Day 2

Another day. Another race. Actually 2 races today.

Logistics: 5K stared at 7:30. In order to get there, find parking and not feel rushed we decided to leave at 6:00. That meant an early morning waking up at 5:00. Only race mornings will get me out that early.

Hypopra: New dosage of 24 of Yorvipath seems to be working. Still, I did prepare taking calcium with me. Did not need it at all. Did not feel symptomatic either. So we will call this a win.

Races

We lined up at the start. Willa went to the front of the pack as see had fire. Worked for her as she placed number 1 in her age group. Justin and I started towards the back. This was not my goal race, so we ran together.

This was the first time my son did a big event like this and it was fun to run the race together. We chatted the miles away and kept an easy going pace.

I will say at the end, I jokingly said lets race to the finish…. So we did.

As you can see, he smoked me! But it was fun:). Finish time was 39.10 which I was happy about. This was supposed to be exactly what it was…. A run with more runs to follow.

10K

This has been my goal race. Justin and I started together, but did not run the race together. I did not for a specific time, but to run it and run it well. I feel like that is exactly what I did. I pushed. I walked some. I ran and I ran hard. It was reflected in a strong finish.

Overall, I am pleased with the way I have been running the races. Tomorrow is another day and we shall see what happens there.

After the race there was some down time, refulling and now an early night to bed.

Stay tuned……

Day 1

Oct17

Today I ran the first of my 4 races at the Bethlehem Running Festival

I signed up to do this one again because of my son and his girlfriend. They signed up and so I had to do too.

As you know, this is my first big event after starting Yurvipath. Training has been going well on it. I did just up my dose (like on Sunday). So we will see how it goes. Honestly, I am not worried since it is higher dose. Anyway, still running with extra calcium pills just in case.

Started off morning getting manicure and relaxing with my mother.

Then lunch followed by getting it together for bib pick-up. I then met my son, girlfriend and their friend at bib pick-up as they were driving all the way from AlbanyNY

This is first time running this event where I was running with others. I have met running friends during event but this was first time going with others. So special that it is family!!!

Last year I ran the trail run with 16:10 Pace finishing in 1:01:25.

This year

So far so good!

Stay tuned

3 Weeks to Go!

Sep28

It seems like training lasts forever and then before you know it the race is around the corner!

Training has been going well. While I have not been sticking to my trianing plan 100%, I feel confident in my training. I’ve been for the most part hitting all the long runs or the multple day runs.

As a reminder, I am training for the Bethlehem Running Festival which consists of 3 days, 4 events totalling 26.2 miles. I’ve done this event a few times and am excited to do it again. I wasn’t planning to do this but got talked into it by my son and his girfriend to do it with them. How could I say no?!

Todays run was 11 miles. It was hot today. I’ve been having some very minor low calcium symptoms .

Dancing muscles as I call them. Technical term is muscle spams.

I’ve had a few other very minor symptoms. I had blood work done Thursday and my levels were just at the low level. My doctor plans to up my Yorvipath dosage, but since it’s a daily injection I need to wait for new pen. The pen has 3 different dose levels and my current one is already the max for the pen

So in order to make sure that I didn’t have any issues, I put some powdered calcium in an extra water bottle that I took on the run. My thought was to just see if I needed it. Well since it was in the mid 80’s, I needed it. I didn’t wait till I felt like I needed it, I drank it preemptively which I’m glad I did. When I got home I did show minor symptoms but nothing to worry about.

The run was hard. I took it easy and tried to be consistent. The heat made the run not as enjoyable as it has been but you can’t pick your wheather. I feel like I am ready for this event, but we shall see.

After stretching, I made a protein calcium packed smoothie.

I am starting to form ideas of how I want to run this event. More on that this week. As its tine for some rest

Running, Running, Running

Aug9

I can’t believe how much Yorvipath is making a difference. Not just in my running, but my day to day life as well.

While I love what this is doing for my running, I am not just taking this to be able to run. That is just a bonus. Living with untreated PTH loss (aka Hypoparathyroidism) was like living with one hand tied behind my back. Some days both.

As I told my family, I made it look easier than it actually was because what was the point otherwise. The constant worry if my calcium would crash. The self monitoring. The leg cramps. The cramping of hands.

So even if I wasn’t running, I would happily take it. The running is just a bonus.

Training has been going well. I even hit 20 miles for the week. Runs have felt good. Legs have felt good. To be honest, I am waiting for the shoe to drop it has been going so well.

I have also been working on controlling my pace. Thinking about which of the fall races will to be my goal race.

My goal is not perfection, but to follow the plan as best I can.

So far. So good.

