fire

I’m preparing to start training for NYC Marathon. I’m dotting my i’s and crossing my t’s. Picking my training plan. Kind of doing some pre training. Thinking about goals. All the things that I’m supposed to be doing. With all that being said, I am noticing one thing missing this go around.

Fire.

Don’t get me wrong….. I’m excited to be getting ready to train and run NYC Marathon for Sandy Hook Promise. I’ve got the fire to get to both start and finish line. Let me explain….

When I first started this journey years ago, I had fire and determination. I pushed myself to the limit. I trained. I ran far. I ran fast. I pushed myself to and past limits that I didn’t know I could push through. I got up early. I ran late at night. I had serious goals. Some I reached. Some I didn’t. But I always pushed through.

Now….

I like to sleep in….. I’m comfy on the couch at night. I’m missing that fire to push the limits. Don’t get me wrong, I’ve been running (not as much as I thought for pretraining). I’ve been running some local 5K and being pretty consistent in my times. Faster than I thought I’d be. I’ve run 3 5K’s this year. All of them, I said I was just going to run and see what happened. All of them were hard and I pushed myself. All of them I finished around 31 minutes.

Now that being said, I think the reason my fire is a little damp right now is I’m not sure what is going to happen as I start adding the miles. Am I going to fall apart. Is my body which thanks to my Natpara has been feeling good going to give me issues. I’m worried. I like the way I’ve been feeling. You know… feeling like me. I think that I may be afraid to rock the boat. I keep saying I don’t want to go back to how I felt both mentally and physically before I started my Natpara. I love running. I love racing. I love being able to cross any finish line but a marathon finish line is special especially when running for a cause you believe in. That being said as much as I love that…… I love waking up not feeling like grandma. I love not needing a nap in the afternoon. I love not having muscle cramps, spasms and all of those other funky sypmptoms of being hypopara.

So I guess what I will say is…… I have the fire, but I’m afraid to let it burn too brightly right now. I’m going to tend to it. I’m going to care for it, but I’m not going to let it burn out because while I love running; I love being able to live my life like I did before my surgery.

If there is one thing about being hypopara is that it does make you more cautious. Where I used to throw caution to the wind and let the chips fall where they may because I knew I could easily pick up the pieces; I don’t do that now. When they fall, they fall too hard and it takes too long to pick them up.

So I will go into my training following a very low key plan. I will put in the miles. I will do what I need to do and as the 3 miles turns 5 and so forth and so forth; I will reassess. I will adjust. What I will not do is stop….

So I guess I do have more fire than I thought:)

One Month In

It’s been a few weeks since I’ve been here. I’ve thought about it. I’ve had ideas of what I wanted to say, but never got further than that. Here’s the scoop.

I’ve been on Natpara for 4 weeks now. I’m loving the way I feel on the new medication and I’ve even gotten used to giving myself a shot every morning. It’s a noticeable change. I am happy with not feeling like grandma in the morning. No more muscle spasms either. As said before, my head is much clearer and I do feel more like myself. More energy and other symptoms disappearing too. I will say that I’ve also noticed that my running has improved too in the sense that I’m actually able to run:)

I ran a local 5K in May, United for a Cause. I finished in 30:41 which is a 9:54 pace. This was my first race on Natpara. I had done a St Barts 5K in early March where I finished in 31:18 with a pace of 10:04. While it may appear that my races were similar, it really couldn’t be further from the truth. The first 5K, I had to prepare by making sure that I took my meds and calcium prior to the event. Plus I had calcium in my water. I also rested a few days before event and pushed myself to the limit for this event. On top of that, the two courses could not have been more different. The St Barts event was a fairly flat course with really only one hill at the mid point. The United for a Cause was a constant up and down of hills. Also the St Barts event is first thing in morning while United for a Cause is in evening. Comparing the two actual events is like comparing and apple and orange.

Now with that being said, there were also very notable differences in recovery. Where St Barts left me exhausted and needing downtime, there was no such recovery needed for United for a Cause other than stretching. I felt fine….. no twitching muscles, no need of extra calcium, no need of extra I felt like me.

It’s funny though how in life acceptance is a funny things. I don’t mean funny as full belly laugh, but funny in that you go back-and-forth with acceptance. I really thought that I had reached a stage of acceptance for being hypopara. I was wrong. I think I was just holding on to that everything would disappear with the Natpara and poof everything that comes with hypopara would be gone – no more monitoring for sypmtoms, balancing pills, and anxiety of what comes next.

All that being said, I did have unrealistic expectations for Natpara. I really thought of it as a magic pill or in this case magic shot where I would no longer have any symptoms or even think about having Hypopara. It would all just disappear. Now don’t get me wrong, it has been life changing I have also been able to stop taking Calcitroil and have lowered my calcium supplement intake while having great calcium levels. That being said, I still need to juggle supplements and symptoms.

I’m back to relearning what my body needs with my calcium intake. I pretty much knew what I needed when before starting and now I’m kind of back to square one. I’ve got it pretty down pat without heavy exercise, but as the miles increase I will need to add some more calcium to my routine especially during the hot summer months. It will all be worth it though and already is. I keep saying that I can’t go back and am so thankful to be able to feel like myself again.

So once again I’m back to the acceptance stage, but it is easier to accept when your feeling so much better.

Coming Out of the Fog

When you have an invisible illness to the outside world everything looks good. You look normal. You look healthy. You look like you’re doing ok. What they don’t see is the internal struggle. The internal dialogue to hold it all together. They don’t hear your internal pep talks to keep going. Where you tell yourself you can make it through the task at hand. That you can make it and keep going. That you promise you can take that nap/stretch/ect once everyone gets where they need to go, dinner is cooked, or any of the daily activities of life.

