Tag Archive | Hypoparathyroidism

Getting It Done

The thing about having an “invisible” illness, a complicated illness, a rare illness is that your start to wonder if it’s all in your head.   It’s easy to do too, because most of the time you keep it to yourself.  Then if you do say something many don’t understand and some will think you are exaggerating.   So after a while you just suck it up and go about your day.   The more you do that, the more you start to wonder if it really is all in your head.  Then you begin to question it all.

Are my legs so sore in  morning because I’m getting older?

Can I not run this fast because I’m just not training enough?

Am I taking it too easy because I forgot how to push myself?

Suck it up Buttercup!

Then you remember…

You do have it.   It is real.   It’s not in your head.   It sucks, but it could be much worse.   Most importantly, your doing the best that you can.

Now the best that I can isn’t what it used to be.   I also know there are many people with this disorder who would love to do what I can do on my worst day. I also  know that I am lucky.   Once when I shared something about Hypoparathyroidism, someone commented to me to my face, “Don’t take this wrong, but everyone has something.”

I was too shocked to do anything but agree with her.   And I do agree with her.   I know that everyone has their own battles.   I will be the first to admit that.   I also know that even the battle that I face could be so much worse.  That being said, just because I share my battles does not mean that I think someone else’s battles are less important.   As the Care Bears used to say, “sharing is caring.”   We all have our stuff and it is good to be able to openly share our battles because it does make the load a little lighter and easier to carry.

These are things that went through my mind on my training run yesterday.   It was the longest run I have done this training cycle.  I notice that it takes my body now a good 3 miles before it gets into the groove of running.   Then I was having some doubts about my running.   Comparing it to the last time that I was training for NY which is crazy because not only was that pre hypoparthyroidism, but I had an amazing running coach who had me hopping.   I never compare myself to other runners, but I do compare myself to where I was which is something that I must stop doing.   I will say that I think I’m in a better place now than when I was training for Chicago.   I do think actually training with the walk/run and following it this time will make for a better race.

Yesterday’s run was good and bad.   That is why we train.   I could start to recognize a pattern.   Start to tweak it.  I also slowed down to wear realistically I should be for my long runs right now.   8 miles with an average pace was 12:23.   I never went into the red zone for my heart rate and kept my heart rate in zone 4 according to my Garmin.   I have recently been trying to pay closer attention to my heart rate as apposed to pace.  I’m also trying to figure out paces for running and walking.   It’s a work in progress, but I am getting it done.  Sticking to the loose plan that I am following.  As the training runs get longer and I approach the NYCM, I want to be able to project approximate target times for distance.   More so that I don’t go out too fast like I did last time.   I don’t anticipate running the paces  I did last time.  If I go out too fast I might not bounce back as I did last time.

 

2016 NYCM

You can clearly see the wall at mile 20.

No Joke.

I think running for Sandy Hook Promise does take the pressure off some and add its elsewhere.   It takes it off because I know that I am not running this for me.  I was serious when I said that I wasn’t planning on any marathons this year.   I am training to be able to run this race as a proud member of the Sandy Hook Promise Team.   Like anyone on a team, your know that it’s not about you.  I don’t want to waste this opportunity given to me.    As I often post with my training runs #26for26.  I am so blessed to be given this opportunity to run for something that I believe in and don’t want to squander this opportunity.

 

Sandy Hook Promise Fundraiser

 

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Giving it all I’ve Got

I’ve started training for NYC Marathon.   I had been thinking that I was pretraining, but then I actually looked and yup, I’m training.    I am following the Jeff Galloway “To Finish”  Program and it’s actually a 26 week program.   In looking at the calendar if I do my math correctly, I believe that puts me at week 3 of training.  Oops, time to play catch up:)

Training for a marathon is a long process, yet at the same time it goes quickly.

I’m going to be very upfront in how things are going and I’m sure it won’t all be rainbows and sunshine.   That being said, I am so lucky to be given this opportunity and remind myself that I am not doing this for me, but for Sandy Hook Promise.

Anyhoo…. Even with the “To Finish” program, I know that I will be giving it all I’ve got.

