I can’t believe how much Yorvipath is making a difference. Not just in my running, but my day to day life as well.
While I love what this is doing for my running, I am not just taking this to be able to run. That is just a bonus. Living with untreated PTH loss (aka Hypoparathyroidism) was like living with one hand tied behind my back. Some days both.
As I told my family, I made it look easier than it actually was because what was the point otherwise. The constant worry if my calcium would crash. The self monitoring. The leg cramps. The cramping of hands.
So even if I wasn’t running, I would happily take it. The running is just a bonus.
Training has been going well. I even hit 20 miles for the week. Runs have felt good. Legs have felt good. To be honest, I am waiting for the shoe to drop it has been going so well.
I have also been working on controlling my pace. Thinking about which of the fall races will to be my goal race. Consistency will be the key.
My goal is not perfection, but to follow the plan as best I can.
Currently, I am totally off Calcitriol and only taking one dose of calcium. Last bloodwork was taken when I was taking two doses of calcium. Corrected calcium level of of 9.7. I have yet to get bloodwork with the one dose.
This weekend I went out for two runs.
Saturday
It was HOT. It was humid. I got out early, but really didn’t matter. I am in pretraining for the Bethlehem Running Festival, so I am just testing things out. I also am testing how I feel with Yorvipath. This will give me ideas for training and goals.
Got out the door and about half mile in I realized that I didn’t take my morning calcium since I left earlier than I normally take it. Figured this would bee a good test and I wasn’t worried because I had my extra calcium. So I just kept going. I will say around mile 2 I felt a little tingle in my upper arms. Could have been just due to the heat, but I took my calcium just to avoid any issues especially since I don’t know levels.
Not too bad:)
Today, I intentionally went out not taking my morning calcium as a test. Don’t worry, I was again packing my morning dose. It was still warm but not as hot as day before. July humidity that’s for sure. My today was just to run a decent pace and run the whole thing without walking. While I did again stop to take calcium around 2 miles, I did pretty much run the whole way. I’m not sure if I necessarily needed calcium physically as much as mentally I needed it. Better safe than sorry.
Today was a beautiful run with negative splits, pushing myself but still feeling I could push more.
I am still not sure if the heart rate was right today as that seems low. My resting heart rate is normally in 70’s an I’ve had to watch heart rate from going too high previously. So something to watch. Other than that I really couldn’t have asked for better run.
Last week I’ve been dealing with low calcium symptoms. Nothing major, but knowing that I needed to dial it back a bit.
I skipped a couple workouts. I just couldn’t seem to get to where I should push it. Cramping, muscle spasms and such. Didn’t help that I also forgot my pills at work one day . I was a hot mess.
Muscle spams
Nothing major, but it went on for a bit. Here is the thing, you have to listen to your body. My body was saying slow it down. Besides this close to the haf, it wan’t going to make or break me.
Sunday I went out for my long run. I procrastinated and procrastinated until it was time to go…. I just wasn’t feeling it, but thought it was just that pre run don’t want to go.
So off I went.
Around mile 5 I took a 250 mg calcium. Usually on long runs I do this around mile 6. By mile 6 I decided to take another 250 and my calcitriol as I was feeling tingly fingers. I knew at this point I could no longer push it running, but I really wanted to get the miles in.
So I got them in,
Done in is done and that is all that mattered. I am glad that I got it done and glad I didn’t push it. By time I got home I needed to add some more calcium.
I was toast…. But as someone said
10 miles is 10 miles.
Made sure to rest, recover and take my calcium
Two days later, I am back on track on back on my training schedule. Yesterday was rest day.
Just like I say, I need to train for the weather; I also need to train where I’m at. I could have calcium issues on race day and this will also help me to be prepared.
Maybe the secret isn’t being the best of the best.
Maybe the secret isn’t running harder or faster.
Maybe the secret isn’t anything other than…..
Just to keep plugging along. To keep moving. To not give up. To just keep moving.
