I had been thinking about challenges/goals for the coming year. I wasn’t sure what it would be.
The goal came to me.
I had forgotten that I put in for the NYC Half lottery. I was reminded, when I got the email.
I wasn’t sure how happy I was because logistically NYC events are a bit of a pain. Worth it, but still a pain. The exciting part is that 2 of my running friends also got in. So misery loves company.
I’ve been thinking about goals for event now too. I’m thinking if I could finish the Bethlehem Running Festival in 2:41:08 after running 3 other races that weekend, I would train for a possible 2:30 half. We shall see. We shall see.
Then after wrapping my head around that, two of my suns have roped me into a 6K Spartan race. Fortunately that won’t be till summer. So one goal at a time.
I’ve been talking a lot about my pre-training for my October Bethlehem Running Festival races. Pre-training will officially turn into training this week.
What does the week look like now that it’s go time.
4 mile run
5 mile run
4 mile run
7 mile long run
Am I ready for this level of training? I guess we will find out. Here is what I do know……
I am down now over 15 pounds thanks to following WeightWatchers!
I am 100% off all supplements and currently my Yorvipath dosage is keeping my calcium stable. I’ve gone for several runs in the heat, with fast paces, and even shortly before my injection was due without issues. Fingers crossed this keeps up.
I will say that I feel once again like me. I will also say that after Natpara getting pulled once I got used tot his feeling that part of me worries that something similar will happen. Although I don’t think this will get pulled, I think my concern is more about insurance suddenly not approving it. It is nice not to constantly deal with effects of low calcium and have a stable level at 9.6!!!
With that being said, I do feel like I am at a good place to begin this training plan. There are no excuses. If I follow the plan it is on me. If I don’t it is on me as well. As long as my Yorvipath continues to work, I need to do my part.
Currently, I am totally off Calcitriol and only taking one dose of calcium. Last bloodwork was taken when I was taking two doses of calcium. Corrected calcium level of of 9.7. I have yet to get bloodwork with the one dose.
This weekend I went out for two runs.
Saturday
It was HOT. It was humid. I got out early, but really didn’t matter. I am in pretraining for the Bethlehem Running Festival, so I am just testing things out. I also am testing how I feel with Yorvipath. This will give me ideas for training and goals.
Got out the door and about half mile in I realized that I didn’t take my morning calcium since I left earlier than I normally take it. Figured this would bee a good test and I wasn’t worried because I had my extra calcium. So I just kept going. I will say around mile 2 I felt a little tingle in my upper arms. Could have been just due to the heat, but I took my calcium just to avoid any issues especially since I don’t know levels.
Not too bad:)
Today, I intentionally went out not taking my morning calcium as a test. Don’t worry, I was again packing my morning dose. It was still warm but not as hot as day before. July humidity that’s for sure. My today was just to run a decent pace and run the whole thing without walking. While I did again stop to take calcium around 2 miles, I did pretty much run the whole way. I’m not sure if I necessarily needed calcium physically as much as mentally I needed it. Better safe than sorry.
Today was a beautiful run with negative splits, pushing myself but still feeling I could push more.
I am still not sure if the heart rate was right today as that seems low. My resting heart rate is normally in 70’s an I’ve had to watch heart rate from going too high previously. So something to watch. Other than that I really couldn’t have asked for better run.
Sorry that I didn’t update sooner. My keyboard died and I needed to get a new one:)
First world problems. I know.
Anyway 2 weeks on Yorvipath. I’ve gone for blood work twice. They have both been good. Corrected calcium levels were in the mid 9’s. For those not versed in calcium levels, anything under 8.5 is low. But I have to say it is more than just calcium numbers. I feel like my body is working again. Probably because Yorvipath is actually replacing the hormone my body is missing.
I am still in the beginning stage. I am adjusting dosages while lowering daily pill intact. Exciting stuff is that I am no longer taking any calcitrol and still in the 9’s!!!!! I am lowering my dosage of calcium supplements. The goal is to stop them too. I am down to 2 doses a day. More blood work to follow. More adjustments to follow, but it is already worth it.
Right now the biggest side effect I have is bruising from blood work and redness around injection sites. You inject in either belly or thighs and rotate sites. I have also had some leg pain, but not sure if that is from just all I’ve been recently doing. Monitoring.
So now……
WHAT HAVE I BEEN DOING?
Well the first week, I admit, I took it very easy. I did not work out. I also had a busy week with school, so I didn’t have a lot of extra time anyway. Then after a week an half, I started at it.