Giving it all i got

I went out for a run.   I was just shy of 5 miles at 4.7, but it happens.   I used the ratio of 3 minutes run to 45 seconds walk.    It seemed like a good ratio, but I’m still feeling it out.   I will say that I liked it.   I tried to keep my run part around 11 and walk not at a Sunday stroll nor a power walk, but somewhere in between.   It seemed to be a good balance as my overall pace was 11:17.

As I was running though, I was trying to connect my body to where my mind is which is harder than you think.   In my mind, I still am so much faster.   My body disagrees.  Besides that  I also have to reconcile that with the run/walk method there will be times that I’m out for my run where I’m going to be walking and people will see.    That’s a mental thing, but one that I will deal with too.

Here is the thing…..   I can only do what I can do.   Yes, running is very much a mental sport, but in the end you can only do what your body will allow.    I’ve also got to use this training time to know when to add more calcium and magnesium.    When I was training for Chicago, I had a doctor who kept my calcium levels  in the mid normal range which may have made things better for running, but overall was not good for my health as it left too much calcium in urine (not good for kidneys).    So I’ve learned more this last year and I’ve also got my specialist that is keeping my calcium at just below normal.    That is good overall, but I do need to adjust more now on running days.   It will also be a training exercise to know how much is enough and how much is too much.

Yesterday was not enough.   It didn’t help that the night before I fell asleep and forgot to take my calcium and magnesium.   I also should have added more calez during run and realized that a Epsom salt bath afterwards might not have been as indulgent as I thought it would have been.

This is what happens when your don’t hit the right balance.   Your muscles dance which isn’t as fun as it sounds….

It’s a work in progress, but whose life isn’t.

We live.   We learn.   We move forward.

 

All In A Day!

So today was many things….

Wear Orange Day

It was Wear Orange Day which has become the defining color for gun violence prevention movement.    Hadiya Pendleton died  way too young and way too violently  on January 29, 2013.  This was just one week after performing at President Obama’s Inauguration and after finishing her exams at her High School Prep School.

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A week after her tragic death, her friends and community came together in her favorite color orange to stand against gun violence.   Every day on average 96 people die from gun violence and 6 of them are under the age of 18.   This is far too many.   To be honest, one is one to many.

So we wear orange.   We march.   We raise awareness and we try to do better.

We can do better.

We will do better.

I wore orange today all day, but especially when I went for my first pre marathon training walk/run of 3 miles today.   I will officially begin marathon training in July, but I need to build back up to a starting point for training.   I would like to get to 15 miles a week before training begins.

One thing that I thought about on my run tonight is how different this marathon training cycle will be.   It will be different for many reasons, but one is my attitude.   I’m training not for time, but to finish, enjoy the experience, and represent the Sandy Hook Promise organization proudly.   So as well as fundraising, I also need to be able to run 26.2 miles.    A marathon is still a marathon even if you aren’t chasing a 4:30 finish time.

Hypopara Awareness Day

Hypoparday

For those new or needing a reminder, I was diagnosed with hypoparthyroidism after my parathyroid glands were damaged when my thyroid was removed 2 weeks after running the NYCM in 2016.

Many people ask, “What does this mean?”

This is a complicated issue as this is a very rare disease and each person manifests it differently.

Here is the official information: The condition affects the body’s production of parathyroid, a hormone that regulates the body’s levels of calcium and phosphorus, the condition has to be monitored and treated with supplements and medication. One of the main issues is very low calcium levels, affecting the strength and development of bones, teeth and nails as well as affecting the nervous system.

What does this mean…. For me, it means that my body feels like it aged 20 years after my surgery. My body aches and is sore in ways it never was even when training for my 50K! It means some days needing to lay down in the afternoon for a solid nap not because I’m drowsy but because I feel like I’ve just finished running a marathon and can’t move another step. It means constantly assesses “how do I feel” because if my calcium gets too low my face will twitch, my fingers with get tingly, and if gets too low it could be a problem. I’ve been lucky in that being a marathon runner prior to surgery, I was very tuned into how my body felt so I know when adjustments need to be made because the only way to find out your calcium level is through blood tests at your doctors.
This is all doable though with medication, supplements and just being smart. That being said, these things take a toll on the mind and body. I also need to monitor my kidney health as the medication to keep my levels at just under the normal range also raises urine calcium levels which is not good for the kidneys. Again, I’ve been lucky in that I’ve found a doctor in NYC who specializes in this. We are working on getting these levels down before issues arise. It’s a work in progress.