Down to 6 weeks till Brooklyn.
It’s not exciting or fancy, but I am plugging along.
That is what I’m doing.
It’s not bold or exciting, It’s just getting runs, biking and cross training.
It’s just not giving up.
Just plugging along. Doing my thing. I’ve been “following” a training plan, but I’ve been following my way. Maybe doing a indoor bike run instead of mid week run. Changing up runs, but getting them done.
Sunday, I went for my long run. Normally a long run would be done at a much slower pace, but I had a plan. I would walk the first mile. Then I would do 5 miles at what I might think of doing at the half and then slow for last mile. For the most part, I stuck to the plan.
Mission accomplished.
Here is the thing though, I needed to remind myself to control my pace…. And I did. I ran the paces that I wanted. The only change I made was was the last mile. Instead of walking it, I ran like it was the finish and then walked the last quarter mile.
The best part of this run is that I felt like I could keep going. So there is that.
Yesterday was National Quitter’s Day. The day most of us quit our New Year’s resolutions. Since I didn’t make any resolutions and started on December 30th, I’m still going strong. As said previously, it is all about progress not perfection. It is all about being healthier.
It’s funny too because I’ve actually been enjoying eating healthier. It has been making me think about my food choices which has been more satisfying than just grabbing things without thought. I’ve been taking salads for most of my lunches and they have been so good.
Love this container too!
For snacks, I’ve forgotten how much I enjoy cottage cheese with fresh fruit. I’ve also had to rethink drinking my calories. More water even though that was usually my drink of choice. It also helps that for Christmas that I got a Nutribullet.
I think I mentioned the app Reverse Health. I have now completed 11 days of my 30 day challenge. I am starting from the beginning which is where I am at. While I can go out and run pretty much any day, my overall fitness has not been tended to. So back to basics.
So far so good.
I’ve already noticed changes. My lower back pain has improved as have my flexibility in my hips which were very tight. These are the things that I need to work on. I am also working on my running. Today I ran three miles doing some fartleks. No particular speed, just to test and see how I would feel.
On top of that I have lost almost 3 pounds which is also part of the agenda. But slow and steady is the goal.
Progress not perfection.
On top of this, I also through the lottery got into the NYC Brooklyn Half which is in May. So all that I’m doing now is the pre-training for the Half.
Today’s run was definitely a mental one. Yes, it was physical because I was going for between 8-9 miles; but I was in my head a lot before lacing up.
Every run is a mental run from the procrastinating to the lacing up and getting out the door. There are so many reasons not to run. There are so many reasons to push yourself to get out and run too.
I needed to get out of my head today. I needed to remind myself that I can do this. I would be lying if I didn’t say that last week scared the crap out of me. I would be lying if it didn’t cross my mind to stop pushing so hard, to stay home and just say I’m throwing in the towel. While on my Hypopara journey, I have had tetany before. I have had muscle spasms. I have had the tingles, the brain fog, and been symptomatic. The difference is that I always felt like I still was in control as these symptoms were more annoying than anything else.
I won’t go into again, but last week’s calcium crash was bad. It scared me. It stopped me in my tracks. It reminded me that this is more than just annoying. This is real and needs to be taken seriously. I liked to pretend that it wasn’t and wouldn’t stop me. Honestly, I’ve been more worried about my kidney health than the actual Hypopara symptoms. I realized that I needed to take BOTH as seriously as I should.
This week was a stressful week at work. It was also the first week without summer hours. No longer leaving at 3, but 1. Doesn’t sound like a lot, but for those who don’t know I am also a childcare teacher. This means I am on my feet and really in constant motion both mentally and physically all day.
I wanted to run this week, but I didn’t. I could tell that I wasn’t ready. Yesterday I just didn’t have the energy. I had stayed up too late baking a cake. Oh yeah, I’m also a home baker. So yesterday I didn’t run.
