Last week I’ve been dealing with low calcium symptoms. Nothing major, but knowing that I needed to dial it back a bit.
I skipped a couple workouts. I just couldn’t seem to get to where I should push it. Cramping, muscle spasms and such. Didn’t help that I also forgot my pills at work one day . I was a hot mess.
Muscle spams
Nothing major, but it went on for a bit. Here is the thing, you have to listen to your body. My body was saying slow it down. Besides this close to the haf, it wan’t going to make or break me.
Sunday I went out for my long run. I procrastinated and procrastinated until it was time to go…. I just wasn’t feeling it, but thought it was just that pre run don’t want to go.
So off I went.
Around mile 5 I took a 250 mg calcium. Usually on long runs I do this around mile 6. By mile 6 I decided to take another 250 and my calcitriol as I was feeling tingly fingers. I knew at this point I could no longer push it running, but I really wanted to get the miles in.
So I got them in,
Done in is done and that is all that mattered. I am glad that I got it done and glad I didn’t push it. By time I got home I needed to add some more calcium.
I was toast…. But as someone said
10 miles is 10 miles.
Made sure to rest, recover and take my calcium
Two days later, I am back on track on back on my training schedule. Yesterday was rest day.
Just like I say, I need to train for the weather; I also need to train where I’m at. I could have calcium issues on race day and this will also help me to be prepared.
Maybe the secret isn’t being the best of the best.
Maybe the secret isn’t running harder or faster.
Maybe the secret isn’t anything other than…..
Just to keep plugging along. To keep moving. To not give up. To just keep moving.
Down to 6 weeks till Brooklyn.
It’s not exciting or fancy, but I am plugging along.
That is what I’m doing.
It’s not bold or exciting, It’s just getting runs, biking and cross training.
It’s just not giving up.
Just plugging along. Doing my thing. I’ve been “following” a training plan, but I’ve been following my way. Maybe doing a indoor bike run instead of mid week run. Changing up runs, but getting them done.
Sunday, I went for my long run. Normally a long run would be done at a much slower pace, but I had a plan. I would walk the first mile. Then I would do 5 miles at what I might think of doing at the half and then slow for last mile. For the most part, I stuck to the plan.
Mission accomplished.
Here is the thing though, I needed to remind myself to control my pace…. And I did. I ran the paces that I wanted. The only change I made was was the last mile. Instead of walking it, I ran like it was the finish and then walked the last quarter mile.
The best part of this run is that I felt like I could keep going. So there is that.
Today’s Facebook memories from 9 years ago were filled with NYC Half Marathon.
A sub 2 half…. Right under the wire at 1:58:59
This was a race that I worked with amazing coach to achieve. This was a race I trained hard for.
It was hard.
It wasn’t easy.
I wasn’t sure that I would be able to do it.
Yet, I did.
Now mind you this was 9 years ago…. 8 months before my thyroid surgery that left me Hypopara.
Here’s the thing though….. I know due to getting older, the whole Hypopara thing, and the extra pounds that I am no longer chasing the sub w half.
I get that. I really do, but what was hard and impossible then became reachable and possible. That doesn’t mean that I can’t still do hard things. It’s just that I think I forgot it.
This was a good reminder. Not just for my running and fitness, but for life in general.
Yesterday was National Quitter’s Day. The day most of us quit our New Year’s resolutions. Since I didn’t make any resolutions and started on December 30th, I’m still going strong. As said previously, it is all about progress not perfection. It is all about being healthier.
It’s funny too because I’ve actually been enjoying eating healthier. It has been making me think about my food choices which has been more satisfying than just grabbing things without thought. I’ve been taking salads for most of my lunches and they have been so good.
Love this container too!
For snacks, I’ve forgotten how much I enjoy cottage cheese with fresh fruit. I’ve also had to rethink drinking my calories. More water even though that was usually my drink of choice. It also helps that for Christmas that I got a Nutribullet.
I think I mentioned the app Reverse Health. I have now completed 11 days of my 30 day challenge. I am starting from the beginning which is where I am at. While I can go out and run pretty much any day, my overall fitness has not been tended to. So back to basics.
So far so good.
I’ve already noticed changes. My lower back pain has improved as have my flexibility in my hips which were very tight. These are the things that I need to work on. I am also working on my running. Today I ran three miles doing some fartleks. No particular speed, just to test and see how I would feel.
On top of that I have lost almost 3 pounds which is also part of the agenda. But slow and steady is the goal.
Progress not perfection.
On top of this, I also through the lottery got into the NYC Brooklyn Half which is in May. So all that I’m doing now is the pre-training for the Half.