All this being said, I refuse to let this stop me. While things are different, I am keeping doing what I’m doing. May be slower and not run as far, but I’m still running (remember that marathon I’ve got coming up in November). I’m still getting done what I need to get done. And I’m lucky enough to have friends that support me when I need them:)

And on top of all of this it was also

National Donut Day, but I forgot to get my donut.

Boo.

 

 

The Unpleasant Truth

Everyone has something that they are afraid of.   Everyone knows that you can run from your fears, but you can’t hide from them.

  But what if……

What if sometimes the fear is just under the surface?

But what if……

What if instead of facing our fears that we just ignore them.   Pretend they don’t even exist?

Will that make them go away?

Reality and past experiences say no.

Someone recently asked me what is it that I’m afraid of when it comes to my running right now.   (I’m talking actual running not running away from my fears).   After thinking about it, I knew in my heart the answer.

The fear of not being good enough.

Once I had said this out loud, I knew the truth of my answer.   I had the answer before she even asked the question.   You see the night before, I had had a dream.  Seriously.   In my dream I went out to my car and ALL my running magnets were removed from the back of my car.

NO 50K

NO 26.2

NO 13.1

NO MRTT

Nothing………    Empty space where my pride used to be.

Silly dream, but it speaks volumes.    And then it begs to question, who do I have to be good enough for?   Not my family.   Not my friends.  Not my ever so supportive running community.  Not my co-workers.    Not the strangers along courses.  All  I need is to be good enough for me and why isn’t my best good enough?

It’s time to deal with the unpleasant truth.   A truth I’ve spoken of before, but still am grappling with I admit.    It’s not easy to let go of expectations realistically or unrealistically that you put upon yourself.    It’s not so easy to deal with unpleasant truths that you want to ignore.    And most of all when you finally face the unpleasantness of it all, you realize that you were holding onto things for all the wrong reasons.

letting-go

Truth

But letting go doesn’t mean giving up.   It doesn’t mean putting away my running shoes. It doesn’t mean pushing my limits.    It means letting go of the things that are holding me back.    I’m not talking about holding me back from PR’s or such.    I’m talking about holding me back from taking the next step.

Acceptance.

Yes, if it was that easy the world would be a better place.    But I’m talking about acceptance that things will be different and that’s ok.

I’m not a person of change.   I know this to be true.   My mother often asks me, “What’s new.”    I often respond, “Nothing and that’s a good thing.”   But the truth is that you have a choice in life, either change with it or live in the past and miss out on the possibilities of the future.

It’s time to look forward.   It’s time to change with the times.    It’s time to accept where I am today….

I am a woman who struggles due to her Hypoparathyroidism with limitations that I did not have before.  Pretending they are not there, will not make them go away.    I’ve been trying that and it hasn’t worked.   They are still there, but I make it look easy:):)

BUT

That does not mean I am not a runner anymore.   It just means that I need to learn to change.   Change expectations.   Change the way I train.    Change the way I run by embracing the run/walk method whole heartily this time.     Change is scary but sometimes necessary and often good.

It also means that you are open to new opportunities and I’ll be honest there is a new opportunity that I’m hoping comes my way.   One that if I accept that I need to be willing to change  to fully enjoy and experience.   (Yes, that’s a teaser:)

 

 

 

 

When is the Right Time?

Today, on this random day, I decided that I need to start getting it together.   While there are many things no longer in my control, there are many things that are in my control and I need to take control of what I can.   With that in mind, I pulled out an old training book that I used when I was working with my running coach in 2016.    I opened it up to peruse the pages and on the front page there was a sticky with the following written on it:

As much as I know the time is right, I still can’t help but believe that it is wrong…

Ummm, Ok

I still feel like that.

Do we ever know when is the right time?

I was on a message board the other day and someone was saying how they wanted to get back to running, but needed to loose weight first.    This is not the first time that I’ve heard such things.    I personally know people that have made similar statements.

The truth of the matter is that there is no right or wrong time.    There is only time, opportunities, and chances we must take.    I’ve been sitting here waiting for the right time to get my sh*t together – not be so out of breath when I run, loose weight, not feel like Grandma getting out of bed in the morning,  not have legs feel like I’ve run 10 miles when I’ve only run 1.