This morning no excuses…. Except I was nervous. I prepared for my run giving myself an half an hour for morning meds to kick in. I filled my water bottles. I have the Fitletic running belt. So I filled 2 with water and one with electrolytes. I then put into the belt some kind nut bars, extra meds, and off I went. I also put back on my running Id that has contact info and also a “Hypoparthyroidism check calcium.” I had gotten a new band and never put it back on. I got complacent.
I started off running streets close to home making grids for the first three miles. I stayed close to home for the remainder of the run too. Not going too far out which sometimes I do for a longer run. Today was about keeping a comfortable pace. Walking when needing to, but not just because I want to. It was about listening to my body. At around 5 miles, I added some full in the form of some of the kind bar. At around 6.5 miles, I took 250 of calcium. Half of my normal afternoon dose. Then just kept moving.
I finished. I got to 8.5. At the end of the run I was thinking of doing a few streets to get to 9, but I figured this was enough……. And it was!
Mentally my head is back in the game. Mentally I know that I can do this but have to be smarter.
This past week I feel good about all that I accomplished. Going into this training plan, I recognized that I would not be able to follow it to perfection. that being said, I do want to follow the training days if possible even if I don’t follow the miles. I feel for a variety of reasons that it is not in my best interest to run every run. I plan to substitute biking for running, some elliptical and who knows maybe even swimming. The swimming might be a stretch.
As I’ve said before, this plan is to train to run on tired legs. Ha! Anyway, I only missed one workout this week. I did switch training days, biked instead of ran, and just did what needed to do.
I am trying to go into this training also by not adding any extra calcium to my daily intake. When I first became hypopara, I trained like I had no issues. To be honest, I had not because I was keeping my serum calcium levels up, adding extra calcium for long runs and just going about business as usual. Right up until I took my first 24 hour urine test and it was well over 500. I’ve adjusted, but since being Hypopara the only time my 24 urine test came back normal was when I was on Natpara. As for now, levels while still hi9g are in the mid 300’s. I’ve been lucky so far not to have nay issues with these high levels. Except, of course, for the anxiety it brings.
So with my training, I don’t want to add extra calcium just for the sake of adding it. I’m will add if necessary if I feel like my levels are dropping. You know that whole guessing game since there is no at home calcium test. Anyway, this means I will try to plan my training around when I’m taking my pills. So far so good. I’m sure once I go for longer runs I will need to adjust. Adjust here. Adjust there.
Sunday run. Taking on some hills too.Literally dripping when done
I have been also working on controlling pace. A work n progess
This week coming up, I already know instead of an 8 mile run that I will turn that into a 24 miles on the bike. From what I could find online the ratio is 3 bike miles to 1 running miles. That is what I’m going with.
Felling good. Tired, but a normal tired and that is all I can ask for. I’m falling asleep as I type this, so I think it’s time to say goodnight.
100 days is so far away, yet so close. 100 days till NYCM. 100 days to worry if my training is not enough. 100 days to doubt if my body can handle it. 100 days to worry about what is going on with the new Delta Covid Variant and how this will all play out.
On top of that…..
100 days to fundraise. 100 days to spend as much time fundraising as I do training. 100 days to continue to remind people of the good work that Sandy Hook Promise does that only happens with fundraising. 100 days to remind people that while I do love running this race is more than about running. 100 days to hit my goal.
Is there anyone who doesn’t take on this challenge who doesn’t question why they are doing it, if they should be doing it, and how you can do it better.
Now don’t get me wrong. Training is going good. Although I have already had some foot pain which is concerning. This are things that lead to doubt. These are things that make me realize that I need to go see my podiatrist. More just to make sure that there are no issues and to see if it is time for new inserts for my shoes. I just don’t want to deal with foot pain all through out training and I did have that pain after running only 8 miles. So there is concern.