One night I wanted to just run. So I did!
I felt winded. I felt like I pushed myself, but what I didn’t feel was the Hypopara symptoms.
Then I went for a 4 mile walk/run with a friend. I followed that with going and getting ten forty bags of mulch and doing some gardening. IN THE HEAT! I hydrated. I took breaks. I did all the things anyone would do and I felt like I could do it!
Then the next day I went for a three mile run on my own. I tested out a running vest. I ran pretty much the whole thing except for walking to drink as still figuring out the vest thing. No symptoms.
Then I did some more gardening and mulching.
Then the next morning I did more.
All the while not feeling ANY symptoms of low calcium.
Yesterday I met up with a running buddy for our last 10 miler before Brooklyn. Two weeks to go. Training has been going ok, but as I’ve mentioned I’ve been having some low calcium issues. Nothing to write home about, but I know I’ve been low. When you know you know.
So Dawn and I set off. We had no plan or pace, but we kept each other in check…. Kept from running too fast, too slow or too much walking. We met at a park and got looped back around mile 6. I have been adding calcium/cacitriol at this point. I could tell that it was time as I was getting a few finger tingles, but nothing too bad. Took my pills and refilled water and off we went.
I started lopping back to the park only for Dawn to question. I had gotten confused and then was sad to realize that we had more miles because we would have gotten bak at 8 not 10. Oops…. My bad.
We change it up and get back to the park at 9.75 and we get it to 10 in the park. All is good although I’m happy to be done, but nothing too bad.
We take the required picture:)
Then we head off to our cars to get water and at this point I’m thinking I want to take some more calcium. I had been feeling tingles in hands during end of run and now was feeling it in my upper arms.
As we are talking, I get my pills. I start with 1 calcium. I immediately rethink and decide to take 1 more and some more calcitiol which I might not have needed but I was pretty sure a crash was coming.
I was right.
Apparently I said to Dawn, “It’s coming.”
She thought, “What’s coming?”
Then she saw.
Both hands and arms were full on tetany. I thought best option would be to get home. I asked Dawn to drive me as we were only a few minutes away and thought maybe just to add some more calcium. Plus I would be home:)
While she may not have been calm on the inside, she remained cool, calm and collected. As we got to my house, I used voice command to call hubby who came out to get me. When I got inside, I sat took some more calcium and slowly…. Slowly……. My body released.
I texted with doctor…. Continued to add some extra calcium for remaining of the day and all is well.
In retrospect…..
It was much warmer than I realized. I even got some color from the sun. Heat is not my friend.
I had been dealing with low calcium symptoms during the week and probably started in a deficient.
Again – it was hotter than I realized
Those without Hypopara (my friends and spouse included) might have been shocked by what happened. I was not. Although it was worse than the last crash.
It is what it is.
Funny not funny during the run, Dawn and I spoke of my last crash. I had said to her that wouldn’t it be nice to have a monitoring device that could tell you when your levels were off like a diabetic.
Yup…. Wouldn’t it be nice
We also talked about making sure that I could easily get to my pills without having to worry about opening something.
Anyway this did put things in perspective. Yes, I will rethink race day. I will take into account weather. I will make sure to have levels in check prior to race day. I will make sure to put info on back of race bib and will make sure to know where medical tents are.
Most of all, I will not let this stop me. I will just make sure to be smart.
Perfect timing, I already had an appointment for a Hypopara study that I am participating in. I am doing my 24 hour urine collection today followed by some testing tomorrow. I will also get to see my Dr who I will discuss what I need to do.
Maybe the secret isn’t being the best of the best.
Maybe the secret isn’t running harder or faster.
Maybe the secret isn’t anything other than…..
Just to keep plugging along. To keep moving. To not give up. To just keep moving.
Down to 6 weeks till Brooklyn.
It’s not exciting or fancy, but I am plugging along.
That is what I’m doing.
It’s not bold or exciting, It’s just getting runs, biking and cross training.
It’s just not giving up.
Just plugging along. Doing my thing. I’ve been “following” a training plan, but I’ve been following my way. Maybe doing a indoor bike run instead of mid week run. Changing up runs, but getting them done.
Sunday, I went for my long run. Normally a long run would be done at a much slower pace, but I had a plan. I would walk the first mile. Then I would do 5 miles at what I might think of doing at the half and then slow for last mile. For the most part, I stuck to the plan.
Mission accomplished.
