I had been thinking about challenges/goals for the coming year. I wasn’t sure what it would be.
The goal came to me.
I had forgotten that I put in for the NYC Half lottery. I was reminded, when I got the email.
I wasn’t sure how happy I was because logistically NYC events are a bit of a pain. Worth it, but still a pain. The exciting part is that 2 of my running friends also got in. So misery loves company.
I’ve been thinking about goals for event now too. I’m thinking if I could finish the Bethlehem Running Festival in 2:41:08 after running 3 other races that weekend, I would train for a possible 2:30 half. We shall see. We shall see.
Then after wrapping my head around that, two of my suns have roped me into a 6K Spartan race. Fortunately that won’t be till summer. So one goal at a time.
Day3 was the warmest of all three days, but a perfect day for running.
Not too cold.
Not to Hot.
Just right!
Luckily I only packed shorts to run in because I really wasn’t prepared. Day 1 & 2, I wore the long sleeved race shirts. At the trail event, I wore the bright orange from last year. Then Saturday, I wore this years grey. I have to say while nice, I think a bolder color is better.
Sunday, I ended up going with short, tankand running sleeves. Perfection.
As you can see, I started in the back…….In the way way way back. The goal for me was tru a smart race. While I had no concrete goal, I did plan to start around the 2:45 pacer and take it from there.
I started with my son and his friend. This was both their first marathons. Justin has not been running long and his training was lots of hiking, climbing, and. Some running. His longest run was 10 miles. I wanted him to run conservative as I knew he would finish either way, but I didn’t want it to be the hard way.
So we ended up starting together behind the 3 hour pacer. We did our own thing. We walked when needed and I tried to keep conversational. There were some times where I would point out we were running in the 10’s. We pushed when needed. We walked some of the hills. We ran and most of all, we had a good time!
Then at mile 11, I told them to run the paces that they wanted. The ran ahead and I kept doing my thing.
By this point we were running near the 2:45 pacer again. so I thought maybe, just maybe it would happen.
Another day. Another race. Actually 2 races today.
Logistics: 5K stared at 7:30. In order to get there, find parking and not feel rushed we decided to leave at 6:00. That meant an early morning waking up at 5:00. Only race mornings will get me out that early.
Hypopra: New dosage of 24 of Yorvipath seems to be working. Still, I did prepare taking calcium with me. Did not need it at all. Did not feel symptomatic either. So we will call this a win.
Races
5K
We lined up at the start. Willa went to the front of the pack as see had fire. Worked for her as she placed number 1 in her age group. Justin and I started towards the back. This was not my goal race, so we ran together.
This was the first time my son did a big event like this and it was fun to run the race together. We chatted the miles away and kept an easy going pace.
I will say at the end, I jokingly said lets race to the finish…. So we did.
As you can see, he smoked me! But it was fun:). Finish time was 39.10 which I was happy about. This was supposed to be exactly what it was…. A run with more runs to follow.
10K
This has been my goal race. Justin and I started together, but did not run the race together. I did not for a specific time, but to run it and run it well. I feel like that is exactly what I did. I pushed. I walked some. I ran and I ran hard. It was reflected in a strong finish.
Overall, I am pleased with the way I have been running the races. Tomorrow is another day and we shall see what happens there.
After the race there was some down time, refulling and now an early night to bed.
Today I ran the first of my 4 races at the Bethlehem Running Festival
I signed up to do this one again because of my son and his girlfriend. They signed up and so I had to do too.
As you know, this is my first big event after starting Yurvipath. Training has been going well on it. I did just up my dose (like on Sunday). So we will see how it goes. Honestly, I am not worried since it is higher dose. Anyway, still running with extra calcium pills just in case.
Started off morning getting manicure and relaxing with my mother.
Then lunch followed by getting it together for bib pick-up. I then met my son, girlfriend and their friend at bib pick-up as they were driving all the way from AlbanyNY
This is first time running this event where I was running with others. I have met running friends during event but this was first time going with others. So special that it is family!!!
Last year I ran the trail run with 16:10 Pace finishing in 1:01:25.
I can’t believe how much Yorvipath is making a difference. Not just in my running, but my day to day life as well.
While I love what this is doing for my running, I am not just taking this to be able to run. That is just a bonus. Living with untreated PTH loss (aka Hypoparathyroidism) was like living with one hand tied behind my back. Some days both.
As I told my family, I made it look easier than it actually was because what was the point otherwise. The constant worry if my calcium would crash. The self monitoring. The leg cramps. The cramping of hands.
So even if I wasn’t running, I would happily take it. The running is just a bonus.