I’ve said it before and I really think it is true for me. I think one of the reasons that I am able to push through when literally all my body wants to do is collapse is because this is what marathon training does. It trains you push your body to the limits. Push your body further than you think it can go. That even when you feel the tank is empty there is just a little bit more to get you to the finish line. So I’ve fallen back on this training not for training but day to day life. Some days it is easier than others.

That being said, I’m tired of living like this which is one of the reasons I wanted to start Natpara. That and the fact that I want to protect my kidneys and the other side effects.

I was nervous about starting my daily injections of Natpara. It was overwhelming. There was a lot to think about with the pros and cons of starting this medication. I was also nervous about the actual process of mixing medication and giving myself an injection. There is a lot to this, but both my doctor and I felt the benefits outweighed the risks.

So I started.

The process: The medication once approved and all cost factors are taken care of is mailed by a specialty pharmacy. The fact that this medication costs $10,000 a month makes for a lot of hoops to get to this step. It is shipped in dry ice and must be refrigerated upon arrival. Once medication is on hand, an appointment is made with a Natpara nurse to walk you through mixing medication, using the injection pen, and finally how/where to do injections. I was nervous. I’m not good with this type of stuff. I had a friend who to my luck is actually a trained pharmacist come to hold my hand so to speak and be my backup eyes and ears. She even came next day for my first “solo” injection. It helped. While there is a lot to it, they do make it very user friendly but there is still learning curve.

I have been on Natpara now for only 4 days. 4 doses. 4 days of being out of the fog. It is amazing how quickly the Natpara effected me. A friend asked me how I felt and here it is….

I feel like myself. I feel like myself prior to my surgery. It was like coming out of a fog. For 2 years I have literally needed not as a luxury but needed, a daily nap to function at a much lower level than I had been used to. I felt a clearing in my head as well as the lower calcium can leave you with what in the medical profession they refer to brain fog, but in your day to day life means you use the wrong words, scatter brained, have trouble remember names/address of people and places that you should know. I’ve also felt like I was living in a different body. The body of a much older person who Aches, pains, tires easily.

And literally in less than these 4 days, I feel like me again. The other day I was making dinner at the hour that can be very difficult for me where I’m just pushing through till it’s socially acceptable to put PJ’s. Actually I didn’t always wait for that socially acceptable time either. Anyway, I was making dinner and realized not only was I making it but I was literally dancing around the kitchen while doing so.

And while staring this medicine does not mean that I no longer have to take supplements, I will take less of them and no longer take some prescription meds. There with anything will be some bumps along the way, but I will deal with them when the time arises. For now, I’m going to enjoy being me:)

New Beginnings

Life is filled with one new beginning after another. The road to life has many turns, backtracking, ups & downs and hopefully always moving forwards. There are many stops along the way, but the trick is not to idle too long or you may get stuck in one place.

Each journey along the road is a start of something new filled challenges, hopes, dreams and sometimes set backs. When we come to the beginning of a new road, we can either face the challenge, avoid it, change direction or drive into it. Sometimes starting a new journey is familiar. Some times it can be scary. Often a journey begins with hope.

I am about to embark on a few new journeys. Two familiar, yet not the same. One totally new and even with planning, research, and knowledge still a little frightening, exciting, and unknown.

The first journey is the beginning of my NYC Marathon training for Sandy Hook Promise. This is a journey that I faced before, yet it will still be a different road with new challenges, thrills, and hopes. This journey is scary not just for the training of the marathon but the fundraising aspect of it.

For the marathon running, I have been there done this as the saying goes. That being said, I have not done the 2019 marathon whose weather, training, and everything in between still has not been written. I am embarking on a 28 week training plan that has already started. The plan I have chosen is a basic marathon training plan with a slow build up, but will get me to the finish line. For now, I am not setting any training goals other than to finish better than last years 6 plus hour marathon. I also, for now, am not in a place to think about more than just a basic marathon training plan nor do I want to do more than be prepared.

For the marathon fundraising, I have been there done that once before; but again that was last year. This year my goal once again is $3,000 which is a scary goal that I am committed to hitting. For those who have never run as a charity runner, when you make this commitment it is not I will try. It is do and if you don’t hit your mark, you have signed a contract that you will personally make the payment. This is why you must be committed to the cause you are fundraising to which I am. I have been a believer in Sandy Hook Promise since they first organized and I signed up with them. That being said, it is a scary prospect as a mother of 3 children, one finishing his first year of college, one who is currently looking at colleges, to make a commitment like this. So far I’ve raised $50…. Gulp…… That being said, I have just started and this fundraiser is a marathon in itself.

Feel free to make a donation to this worthy cause though at…..https://www.crowdrise.com/o/en/campaign/sandy-hook-promise-foundation-nyc-2019/christinechaillet

Lastly I will also be starting a new adventure in my treatment of Hypoparathyroidism. The medication, Natpara, awaits in proper temperature in my refrigerator for the Natpara Nurse to come Monday to teach me how to prepare the mediation and give myself the daily injections. This is an exciting road that I’m hoping does not have too many bumps as I work out proper dosage and also adjust calcium supplements and Calcitrol dosage. I’m not expecting this to go without a hitch but hoping that it is easy transition. Once I start this treatment and get levels/dosage where they should be with any luck much of the issues that come from not producing the PTH hormone will be gone and my body can go back to factory settings.

Fingers crossed!

New beginnings are a part of life and I’m happy to be taking these paths right now.