Here is the thing though, I needed to remind myself to control my pace…. And I did. I ran the paces that I wanted. The only change I made was was the last mile. Instead of walking it, I ran like it was the finish and then walked the last quarter mile.
The best part of this run is that I felt like I could keep going. So there is that.
I did not run it this year, but happily tracked several friends who did. It’s nice to be on the support team only tracking. Although I must say for a half, the NYC half is a great race. This year they had excitement of running over the Brooklyn Bridge. To to say that made me a little jealous.
That being said, even if I was scheduled to run it I would have been sidelined as I ended up having a stomach bug. You can run through a lot, but a stomach bug isn’t one…. At least not for me. I didn’t even make it out for my 6 mile run as I was passed out on the couch all day.
After sleeping all day, then going to be for a solid 10 hours, I woke up feeling better. I took the day off of work. My appetite wasn’t total back but did have energy even though I had some symptoms of low calcium this morning. It was a good day to catch up on cleaning out and up in a way you can only do when on one is home to get in your way… LOL
Anywho…. Back to the running……
I’ve been thinking and looking at my last few half marathon times. They have all been in right around 3 hours.
So the question is can I do better? Do I want to push to do better? And if so, I need to keep going with my training.
Yesterday was National Quitter’s Day. The day most of us quit our New Year’s resolutions. Since I didn’t make any resolutions and started on December 30th, I’m still going strong. As said previously, it is all about progress not perfection. It is all about being healthier.
It’s funny too because I’ve actually been enjoying eating healthier. It has been making me think about my food choices which has been more satisfying than just grabbing things without thought. I’ve been taking salads for most of my lunches and they have been so good.
Love this container too!
For snacks, I’ve forgotten how much I enjoy cottage cheese with fresh fruit. I’ve also had to rethink drinking my calories. More water even though that was usually my drink of choice. It also helps that for Christmas that I got a Nutribullet.
I think I mentioned the app Reverse Health. I have now completed 11 days of my 30 day challenge. I am starting from the beginning which is where I am at. While I can go out and run pretty much any day, my overall fitness has not been tended to. So back to basics.
So far so good.
I’ve already noticed changes. My lower back pain has improved as have my flexibility in my hips which were very tight. These are the things that I need to work on. I am also working on my running. Today I ran three miles doing some fartleks. No particular speed, just to test and see how I would feel.
On top of that I have lost almost 3 pounds which is also part of the agenda. But slow and steady is the goal.
Progress not perfection.
On top of this, I also through the lottery got into the NYC Brooklyn Half which is in May. So all that I’m doing now is the pre-training for the Half.
Today’s run was definitely a mental one. Yes, it was physical because I was going for between 8-9 miles; but I was in my head a lot before lacing up.
Every run is a mental run from the procrastinating to the lacing up and getting out the door. There are so many reasons not to run. There are so many reasons to push yourself to get out and run too.
I needed to get out of my head today. I needed to remind myself that I can do this. I would be lying if I didn’t say that last week scared the crap out of me. I would be lying if it didn’t cross my mind to stop pushing so hard, to stay home and just say I’m throwing in the towel. While on my Hypopara journey, I have had tetany before. I have had muscle spasms. I have had the tingles, the brain fog, and been symptomatic. The difference is that I always felt like I still was in control as these symptoms were more annoying than anything else.
I won’t go into again, but last week’s calcium crash was bad. It scared me. It stopped me in my tracks. It reminded me that this is more than just annoying. This is real and needs to be taken seriously. I liked to pretend that it wasn’t and wouldn’t stop me. Honestly, I’ve been more worried about my kidney health than the actual Hypopara symptoms. I realized that I needed to take BOTH as seriously as I should.
This week was a stressful week at work. It was also the first week without summer hours. No longer leaving at 3, but 1. Doesn’t sound like a lot, but for those who don’t know I am also a childcare teacher. This means I am on my feet and really in constant motion both mentally and physically all day.
I wanted to run this week, but I didn’t. I could tell that I wasn’t ready. Yesterday I just didn’t have the energy. I had stayed up too late baking a cake. Oh yeah, I’m also a home baker. So yesterday I didn’t run.
This morning no excuses…. Except I was nervous. I prepared for my run giving myself an half an hour for morning meds to kick in. I filled my water bottles. I have the Fitletic running belt. So I filled 2 with water and one with electrolytes. I then put into the belt some kind nut bars, extra meds, and off I went. I also put back on my running Id that has contact info and also a “Hypoparthyroidism check calcium.” I had gotten a new band and never put it back on. I got complacent.