Training has been going well. I even hit 20 miles for the week. Runs have felt good. Legs have felt good. To be honest, I am waiting for the shoe to drop it has been going so well.
I have also been working on controlling my pace. Thinking about which of the fall races will to be my goal race. Consistency will be the key.
My goal is not perfection, but to follow the plan as best I can.
2016 was the year I began tryin to take my running to the next level. I was working with a running coach. I had goals. There was no stoping me….. or so I thought.
Then, as I’ve said before, two weeks after running NYC Marathon which I crashed and burned because I went out WAY too fast I had my thyroid out. As you know this was the surgery that left me with Hypoparathyroidism.
I’ve started thinking about new goals now that I am on the Yorvipath hormone replacement therapy. It has gotten me looking at where I’ve been with my running and what I might now be able to do now that my body seems to be working again.
The following year, I wanted to push myself to run another marathon. It was hard. It was hot. I did it. I finished in 5:48:52. My marathon times only got slower from there. I usually finished shortly after 6 hours. My slowest being in 2023 at 7:14.
It was always a struggle. I had to balance the need to replenish my calcium supplies for running while taking into account my kidneys. Then there was also the issue of making sure not to allow calcium to get to low causing a crash.
I pushed myself.
Now that I am taking my Yorvipath, it appears that my body is able to once again do what is asked. Suddenly I can push to hit 12 minute paces. I still. Have much to go, but it is a start. My Garmin even recorded a best pace of 9:24. No, I can’t sustain that but the fact that I hit it is a start.
So as I get ready to train for Bethlehem festival, it is time for new goals…..
I’ve been talking a lot about my pre-training for my October Bethlehem Running Festival races. Pre-training will officially turn into training this week.
What does the week look like now that it’s go time.
4 mile run
5 mile run
4 mile run
7 mile long run
Am I ready for this level of training? I guess we will find out. Here is what I do know……
I am down now over 15 pounds thanks to following WeightWatchers!
I am 100% off all supplements and currently my Yorvipath dosage is keeping my calcium stable. I’ve gone for several runs in the heat, with fast paces, and even shortly before my injection was due without issues. Fingers crossed this keeps up.
I will say that I feel once again like me. I will also say that after Natpara getting pulled once I got used tot his feeling that part of me worries that something similar will happen. Although I don’t think this will get pulled, I think my concern is more about insurance suddenly not approving it. It is nice not to constantly deal with effects of low calcium and have a stable level at 9.6!!!
With that being said, I do feel like I am at a good place to begin this training plan. There are no excuses. If I follow the plan it is on me. If I don’t it is on me as well. As long as my Yorvipath continues to work, I need to do my part.
If you’ve been here a while, you know about my Hypoparathyroidism. You know the struggles. You know I’ve been waiting and hoping for getting on a hormone replacement therapy.
I started the process. I expected to have to fight my insurance company for approval. I have been pleasantly surprised. I got the call that I was approved.
Then I got a call on Monday that it would be shipped this week. I spoke with the nurse who walked me through the process of the daily injections. I spoke to my doctor and was ready to go.
Logistics:
Went for blood work prior to starting. (Side-note – what I found funny is that my levels were good, but I was still symptomatic with muscle spasms that night)
I am starting on the middle dosage injection.
Going from .25 Calcitiol three times a day to once.
Keeping calcium as normal while body gets used to it.
Going for blood work in three days. Will touch base with doctor and go from there.
Physically
Just going by feel now. Took first injection this evening at 8 pm. I really had to think when I would take it as has to be same time every day. Mornings too crazy especially now while this is all too new. Plus I am usually home in evening.
Mentally
I’m worried about low calcium during transition.
I’m worried about high calcium during transition.
I’m excited. I’m nervous. I’m anxious. I’m all over the place.
At the heart of this though, I am looking forward to my body working the way it should again.
We are searching for that magic pill. Some are even opting for an injection instead. I get it. Sometimes it is necessary. Sometimes there are medical reasons that would require such extreme measures. Sometimes there isn’t except that loosing weight is hard. I’ve thought about other options, but as I mentioned before I signed up for weight watchers at end of April.
I am the type of person that needs a plan. In my 40’s when I lost 20 pounds (before gaining it all back and more), I used the South Beach Diet. While it helped, it is not a healthy diet for me nor did I want so much a diet as I wanted to retrain my brain/body to eat healthy.
So here we are 7 weeks in and 11.4 pounds down.
Steady…. Slow but steady
As you can see from my step goal, I am doing well. Probably because as a PreK teacher, I am rarely off my feet during the day. So that seems to be working in my favor. I am trying to be steady in working out. I, honestly, have not been running since the Brooklyn Half. I’ve been walking, indoor biking, and weights. I have not been as steady on that as I would like, but I do know that I am gearing up to start my Hat Trick Training at end of July. So theres that.