As much as I know the time is right, I still can’t help but believe that it’s wrong….

The time is right.    In looking at my training log, I can not see a day where I would be able to maintain that level again.  This is the truth as harsh as it sounds to my ears.   In looking at my training log, two years ago at this time I was running an 18 mile training run at an overall pace of 10:24.    A quote from my log,  “Other than feeling like a long run, it felt great.   Miles were faster towards the end of the run.”

Here’s the thing…..

I could not imagine running that pace that distance again.   Maybe I can.   Maybe I can’t.  I just know that my body does not bounce back the way it used to.    I also know that there are many factors I have now that I didn’t have then.

Here’s another thing…

I don’t know which factor is the causing factor.    I do know that Hypoparathyroidism plays into it.   I also know that hypothyroidism could play a role too.  I’m certainly not getting any younger.   Then there is the weight factor.   But which is coming first the chicken or the egg…. Is the weight a symptom of the thyroid problem or visa versa.

Let’s not even talk about the training time factor today.

Lastly, here is the thing…..

Even with all of the baggage, I still want to run.    I still want to run far.    I still dream the dream of running the way that I used to run and that there is the problem.   I need to live with the reality of today and work towards the reality that I would like to have.

As much as I know the time is right, I still can’t help but believe that it’s wrong….

The real question needs to be…

If not now, When?

time-flies

 

Perspective

We all come at life from different perspectives.    We all look at things just a little different based on our own personal experiences and over time even our own perspective shifts.

Before I ever got off the couch, I could not imagine why anyone would want to run for fun.   Running was something other people did.   People who did were nuts.   Sane people did not run.   Now that may be true, but once I got off the couch and started running my perspective changed.   I became one of “those crazy runners” even if it took me a while to think of myself as a runner.

Now when I started though, I had no thought of “good” pace or finish time and didn’t really put much thought into it.  Ok, I put no thought into it.   I rolled into my first half marathon by just signing up after it was suggested on a long run that I was taking just to take.   I had very little thought on strategy, pace, or even finish time.   I laugh now because in the car on the way to the race, I was in awe and amazed at the other runners talking of such things.    I felt like an idiot to be honest.    When they asked me what my plan was, I was like to finish.   We started together, but I told them to just run without me because I had no clue and didn’t want to hold them back.   Then a funny thing happened, I realized that they were always in my view.   I was stalking them:)   Then they realized I was back there and I joined the party!

I finished in 2:09:24.

Perspective shifted.

I was a runner, but I was just “normal runner.”   I would never do a marathon.

I have since run 5.   The first one was just not to die and then I actually started training for time.

But I would never be one of those crazy runners to run an Ultra.

I have run one 50K,   Truth be told, I secretly (shhhh, don’t tell anyone) want to run one again.  This is in the future, but I think it will happen again one day.

Perspective is a funny thing.

First I couldn’t imagine running.   Then I couldn’t imagine not running.   And now, I’m doing all I can to keep myself running.  Perspective has changed once again.

When I ran the NYCM marathon two weeks before my thyroid was removed in 2016, I was chasing the elusive 4:30 marathon.   I, probably, could have gotten it if I had not run the first half of the marathon like a half totally forgetting that the wall is no joke and not to be messed with.   But I still finished in under 5 hours.   Whew.

Perspective.

Chicago last year, I once again went back to having a goal of just finishing which is what I did.    I walked the last few miles.   I finished in 5:48:52.    I was happy.   I finished.    It was probably the hardest race that I have ever ran even with the slowest time.

Perspective.

I was lucky to be able to do Chicago.   I am lucky that my Hypoparathyroidism allows me to do all the things that I do.  So many with this disease would love to do what I am able to do.   I am very lucky, because it could be much worse.   For now, all is good.   I may have more aches, pains, weight, and such; but I am still able to get out there.

Perspective.

I sometimes think that I need to just enjoy the process now because as with anyone I don’t know what the future will bring.   For now, things are good and I need to just enjoy it all.   The aches.   The pains.   The heavy breathing.

And even with all of it, I am so lucky and it’s all the way you look at things.