Jul31

2016 was the year I began tryin to take my running to the next level. I was working with a running coach. I had goals. There was no stoping me….. or so I thought.

Then, as I’ve said before, two weeks after running NYC Marathon which I crashed and burned because I went out WAY too fast I had my thyroid out. As you know this was the surgery that left me with Hypoparathyroidism.

I’ve started thinking about new goals now that I am on the Yorvipath hormone replacement therapy. It has gotten me looking at where I’ve been with my running and what I might now be able to do now that my body seems to be working again.

The following year, I wanted to push myself to run another marathon. It was hard. It was hot. I did it. I finished in 5:48:52. My marathon times only got slower from there. I usually finished shortly after 6 hours. My slowest being in 2023 at 7:14.

It was always a struggle. I had to balance the need to replenish my calcium supplies for running while taking into account my kidneys. Then there was also the issue of making sure not to allow calcium to get to low causing a crash.

I pushed myself.

Now that I am taking my Yorvipath, it appears that my body is able to once again do what is asked. Suddenly I can push to hit 12 minute paces. I still. Have much to go, but it is a start. My Garmin even recorded a best pace of 9:24. No, I can’t sustain that but the fact that I hit it is a start.

So as I get ready to train for Bethlehem festival, it is time for new goals…..

Jul26

I’ve been talking a lot about my pre-training for my October Bethlehem Running Festival races. Pre-training will officially turn into training this week.

What does the week look like now that it’s go time.

4 mile run

5 mile run

4 mile run

7 mile long run

Am I ready for this level of training? I guess we will find out. Here is what I do know……

I am down now over 15 pounds thanks to following WeightWatchers!

I am 100% off all supplements and currently my Yorvipath dosage is keeping my calcium stable. I’ve gone for several runs in the heat, with fast paces, and even shortly before my injection was due without issues. Fingers crossed this keeps up.

I will say that I feel once again like me. I will also say that after Natpara getting pulled once I got used tot his feeling that part of me worries that something similar will happen. Although I don’t think this will get pulled, I think my concern is more about insurance suddenly not approving it. It is nice not to constantly deal with effects of low calcium and have a stable level at 9.6!!!

With that being said, I do feel like I am at a good place to begin this training plan. There are no excuses. If I follow the plan it is on me. If I don’t it is on me as well. As long as my Yorvipath continues to work, I need to do my part.

So here is to beginning training….

Pre Training and Testing Limits

Jul13

Ok, first the short Yorvipath update.

Currently, I am totally off Calcitriol and only taking one dose of calcium. Last bloodwork was taken when I was taking two doses of calcium. Corrected calcium level of of 9.7. I have yet to get bloodwork with the one dose.

This weekend I went out for two runs.

Saturday

It was HOT. It was humid. I got out early, but really didn’t matter. I am in pretraining for the Bethlehem Running Festival, so I am just testing things out. I also am testing how I feel with Yorvipath. This will give me ideas for training and goals.

Got out the door and about half mile in I realized that I didn’t take my morning calcium since I left earlier than I normally take it. Figured this would bee a good test and I wasn’t worried because I had my extra calcium. So I just kept going. I will say around mile 2 I felt a little tingle in my upper arms. Could have been just due to the heat, but I took my calcium just to avoid any issues especially since I don’t know levels.

Today, I intentionally went out not taking my morning calcium as a test. Don’t worry, I was again packing my morning dose. It was still warm but not as hot as day before. July humidity that’s for sure. My today was just to run a decent pace and run the whole thing without walking. While I did again stop to take calcium around 2 miles, I did pretty much run the whole way. I’m not sure if I necessarily needed calcium physically as much as mentally I needed it. Better safe than sorry.

Today was a beautiful run with negative splits, pushing myself but still feeling I could push more.

I am still not sure if the heart rate was right today as that seems low. My resting heart rate is normally in 70’s an I’ve had to watch heart rate from going too high previously. So something to watch. Other than that I really couldn’t have asked for better run.

Let’s see where we go from here.

New Beginnings.

Jul6

Sorry that I didn’t update sooner. My keyboard died and I needed to get a new one:)

First world problems. I know.

Anyway 2 weeks on Yorvipath. I’ve gone for blood work twice. They have both been good. Corrected calcium levels were in the mid 9’s. For those not versed in calcium levels, anything under 8.5 is low. But I have to say it is more than just calcium numbers. I feel like my body is working again. Probably because Yorvipath is actually replacing the hormone my body is missing.

I am still in the beginning stage. I am adjusting dosages while lowering daily pill intact. Exciting stuff is that I am no longer taking any calcitrol and still in the 9’s!!!!! I am lowering my dosage of calcium supplements. The goal is to stop them too. I am down to 2 doses a day. More blood work to follow. More adjustments to follow, but it is already worth it.