One thing that I hate to admit as I’ve had issues with my feet 20 pounds ago…… The extra weight is not helping when it comes to my foot health. It’s not so much the weight but the weight combined with being prone to having issues with my feet is not a good combo. Although this time the pain was different. It was on the outside of my foot, so I wonder if something else is going on. And while I know the easy solution is to say….. I’m going to loose 20 pounds. That is much easier said than done.
So the reality is that I’m not going to loose the 20 pounds. Unless I plan to go on a very strict diet (which I won’t), I need to figure out some things out.
Should this be my last marathon (thats a hard one)
Do I need to see my podiatrist (yes)
Is it time for new insoles? (Not sure)
Do I need to focus on foot strike and form (maybe)
GRRRRRR
I really need to not bury my head in the sand like I’ve done in the past and takle this head on. Although I do like to ignore things till they blow up in my face. (Doesn’t everyone or is that just me?)
It annoys me too because this go around I am doing everything that I should be doing. But for now, it is not something that is bad enough to cause me to stop. Besides I already have some ideas – like to spend some of my “foundation runs” with biking. To make sure to spend stretching and just listening to my body.
So while I have not signed the contract to run NYCM with Sandy Hook Promise, I am laying groundwork. I do think paperwork should be with-in the next week and then it’s off to training we go.
That being said, I am already laying the groundwork. I have my training plan loaded in Training Peaks which I will officially start next week. Until then, I am in pre-training which I should enjoy while I can. I am also not looking to train for speed, but train for a great experience running. But first…..
I am also crossing all the T’s and dotting all the I’s with taking care of myself. I finally after years of my family telling me to get it checked out (again) saw a Pulmonologist and did a sleep study. Not too bad….. I only stop breathing 40-45 an hour and have severe sleep apnea. CPAP apparently is in my near future.
So while this sounds bad, it helps because maybe just maybe my down to the bone tiredness has nothing to do with my Hypopararthyroidism, but the fact that I am getting terrible night sleep! So besides, you know keeping me breathing at night and heading off any potential health issues; this will more than likely also help me with my training since I won’t be so exhausted all the time. Win.. Win.
Then next month (you know because it takes that long to get an appointment) I have my normal visit with my Endocrinologist for my Hypopara stuff and I am going to see Urologist to check on kidneys since I have a high output of calcium in urine. Although now wondering if I made appointment with right type of doctor and might have been better served with nephrologist but too late now. Would rather get some answers than no answers and can always follow up with the nephrologist if I think need to.
By this time, I will hopefully be a month and half into training. I am excited to start. And while my Sandy Hook Promise team place isn’t finalized yet, I think I will stick with training even if something happens.
So it’s go time….. As they say…..
There may come a day that I can not run, but today isn’t that day and I’m going to keep going.
I’ve thrown my hands up giving myself up to enjoy the ride
I’ve wondered if I was foolish to even get on as it begins to take off. The anticipation while you wait in line, strap yourself in and begin to take off wondering if you are up for what lies ahead. The thing is once the ride takes off, you have no choice but to buckle in and make the best of it. You can scream. You can laugh. You can throw your hands up and just enjoy the ride. Doesn’t matter what you do because once it takes off, you are commited. Sometimes you think you have reached the end of the ride only to realize that you are going around another bend.
A few times I’ve thought that I reached the end of my roller coaster ride only to realize how wrong I was. I think I am really finally coming into the station of acceptance with my 2016 post surgery Hypopara running. You may be thinking…… it has taken since 2016. Acceptance isn’t as easy as it sounds. Then there are the times where you think you have reached the stage of acceptance only to realize that you have just been getting by and really have not. Letting Pride really keep you from making it to the end.
Here is the thing. Since my 2016 surgery left me Hypopara, I kept trying to push myself to run at a pace where I no longer was physically able to run. Mind you I knew that I was no longer at a run sub 2 half pace, but I still never embraced where I should realistically should be running even if at times I thought I did.