When I had my first 24 hour urine test, my levels were off the charts.   My urine calcium level was over 570.   The normal level is supposed to be 200.   In talking to my doctor about changes to medications, she said that for someone with my condition our goal is to have these levels around 300.    The flip side though is that after getting used to a normal calcium level in the 9’s, I would lower my dosages to bring it down to the 8’s again.   What  a difference a point will make, but it’s all good.

I just got the results from my second 24 hour urine test.   The results were coming from my primary doctors office and they would send them to my endocrinologist.   Anyway, the office called and they were very upset as my levels were sooooo high.   The woman nicely was going on and on about how serious this could be with problems with osteoporosis and more importantly lead to kidney stones and damaged kidneys.   She was trying to get her point across how serious it was, when I asked what my levels were.   She replied that they were very high at 263.

Perspetive

I laughed and told her that was great because it had been over 570.

So just like life, running really comes down to our perspective.    I may never be the runner that I was for just a short brief blip, but it really doesn’t matter.

I’m still a runner.

And who knows…  Things could still change because that is just the way life works.

attitude

 

Rolling With The Times

As much as I know change is inevitable.

As much as I know that change is part of life,

As much as I know that standing in one place with your feet moored to the ground is not the way to go in life,

As much as I know that you can’t stop life from changing,

I do not like change.

I like consistency.

One of the things that drives my mother nuts is when she asks what is new and I tell her nothing.   I like that answer.   If nothing is new. Nothing has changed and again I like that.

I know…

Boring !

What can I say, I’m not exciting or fun.

Moore6

Oh wait, yes I am:)

This past year, there has been so much change.  I would like to say, some good and some bad; but that I think would be a lie.   For the most part, most has been bad.   I’m not having a pity party, I am just trying to accept the changes.

Change is hard.

I’m learning to go with the flow (a little bit), but the problem is the flow keeps changing.

I was and am getting into a good rhythm of working out and running, but I am no where near where I should be to run a half marathon this month.    I am supposed to run the Fred Lebow half, but it most likely will not be happening.   I’m sure that I could suck it up, but I haven’t run longer than 6 in a while.    This would not be smart.   It wouldn’t be smart for anyone, but with Hypoparathyroidism it would really not be smart especially when my doctor is changing my dosages.   I can feel the effects of the lower dosages.   I can feel the difference of lower calcium levels and am actually waiting some blood work as I’m sure that we will need to make another change.  We have not yet found the sweet spot.

These are good changes though.   It is nice to finally have a doctor that I have confidence in.   Although I really was feeling good with the treatment plan of my last endocrinologist, it was only a matter of time before it led to disaster.   My kidneys will like the new doctor better even if it means that I’m back to waking up with leg cramps and sore in the morning.  So many fun things.  I will work on these adjustments.

Last year it was all about coming to terms with the fact that I had this disease.  I kept thinking it would go away.   It didn’t.  I’m a lifer now.   It sucks.   It’s one of the things that isn’t changing, BUT this year with a doctor who can properly guide me….. This is the year I take me life back.

Will things be different?

Probably

Will I have to learn new strategies to get where I want to go?

Probably.

But change is good.

Plotting, Planning, and rolling with the changes…..

 

 

Round and Round We go

We all know that I’m not the bad ass that I used to be.   Not that I was ever the baddest of the baddest bad asses,  but for me and where I started I was pretty bad.    Things change.   Life is full of hills and valley’s.   It is very easy to get stuck in the valley.  Right now, I’m in search of the keys to start engine to get up the hill.

It’s time that I admit that even with my health issues that my running (or lack of running) is not all tied to it.   Yes, it started with the thyroid and calcium problems; but it is so much more now.   It’s a vicious cycle.   Due to the health stuff, I couldn’t run as much.   Not running or exercising as much caused me to loose a lot of my carido strength.   Loosing the cardio strength made running more difficult.   When the running became more difficult, I didn’t want to run as much.

Round and Round we go.

This doesn’t even take into account the mental part of it.

This past week I went for six miles.   By one and half miles in, my legs are burning, heavy, and tired.   My breathing is heavy.    I just want to stop.   Now mind you, I am not even pushing the pace AT ALL.   I thought about turning around and going home, but I didn’t.   And truth be told that is all that I can ask of myself.