Right now the biggest side effect I have is bruising from blood work and redness around injection sites. You inject in either belly or thighs and rotate sites. I have also had some leg pain, but not sure if that is from just all I’ve been recently doing. Monitoring.

So now……

WHAT HAVE I BEEN DOING?

Well the first week, I admit, I took it very easy. I did not work out. I also had a busy week with school, so I didn’t have a lot of extra time anyway. Then after a week an half, I started at it.

One night I wanted to just run. So I did!

I felt winded. I felt like I pushed myself, but what I didn’t feel was the Hypopara symptoms.

Then I went for a 4 mile walk/run with a friend. I followed that with going and getting ten forty bags of mulch and doing some gardening. IN THE HEAT! I hydrated. I took breaks. I did all the things anyone would do and I felt like I could do it!

Then the next day I went for a three mile run on my own. I tested out a running vest. I ran pretty much the whole thing except for walking to drink as still figuring out the vest thing. No symptoms.

Then I did some more gardening and mulching.

Then the next morning I did more.

All the while not feeling ANY symptoms of low calcium.

So here is to new beginning!

Here We Go

Jun21

If you’ve been here a while, you know about my Hypoparathyroidism. You know the struggles. You know I’ve been waiting and hoping for getting on a hormone replacement therapy.

I started the process. I expected to have to fight my insurance company for approval. I have been pleasantly surprised. I got the call that I was approved.

Then I got a call on Monday that it would be shipped this week. I spoke with the nurse who walked me through the process of the daily injections. I spoke to my doctor and was ready to go.

Logistics:

Went for blood work prior to starting. (Side-note – what I found funny is that my levels were good, but I was still symptomatic with muscle spasms that night)

I am starting on the middle dosage injection.

Going from .25 Calcitiol three times a day to once.

Keeping calcium as normal while body gets used to it.

Going for blood work in three days. Will touch base with doctor and go from there.

Physically

Just going by feel now. Took first injection this evening at 8 pm. I really had to think when I would take it as has to be same time every day. Mornings too crazy especially now while this is all too new. Plus I am usually home in evening.

Mentally

I’m worried about low calcium during transition.

I’m worried about high calcium during transition.

I’m excited. I’m nervous. I’m anxious. I’m all over the place.

At the heart of this though, I am looking forward to my body working the way it should again.

It’s go time

Slow and Steady

Jun18

We are searching for that magic pill. Some are even opting for an injection instead. I get it. Sometimes it is necessary. Sometimes there are medical reasons that would require such extreme measures. Sometimes there isn’t except that loosing weight is hard. I’ve thought about other options, but as I mentioned before I signed up for weight watchers at end of April.

I am the type of person that needs a plan. In my 40’s when I lost 20 pounds (before gaining it all back and more), I used the South Beach Diet. While it helped, it is not a healthy diet for me nor did I want so much a diet as I wanted to retrain my brain/body to eat healthy.

So here we are 7 weeks in and 11.4 pounds down.

As you can see from my step goal, I am doing well. Probably because as a PreK teacher, I am rarely off my feet during the day. So that seems to be working in my favor. I am trying to be steady in working out. I, honestly, have not been running since the Brooklyn Half. I’ve been walking, indoor biking, and weights. I have not been as steady on that as I would like, but I do know that I am gearing up to start my Hat Trick Training at end of July. So theres that.

I like a plan. I like an easy plan. I have found the plan that is now working for me. Tracking which I’ve tried before and never stuck with seems to be working for me now. I think the overall approach to Weight Watchers is what is working for me. I’m not just tracking my food. I am assessing and thinking about what foods I am eating. The daily points have made me think, “is it worth it” when thinking about food choices. I am also encouraged to move more to get more points!

I still don’t feel like I am necessarily on a diet, but on a healthy eating path. When I pack my lunch, it is both tasty but also weeding out the easy to grab processed foods.

That being said, I am still eating a cookie which I track. The thing is I am thinking just one cookie and not several. A small piece of ice cream cake and not a full slice. I don’t want to deprive myself. I just want to find the balance.

I’m not going to lie though…… I know hitting my goal weight is going to take time. I know it’s going to be harder than I want it to be. I know. I know. I know….. but, but , but ……….I am now one pound less than I weighed in last seen 2019. So that is a win! I am also a little less than 5 pounds away from my first goal weight. Then after that 15 more.

It is going to take time. The weight didn’t go on over night, so I can’t expect it to come off overnight either.

Onward….

The Accidentally Running Mama

Run, Bike, Swim and Have a Life!