Yes it is that time of year for goal setting. That being said, I would be doing all this if it was June. I am ready. So here we are……. One week in.
What a difference a week makes.
Working on my diet. Healthy smoothies in the morning. More water. More salads. Less processed foods. It’s a work in progress with progress being the key word. Small changes that can be sustained.
Downloaded a 12 week wall pilates program on an app (Reverse Health). For the $30 fee, I feel like it will be worth it. My goal is to carve the 20 minutes out a day. So far. So good, but its been 3 days:)
Started doing some running again. Even ran a New Years Day 5K with friends. This lead me to another goal…. In June there is a Downtown Run into Summer 5K. MY GOAL NOW IS TO RUN THIS RACE WELL….whatever that means. Not time, but the way I feel. Although to be honest I would like to run it in under 35 minutes. I ran the Bethlehem Running Festival 5K in 40.17. So I think while a reach/stretch goal, it is not a crazy goal.
I have been reading a GREAT book by a running coach that I was very lucky to work with. The book is Running Past 50, Your Guide to Running Longevity and Success by Caolan MacMahon. (You can find it on Amazon and I highly recommend it). This book has been motivating me…..for me because I am lucky enough to know Caolan and have worked with her it really hits home. She was my running coach who got me through 2 marathons, a 50K and my one and only sub 2 half marathon. She is an amazing coach and her book speaks the truths coach’s need to say to thir athletes.
The below passage really spoke to me and I hear the truth of her words….
“But it takes time and willingness to develop a habit, which will also include breaking a habit. Habits can, of course, be “good” or “bad.” In this case, you want to develop a good habit, running , while breaking a bad habit, inactivity.”
This paragraph goes on with more information and really spoke to me. So much so that I have it bookmarked.
I have developed bad habits. Not just eating more processed and sugary foods than I should, but coming home from work and immediately sitting on the couch with my dog and a coffee. While this isn’t a bad thing, the timing is a bad habit because once your on the coach it is harder to motivate to do what needs to be done. So what I’ve been trying to do is inside of doing this to go for a walk after work or as in today do my wall pilates which today focused on abs.
So here is to making better choices in the new year. Here is to making healthy habits while replacing the bad ones.
Since this post is long enough, I will explain later how I plan to hold myself accountable.
It is not an exaggeration to say I was at my peak as a runner in 2016 before my surgery. I had only started running in 2013 with the couch to 5K. By 2106 I was on my 3rd marathon chasing a sub 4 marathon and even ran a 50K. I felt unstoppable. I was working with my running coach who helped me meet many goals even a sub 2 half marathon. I was even 25 pounds lighter.
I timed my thyroid surgery around running the 2016 NYC Marathon.. At this point we all know what happened so no need to rehash. (Search posts to see how crashed & burned). I even ran the Runners World Hat trick as training for NY.
Here is the thing though while I’ve never let my Hypopara stop me, sometime it beat me. In 2017, I signed up for at the time the Runner’s World Bethlehem Festival quadruple play. I ran the trail. I ran like I didn’t have Hypopara. I finished the trail race and called it a weekend. I just didn’t have it in me to run the rest of the weekend. It beat me. This was my first DNS (did not start) for the other races.
I admit that I wasn’t trained enough to even think of running 4 races. Hypopara was still to new to me. I didn’t fully understand it and how it affected my body. It took me years and I’m still learning as it is always different, but I’ve learned.
I always figured that I would go back, but then the event was cancelled. Then a few years later, they brought it back as the Bethlehem Running Festival. This is why this past race weekend was so important.
It wasn’t about the bling….. which is very nice.
It wasn’t about feeling like a badass….which I kinda do now
It wasn’t about anything….
It was about proving that I could do this… even with hypopara.
I can’t explain why this event was important for me to finish, but it was.
Today was day 2 of the Bethlehem Running Festival. You know the big event I’ve been training for:)
Yesterday, I left work early to head to the 3.8 mile trail run. I love trails but have not run them in a long time nor did I do any trail training. That being said, my goal as with all the races is just to run smart and finish.
Check!
The trail was steep in some spots and rocky in most. I started in the back and stayed there. As with all trail runs, I met some people. There were 4 of us who pretty much kept in each other sites. When done we high fived.
Done is done!
Luckily this destination event in the Lehigh Valley is 25 minutes from my parents. So after the race, I went there. Had some pizza, showered and relaxed.
I was exhausted from the day and was in bed by 9:00 which was good because I had early wake up call next morning.
Then this morning, I woke up on my own at 5 am which was an hour early than I intended. I did’t mind as it gave me time to relax into the morning.
I left the house before the sun and off I went.