Honestly though I do need to ask myself to get out the door more.  Part laziness.   Part knowing it will be hard.   And part wondering if it is worth it.   I know that I will get out.   I know that I am doing a half in January, but here is another fact.   I don’t really care.   I am not motivated.   This is the mental part that I’m talking about.

I ask myself, “Is it worth it.”

Here is the truth.   My legs are sore just from just standing all day baking cookies.   I’m exhausted by the end of a non running day.    It’s actually depressing.   So imagine how I feel on running days.   Although, at least those days I have a reason why.

In the next few weeks before Fred Lebow,  my doctor is going to be adjusting my medications.   I recently took a 24 hour urine test (not as fun as it sounds -Ha).   I failed it swimmingly.     According to my doctor, a normal calcium level for this test is 200.   Someone who is Hypopara, it should be 300.   This is due to the high amounts of calcium/meds  we have to take.   Mine was 578.    So adjust medication we will because if not this will not bode well for my kidneys.

One of the reasons that my levels are so high is that currently my blood calcium levels are great.   They are right where they were prior to surgery.   Sounds good, right?   Wrong.   The levels need to come down and they need to come down a decent amount.   I have to find what is the level to feel good enough to function while protecting my kidneys.   Can you see the dilemma?

To answer my question though.

It is worth it.

But I need to balance it with my actual life.  I’ve already decided that Fred Lebow will be what it will be.   This is no longer a goal race.   The only goal is to finish which I will.

I am making the NY Half marathon a goal race.   I’m not sure the goal, but this race I will give what I’ve got.   I’ll get there.   I just have to not only get my body there, but my mind.

One day at a time.

not-feeling-it

 

Don’t Let Fear Stop You

According to FDR “the only thing we have to fear is fear itself.”   While I totally agree with this statement that doesn’t mean that it’s all bad.   It’s also not all good either.   Fear is a powerful thing.   It can hold you back.   It can make you plant your feet in one spot and not move forward.   It can keep you from reaching your potential.

There are times when we wear our fears right out in the open, but these fears are usually minor.   Like fear of spiders or watching a horror movie.   Then there are times we hold onto fears that we aren’t even aware of as we don’t want to admit the truth because it makes them real.   Once we admit to the truth of our fears, then and only then can we begin to let go and deal with them.

So I’ve been pretty out in the open in dealing with my Hypoparthyroidism aka calcium issue.  Again people hear calcium and you think bone and teeth, but did you know that calcium is the most common mineral in the body and one of the most important?  Yes it’s needed for bones and teeth, but it also helps nerves work, helps blood clot, the heart to work, and keeps muscles from cramping.  There is probably some other stuff, but I’m still learning.   With this your bone density changes over time and although your bones are thicker, they may be more fragile and prone to breakage.    Did you further know that calcium levels decrease during exercise?    For a healthy person, the body will adjust but when the glands (Parathyroid) responsible no longer function properly there is no adjustment.

 That being said, I’ve been holding onto a lot of fear when it comes to it.   Part of that comes from feeling like I was on my own medical wise.    Yes, I’ve been under the care of an Endocrinologist this last year, but even then I felt like I was on my own.   This condition is not common.  It’s even listed under the National Organizations of Rare disorders.   There is a lot not understood about it even in the medical community.  I still am just beginning to understand how it’s all connected but mostly I go by how I feel.

Prior to my thyroid surgery my surgeon told me that there was less than a 1% chance that this could occur, but if it did it would just mean that I would have to take calcium.   I did not fully understand the impact it would have on me and I’m pretty certain neither did the surgeon.  After the surgery when it became apparent that besides no longer having a thyroid but that my parathyroid glands no longer worked, I saw two separate Endocrinologists.   The first one was good, but I was looking for one more versed in this disorder.   To be honest I think I was better off with the first one because she seemed willing to learn with me.   The best way to describe it was as if a patient was told that they were diabetic and needed to take insulin, but were not given any facts how to manage it.    That being said, I also did my own research found an online support group and learned what I could.   Anytime I would ask a question my second doctor, his response was always, “Your numbers are good.”   But I knew from my own research that my numbers might be too good which could lead to a whole host of problems with my kidneys.   So I persisted.