I like a plan. I like an easy plan. I have found the plan that is now working for me. Tracking which I’ve tried before and never stuck with seems to be working for me now. I think the overall approach to Weight Watchers is what is working for me. I’m not just tracking my food. I am assessing and thinking about what foods I am eating. The daily points have made me think, “is it worth it” when thinking about food choices. I am also encouraged to move more to get more points!
I still don’t feel like I am necessarily on a diet, but on a healthy eating path. When I pack my lunch, it is both tasty but also weeding out the easy to grab processed foods.
Breakfast, lunch and snack for the day.
That being said, I am still eating a cookie which I track. The thing is I am thinking just one cookie and not several. A small piece of ice cream cake and not a full slice. I don’t want to deprive myself. I just want to find the balance.
I’m not going to lie though…… I know hitting my goal weight is going to take time. I know it’s going to be harder than I want it to be. I know. I know. I know….. but, but , but ……….I am now one pound less than I weighed in last seen 2019. So that is a win! I am also a little less than 5 pounds away from my first goal weight. Then after that 15 more.
It is going to take time. The weight didn’t go on over night, so I can’t expect it to come off overnight either.
Today, June 1st, is Wold Hypoparathyroidism Awareness Day.
If your not part of Hypoara community, you probably never heard of it. That’s ok, I never heard of it till 9 years ago when I joined it after my thyroidectomy in November of 2016. I joined the estimated 70,000 to 100,000 individuals in the United States who deal with this…
Told you I was rare:)
Anyhoo…
As I told my family when I had a serious calcium crash recently, I carry it well. Or at least I think I do. Maybe I don’t, but it’s my story to tell. So I go with I carry it well.
I do what I need to do, deal with what I need to deal with, and still know that there are those with much worse complications than I have.
I am lucky.
Yes, I have to take my daily pills
Yes, I deal with low (Hypocalcaemia) calcium symptoms….
I am lucky because due to the location I live in, I have been able to learn from and be treated by an endocrinologist who not only is familiar with this disorder, but also is a leader in the field. She runs FDA studies which I’ve been also lucky enough to participate in. I am currently half way through a 3 year study on how Hypoparthyroidism effects the body. I feel like without her guidance, I would be in a much worse place physically as the I saw 2 other endocrinologists since being Hypopara. The first one I saw right after diagnosis had no idea and had me taking way too much calcitriol. My first 24 hour urine which I got after starting with My current endo had levels almost 600. (Normal is under 300. For those with Hypopara, try to keep under 350 which I am)… High urine calcium levels can lead to kidney issues.
Anyway…. Many people ask what exactly is Hypoparthyroidism as they say they take calcium too.
Many people ask, “What does this mean?”
Here is the science part:
The Parathyroid’s job is to create PTH (Parathyroid Hormone). With HypoParathyroidism, your body no longer produces this hormone which controls calcium levels in your blood as well as phosphorus and vitamin D too.
The reality:
Without PTH, I need to regulate my calcium among other things through prescriptions and supplements….
Calcium and calcitriol
I need to do this multiple times a day to keep levels up. It is a balancing act as the healthy body normally adjusts these things on their own. Also needed levels change depending on activity levels, stress and daily factors up to and including the weather. It is not one size fits all. As I’ve said before, think diabetic adjusting levels without way to check insulin levels since calcium can only currently be checked with bloodwork.
Symptoms/levels can and will appear/change whenever they feel like it. Symptoms from brain fog, muscle cramping and spasms,fatigue and more…. I work very hard to be business as usual
Sometimes that doesn’t work out so well.
A crash like this is a rare occurrence for me. This was a bad one. My doctor understood why I had my friend drive me home and not go to ER for calcium infusion. As I said to her, I knew I had the meds at home to handle it and was afraid at how long it would take to be treated/understood at hospital. The concern for extreme crash would be “cardiac event” as she called it. So there’s that, but I knew the meds were working, and I do not play with my health even if it seems like I do. I was in contact with her immediately after and she directed me in my recovery.
At my last visit, we did discuss how while this crash was bad how I have been more symptomatic recently….more the tingles, muscles cramps and such. We are starting process to get me on the newly FDA approved hormone replacement therapy. It will be a song and dance to get approval as it will be no surprise…… IT IS MAD EXPENSIVE. Like big, big, big expensive.
So we shall see, but there is hope soon…. crossing fingers and toes!
So on this World Hyporathyroidism Day, I share with you that I know we all have our own struggles, that we are all rare, and that most of all we just keep need to move forward.
The Accidentally Running Mama 