Since I had two events today, I knew I had to be smart especially with the Bethlehem hills which are not joke. I took my morning meds a little earlier as the day started earlier. Ran the 5K and reminded myself to go easly. Slow and steady may not win, but will get me to the finish….. and it did.
I had maybe 45 minutes between races. Enough time to do a little stretching, hydating, and snack. I also took 250 mg calcium before starting. Then off I went again.
The 10K had more elevation than the 5K. About 4 miles in my left heel was bothering me. I pushed through. Again walking many hills. Trying to remind myself of a slow steady pace when running….Finishing agin.
Done is done.
I took my afternoon dose of meds after event and from calcium prospective felt good today. My foot is a different story. Rested, rolled, and hopefully ready for tomorrow.
One to go…. This is the half which I know is going to test me, but I feel ready. I am ready.
Today’s run was definitely a mental one. Yes, it was physical because I was going for between 8-9 miles; but I was in my head a lot before lacing up.
Every run is a mental run from the procrastinating to the lacing up and getting out the door. There are so many reasons not to run. There are so many reasons to push yourself to get out and run too.
I needed to get out of my head today. I needed to remind myself that I can do this. I would be lying if I didn’t say that last week scared the crap out of me. I would be lying if it didn’t cross my mind to stop pushing so hard, to stay home and just say I’m throwing in the towel. While on my Hypopara journey, I have had tetany before. I have had muscle spasms. I have had the tingles, the brain fog, and been symptomatic. The difference is that I always felt like I still was in control as these symptoms were more annoying than anything else.
I won’t go into again, but last week’s calcium crash was bad. It scared me. It stopped me in my tracks. It reminded me that this is more than just annoying. This is real and needs to be taken seriously. I liked to pretend that it wasn’t and wouldn’t stop me. Honestly, I’ve been more worried about my kidney health than the actual Hypopara symptoms. I realized that I needed to take BOTH as seriously as I should.
This week was a stressful week at work. It was also the first week without summer hours. No longer leaving at 3, but 1. Doesn’t sound like a lot, but for those who don’t know I am also a childcare teacher. This means I am on my feet and really in constant motion both mentally and physically all day.
I wanted to run this week, but I didn’t. I could tell that I wasn’t ready. Yesterday I just didn’t have the energy. I had stayed up too late baking a cake. Oh yeah, I’m also a home baker. So yesterday I didn’t run.
This morning no excuses…. Except I was nervous. I prepared for my run giving myself an half an hour for morning meds to kick in. I filled my water bottles. I have the Fitletic running belt. So I filled 2 with water and one with electrolytes. I then put into the belt some kind nut bars, extra meds, and off I went. I also put back on my running Id that has contact info and also a “Hypoparthyroidism check calcium.” I had gotten a new band and never put it back on. I got complacent.
I started off running streets close to home making grids for the first three miles. I stayed close to home for the remainder of the run too. Not going too far out which sometimes I do for a longer run. Today was about keeping a comfortable pace. Walking when needing to, but not just because I want to. It was about listening to my body. At around 5 miles, I added some full in the form of some of the kind bar. At around 6.5 miles, I took 250 of calcium. Half of my normal afternoon dose. Then just kept moving.
I finished. I got to 8.5. At the end of the run I was thinking of doing a few streets to get to 9, but I figured this was enough……. And it was!
Mentally my head is back in the game. Mentally I know that I can do this but have to be smarter.
When you are a healthy runner, you can still run into issues with your training. You can over train. You can become dehydrated. You do so many things wrong, but usually there is some wiggle room. When you have Hypopara (or any other health issue), you might not have so much wiggle room. Sometimes you forget that too.
Today was a day to remind me of that. A day where I got the not so gentle reminder that there isn’t as much wiggle room as I would like to pretend. It is easy to forget these things. It is easy to pretend that you just take extra calcium and meds just because. Especially when for the most part you are stable. Yes, you sometimes get gentle reminders that you need to take some more meds….. a “dancing” of your leg muscles, a little tingle here or there, but nothing crazy.
Training has been going well. I haven’t necessarily been following the plan perfectly, but enough that I feel comfortable with it. Enough to know that I can run a half in 3 weeks and continue with it to run the Hat Trick in October. I’ve done multiple back to back runs. Some of them have even been a run in the evening followed by run the next morning. All Good.
Yesterday I went for a training run with my friend. We did an easy 6 miles. No issues. Run itself was comfortable and left feeling like I could run more. We did it!
This morning I left for another 5 miles. I was adding some hills, since the Hat Trick has lots of them. I wasn’t going to race. I wasn’t going to be fast. My goal was to try to be steady. Figure out a walk/run plan. I was about half mile out when I realized that I forgot my water. It was hot and humid, but I figured lets just keep going. So I did…..