So after literally months of waiting, I finally was able to see a doctor in a major teaching hospital whose focus and studies involve hypoparthyroidism.   She literally teaches doctors about it while also studying it.    I will say that the best part of seeing her was the feeling of validation of my concerns, the way I’ve been literally feeling, and knowing that my doctor actually knows how to manage the disorder.    She also agreed with me that although my numbers are good, they might be too good for the long therm.   We discussed treatment options,  testing that I should get, and such.   She also gave me her cell phone number which she said she gives to all her hypopara patients.   Seriously, what doctor does that?

So I left her office with a sense of relief.   Nothing had changed, yet it was all so different.

Now if you’ve made it this far, you are probably wondering what any of this has to do with my running…..  Because of all this crap, things are different when it comes to my running.   I tire more easily after training.   I definitely am more sore and cramp easier.   I’ve also been afraid to push my limits which I’ve mentioned before.   On top of that due to the thyroid and not running as much, my weight continues to go up.  This starts a viscus cycle because it makes it even harder to run, I’m out of breath easier, and I can’t keep up.  It’s amazing how much things can change in a year.   I’m hoping by my second anniversary of my surgery, I will be in a better place and back to the confident runner that I was before.   I may down the road decide that I need to tackle the marathon distance again, but not yet.   Right now my focus is on preparing for my January half.

I’m not giving up.   I’m not backing down.   I’m moving forward slightly more confidently because now I know that if I do have issues that I can ask my doctor who will actually understand and be able to help me with it.

start-where-you-are-use-what-you-have

364 Days

So tomorrow marks one year on this magic carpet ride.   Last year at this time, I was prepping for my thyroidectomy.   You know the usually stuff you do prior to a surgery – make sure your will is up to date, make sure the house is clean, make sure the fridge is stocked, Oh and make sure Thanksgiving Dinner was ordered.

Going in I was prepared for the recovery of the surgery.   I was prepared with having to deal with getting my dosage right for my meds to replace my now missing thyroid.   Easy Peasy.    I really was not worried at all.    You see, I knew so many people who either had their thyroid removed or knew someone who had theirs removed.    Another ace in the hole was one of my sons although he has a thyroid, it has not functioned since birth.   To be honest, my only concern was that a surgeon was going to literally be slicing open my neck.   That was my main focus.   Everything else would just work itself out.

So now I am one day shy of my surgery and I realize that it wasn’t as easy as I thought it would be.   The blip on the screen was much bigger than I thought it would be.  Still trying to adjust the thryoid meds which is really what I attribute my 15 pound weight gain this last year too.   Oh and the fact that my running took a dive. It’s a work in progress.

This last year has been an adjustment both physically and mentally.   Prior to the surgery I in my mind was chasing a 4:15 marathon, completed a 50 K, and was pushing my limits.   I did not realize that post surgery dealing with parathyroid glands that decided that they no longer would want to function properly that my limits would change and change drastically.  I didn’t even know that there was such a thing as Parathyroid gland let alone 4 that were very important.

Over time, I may get back to where I was but realistically speaking I am not getting any younger.   In less than 2 years, I will be hitting a number many refer to as a milestone even, but we aren’t there yet!

Where we are is a celebration of where I am today.

Today

Is it where I want to be?   Not exactly.   That being said….

I ACTUALLY RAN THIS WHOLE THING.

There was no walking.   There was no stopping.   There was only running.   And while I will admit that it was so much harder than it used to be and I was so happy to hit the end, it is so much better than it has been.    Life gives you what it gives you.   Today it gave me 3 miles.   For today that is enough.   I admit that some days it’s not, but as I continually remind myself….. You can’t live in the past.    You can’t spend your life living the should of , could of, and would of’s of life.   You get what you get and you don’t get upset.   And my personal favorite that my sister hates….

It is What it is!

So today, I look back on not where I was prior to 11-18-2016, but how far I have come since then.    The support that my friends have given me has helped me continue to push on.    You have been there when I have complained about my aches, my pains, my feeling tired all the time,  and everything else in between.   So this is my shout out to you……   For listening when I complained.   For understanding.  For your ideas and suggestions.  For run/walking with me when I need to and when I need to again and everything in between.   It hasn’t been an easy year learning to deal with “the new normal,” but thanks for taking the trip with me.

 

PS – I’m still following my training plan for the January Half Marathon.   One week down:)