Recap for new followers –
For about two years or so before my surgery, I was working with an amazing coach. With her guidance I ran a sub 2 half marathon, a 50K, and I was able to even run a 26:26 5K. I was at the top of my game and I even timed my surgery to be after running the 2016 NYC Marathon. I’ve said it before, the surgery was just going to be a blip.
Until is wasn’t.
Then I kept riding the roller coaster knowing that I was the same, but trying to be something that I wasn’t. Not to say that I won’t be again, but not now. After surgery, I origionally was over medicated so I was able to keep my running up. Then realization that I could no longer keep calcium levels up in the 9’s but for safety of kidney’s . Needing to keep levels just below or at normal level’s. Doesn’t sound like much but for those of us with Hypoparathyroidism, we can tell you that there is a BIG difference how one feels with calcium at a level 9 compared to 8.2 or even 8.5. I also think that for right now I have found a happy medium where my calcium has been around 8.4 last couple times. The balancing act is real.
Anywho…… for the longest time a year or two after my surgery I kept trying to run paces that while much slower than my 2016 paces but realistically were not paces that I should be running. The thing is that I really couldn’t maintain them either. I did a lot of running too fast. Needing to walk and then running again. Then with the 20 pound post surgery weight gain and everything else, running a 10:45 pace was not where I should be even though at the time I thought that was “slow.” I remember posting in a group that my former coach runs about having to walk during my runs and I’m paraphrasing because honestly I don’t remember exactly what she said even if I remember the meaning behind what she was saying. She basically said that I was walking because I was running too fast and maybe (I add that in my mind) pride was the reason. Even though I knew the truth of her words, like many not willing to accept reality I blew off what she was saying. Although if there is one thing anyone who has worked with Caolon knows…… She knows what the (beep) she is talking about even if you choose not to hear her.
So I went on….. and on….. and on…… until I finally gave up running completely. I spent months just walking. I walked and walked and walked some more. I even walked a virtual marathon. Then I was ready to run again. I wanted to run again. There was beauty in having not run for a long time. I was 100% starting from the beginning and needed to respect starting from scratch. My mind was in the right place this time. I also think that deciding not to train by pace but heart rate helped because it gave me the ability to learn where I should be running to actually run.
So here I’ve been just running and training. 100% recognizing that pace is not the goal right now. That the goal is to find where I should be running and run there. I’ve been embracing the running and am now following a training plan for the NYC Virtual Half. I am only using the plan for milage and training not following anything by pace. It has also been helpful that even though I hate it, I have been running on the treadmill. This is good because it does allow me to control pace that I’m running at without concern that I end up running at a pace I shouldn’t be.
I’ve also realized pace is irrelevant to me right now. I am more concerned with being able to run without leaving myself and my body depleted. Since running by heart rate and finding the correct pace while still pushing myself, I have realized that I have not been getting muscle spasms. I am not depleted to the point where I NEED (not want) to nap and most of all I can function in my day to day life.
Last week I ran a hard 5K.
Then this week in training I ran 4.5 running 4 without stopping and feeling good. I did this running average pace of 12:37. This “hard” run was literally a minute faster than what I used to do my easy runs at. So today I needed to run 7 miles, my longest run so far this training cycle. Since this was a long run that meant I need to run slower. I started off with a 5 minute warm up walk and then when I hit every mile I walked for 45 seconds. I’m not sure that I actually needed the walk, but it did break up the treadmill running. Who knows what that would parlay to outdoor running, but for right now I am happy to be running, not feeling like I can’t do it, and feeling like I could do more when I stop.
I’ve been thinking a lot about accepting where I am lately. I realized that while I thought I had accepted where I am right now that I really had not. I do think that this roller coaster ride is finally coming into the station. Acceptance does not mean that I won’t push to try to do better. It does not mean that I can’t work to do better in the future. It does not mean that I won’t have days where things bother me. It just means that I am ok with where I am today.
The Accidentally Running Mama 