I started off running streets close to home making grids for the first three miles. I stayed close to home for the remainder of the run too. Not going too far out which sometimes I do for a longer run. Today was about keeping a comfortable pace. Walking when needing to, but not just because I want to. It was about listening to my body. At around 5 miles, I added some full in the form of some of the kind bar. At around 6.5 miles, I took 250 of calcium. Half of my normal afternoon dose. Then just kept moving.
I finished. I got to 8.5. At the end of the run I was thinking of doing a few streets to get to 9, but I figured this was enough……. And it was!
Mentally my head is back in the game. Mentally I know that I can do this but have to be smarter.
When you are a healthy runner, you can still run into issues with your training. You can over train. You can become dehydrated. You do so many things wrong, but usually there is some wiggle room. When you have Hypopara (or any other health issue), you might not have so much wiggle room. Sometimes you forget that too.
Today was a day to remind me of that. A day where I got the not so gentle reminder that there isn’t as much wiggle room as I would like to pretend. It is easy to forget these things. It is easy to pretend that you just take extra calcium and meds just because. Especially when for the most part you are stable. Yes, you sometimes get gentle reminders that you need to take some more meds….. a “dancing” of your leg muscles, a little tingle here or there, but nothing crazy.
Training has been going well. I haven’t necessarily been following the plan perfectly, but enough that I feel comfortable with it. Enough to know that I can run a half in 3 weeks and continue with it to run the Hat Trick in October. I’ve done multiple back to back runs. Some of them have even been a run in the evening followed by run the next morning. All Good.
Yesterday I went for a training run with my friend. We did an easy 6 miles. No issues. Run itself was comfortable and left feeling like I could run more. We did it!
This morning I left for another 5 miles. I was adding some hills, since the Hat Trick has lots of them. I wasn’t going to race. I wasn’t going to be fast. My goal was to try to be steady. Figure out a walk/run plan. I was about half mile out when I realized that I forgot my water. It was hot and humid, but I figured lets just keep going. So I did…..
Like all runners, I monitored the way my body was feeling during the run. Today I was really just focused on completing the miles, watching pace to make sure I wasn’t running too fast, and trying a new walk/run plan (8 to 1). I was trying to run a smart training run.
During the run there were times I felt the tingles that sometimes come when running. I adjusted. I just wanted to push to 5 miles watching my heart rate and pace. I’ve felt these tingles before. These are just little warning bells, but nothing crazy. Once I hit the 5 miles, I walked.
I had 1/2 mile to go and figured a walk would be a good cool down. The tingles became more intense, but again nothing crazy. As soon as I got in the house I made my ice water with electrolyte powder. While sometimes after a hard workout I will take some extra calcium, thankfully today I also took an extra Calcitriol. Minutes later both my hands seized up with tetney or as I call it, the claw hand. I could not open. I could not close. I also having severe tingling and pressure in both arms and lips/face.
I admit it, I got very nervous especially because I was home alone and would be for hours. I wasn’t sure if I was going to pass out. I asked Siri to call the friend I ran with yesterday. She is familiar with my issues and as a bonus she is a PT who understands the body. I tied to be calm, but I think she knew I was freaked out and how I was feeling as I was swearing up a storm. I even gave her my address and unlocked the back door just in case I stopped talking to her. This was no joke. This was the worst crash I’ve ever had…. NO I AM NOT BEING DRAMATIC. Those who have been here understand.
Luckily as we stayed on the phone with my friend little by little my hands became my own. I would happily tell her, “my pinky and tall finger are moving!” It slowly released me after quickly grabbing on. She said she knew when I was feeling better when I stopped swearing.
Once my body was my own again, I texted my doctor. She called minutes after getting my text. I love her so:). We talked about what happened. What I needed to do as far as meds. She felt that we would rather go on side of dealing with high calcium than low…. Although the high never came. She gave me instructions on what to do if the tetney came back…. It was go to ER for possible calcium infusion. Thankfully that never came either.
I am ok now. I literally did nothing for the rest of the day. Resting. Eating calcium rich foods as well as following the regime she gave me for meds.
So today was a reminder. Be smarter. Be prepared. Most of all know that even if one day something works, that Hypopara does what it wants when it wants. That being said, I know hope is on the horizon. Hopefully in 6 months to a year I can be on the hormone replacement. Until then, I am thankful this is (for me) a very rare moment.
The Accidentally Running Mama 