Like all runners, I monitored the way my body was feeling during the run. Today I was really just focused on completing the miles, watching pace to make sure I wasn’t running too fast, and trying a new walk/run plan (8 to 1). I was trying to run a smart training run.
During the run there were times I felt the tingles that sometimes come when running. I adjusted. I just wanted to push to 5 miles watching my heart rate and pace. I’ve felt these tingles before. These are just little warning bells, but nothing crazy. Once I hit the 5 miles, I walked.
I had 1/2 mile to go and figured a walk would be a good cool down. The tingles became more intense, but again nothing crazy. As soon as I got in the house I made my ice water with electrolyte powder. While sometimes after a hard workout I will take some extra calcium, thankfully today I also took an extra Calcitriol. Minutes later both my hands seized up with tetney or as I call it, the claw hand. I could not open. I could not close. I also having severe tingling and pressure in both arms and lips/face.
I admit it, I got very nervous especially because I was home alone and would be for hours. I wasn’t sure if I was going to pass out. I asked Siri to call the friend I ran with yesterday. She is familiar with my issues and as a bonus she is a PT who understands the body. I tied to be calm, but I think she knew I was freaked out and how I was feeling as I was swearing up a storm. I even gave her my address and unlocked the back door just in case I stopped talking to her. This was no joke. This was the worst crash I’ve ever had…. NO I AM NOT BEING DRAMATIC. Those who have been here understand.
Luckily as we stayed on the phone with my friend little by little my hands became my own. I would happily tell her, “my pinky and tall finger are moving!” It slowly released me after quickly grabbing on. She said she knew when I was feeling better when I stopped swearing.
Once my body was my own again, I texted my doctor. She called minutes after getting my text. I love her so:). We talked about what happened. What I needed to do as far as meds. She felt that we would rather go on side of dealing with high calcium than low…. Although the high never came. She gave me instructions on what to do if the tetney came back…. It was go to ER for possible calcium infusion. Thankfully that never came either.
I am ok now. I literally did nothing for the rest of the day. Resting. Eating calcium rich foods as well as following the regime she gave me for meds.
So today was a reminder. Be smarter. Be prepared. Most of all know that even if one day something works, that Hypopara does what it wants when it wants. That being said, I know hope is on the horizon. Hopefully in 6 months to a year I can be on the hormone replacement. Until then, I am thankful this is (for me) a very rare moment.
This was a full week filled with work, training and hope! So lets break it down….
Training has been going well. As I said, I am not going to do every run as a run, but I am doing my training. I also am trying to be proactive and went totally the podiatrist to get a new pair of orthotics. I have suffered with plantar fasciitis in the pst, so I am trying to get ahead of it. This is also one of the reasons that i am not doing all my training as running. There is a benefit to it.
I was surprised that when I went to the podiatrist he told me that the last time I got orthotics was in 2017. I knew it had been a while, but that is definitely too long for feet like mine. I am also trying to make sure to do some daily exercises and stretches. I really want to do all i can not to deal with the pain of plantar faciatis. Fingers crossed.
As for the hope……..
This week TransCon PTH was approved by the FDA!!!!!!!!!!!!!!!! This is now the first hormone replacement therapy approved for those of us with Hypopara. I am excited because I remember how I felt when I was taking Natpara (another therapy that was pulled). That being said, I also know getting on it will be a whole other hurdle.
When I was on Natpara it required special approval because it was not FDA approved. It also was extremely expensive. It didn’t cost me anything because it was all covered by Shire (the company) seeking approval. The cost was nothing to sneeze at since it was over $10 THOUSAND dollars a month. So there’s that, but I haven’t heard the cost of TransCon yet.
I am hopeful that even if it has a high cost that I would still qualify but I’m not sure cost wise if it will be affordable. Fingers crossed. I think that I would qualify since I am slowly damaging my kidneys with my high urine calcium levels. I check my levels every 6 months. My last 24 hour urine level was 560 even though I take “low” doses of calcium and calcitriol. My levels are usually over 350, but I’ve been over 500 a few times. For those unsure what this means, for someone without Hypopara a high level is anything over 250. They give some leeway for those of us with it, but anything over 300 is considered high….. So go me:)
These high levels are the reason I have said that I am trying not to add calcium into my training but work in the constrains of what I normally take. I may adjust when I take, but I really am trying not to add more unless it is necessary to keep my serum calcium levels in check.
Balance…
Balance…
Balance…..
So looking forward to the day that I can take an injection of PTH daily and then let my body do what it is supposed to do. Until then….
Here we are:)
Are you planning to get in line to get on TransCon?
The Accidentally Running Mama 