Tag Archive | natpara

Great Expectations

We all have them. We all have the thought of how things should be. The what if? The maybe it will happen this way. Maybe it should happen this way. The if then thought process.

What happens when things don’t live up to these expectations which more often than not is true. Sometimes these expectations are not based in reality. Sometimes we don’t like the reality. Sometimes we ignore the reality to our own peril. Sometimes we think our expectations weren’t so lofty, but in reflection we realize that we didn’t prepare for the reality of life and how it doesn’t always measure up to our great expectations. That’s ok too because while not what we thought it would be, sometimes reality isn’t as bad as we think as long as we can let go of the expectations

I’ll be honest. I’ve been on my Natpara for a few months now. It has been amazing the changes. On face value, I could not ask for more but… I had great expecations. I thought that taking it would be like a reset to prior to my surgery and I could just take one shot a day and go about my life.

Reality…..The one shot a day has given me so much back including being more friendly on my kidneys. No more muscle cramps, muscle spasms, dead tired beyond tired, and all the other fun side effects of being Hypopara. Reality is pretty darn good. My expecations though were overblown. I thought that I would no longer need to keep a pill box and reminder to take my calcium and other supplements. Yes, I’m taking much less calcium now but I thought I’d be taking none.

And while my running has improved exponentially, I am still out of shape. I still need to walk. I am still not where I was or thought I would be. I still need a reset of expectations. Expectations are not reality but a dream. They are goals. They are a driving force, but when life doesn’t live up to them you have two choices. You can choose to be disappointed or you can choose to look around, accept and appreciate the reality of where you are on a given point in your life.

Sometimes with running, we get so focused on the hitting a certain time, training a certain way, or realizing that maybe we can get to the finish line but we must adjust our expectations to do so. It’s easier said than done, but reality is what it is. Training will be what it will be and each person must do what is right for them and their body. Sometimes it’s all about what we are willing to accept. I have learned to accept a 6 hour marathon time when once I had dreams of a 4:15. If I had not faced the reality of where my body was last year, I would have been disappointed with that 6 plus our time but to date it was my favorite marathon.

Truthfully in the recess of my mind, I still dream of the 4:30/4:15 marathon. Reality is that will never happen for various reasons. Although I never say never. Truthfully, I believe that this year I might be able to make a 5:30 time and 5:00 if I’m lucky. Is it where I would want to be? Nope. Is it honestly where I will most likely be? Probably. If I did not adjust my expectations/goals, I would not be able to enjoy the process and the eventual finish. I can do this. I will get there, but only if I am honest with where I am right now.

Another year. Another race. Maybe I can adjust those great expecations, but for now…. I would rather do what I can than not do anything at all. That is the point.

Do what you can.

Accept where you are.

Enjoy the journey and smile for the finish.

Fire

I’m preparing to start training for NYC Marathon. I’m dotting my i’s and crossing my t’s. Picking my training plan. Kind of doing some pre training. Thinking about goals. All the things that I’m supposed to be doing. With all that being said, I am noticing one thing missing this go around.

Fire.

Don’t get me wrong….. I’m excited to be getting ready to train and run NYC Marathon for Sandy Hook Promise. I’ve got the fire to get to both start and finish line. Let me explain….

When I first started this journey years ago, I had fire and determination. I pushed myself to the limit. I trained. I ran far. I ran fast. I pushed myself to and past limits that I didn’t know I could push through. I got up early. I ran late at night. I had serious goals. Some I reached. Some I didn’t. But I always pushed through.

Now….

I like to sleep in….. I’m comfy on the couch at night. I’m missing that fire to push the limits. Don’t get me wrong, I’ve been running (not as much as I thought for pretraining). I’ve been running some local 5K and being pretty consistent in my times. Faster than I thought I’d be. I’ve run 3 5K’s this year. All of them, I said I was just going to run and see what happened. All of them were hard and I pushed myself. All of them I finished around 31 minutes.

Now that being said, I think the reason my fire is a little damp right now is I’m not sure what is going to happen as I start adding the miles. Am I going to fall apart. Is my body which thanks to my Natpara has been feeling good going to give me issues. I’m worried. I like the way I’ve been feeling. You know… feeling like me. I think that I may be afraid to rock the boat. I keep saying I don’t want to go back to how I felt both mentally and physically before I started my Natpara. I love running. I love racing. I love being able to cross any finish line but a marathon finish line is special especially when running for a cause you believe in. That being said as much as I love that…… I love waking up not feeling like grandma. I love not needing a nap in the afternoon. I love not having muscle cramps, spasms and all of those other funky sypmptoms of being hypopara.

So I guess what I will say is…… I have the fire, but I’m afraid to let it burn too brightly right now. I’m going to tend to it. I’m going to care for it, but I’m not going to let it burn out because while I love running; I love being able to live my life like I did before my surgery.

If there is one thing about being hypopara is that it does make you more cautious. Where I used to throw caution to the wind and let the chips fall where they may because I knew I could easily pick up the pieces; I don’t do that now. When they fall, they fall too hard and it takes too long to pick them up.

So I will go into my training following a very low key plan. I will put in the miles. I will do what I need to do and as the 3 miles turns 5 and so forth and so forth; I will reassess. I will adjust. What I will not do is stop….

So I guess I do have more fire than I thought:)

One Month In

It’s been a few weeks since I’ve been here. I’ve thought about it. I’ve had ideas of what I wanted to say, but never got further than that. Here’s the scoop.

I’ve been on Natpara for 4 weeks now. I’m loving the way I feel on the new medication and I’ve even gotten used to giving myself a shot every morning. It’s a noticeable change. I am happy with not feeling like grandma in the morning. No more muscle spasms either. As said before, my head is much clearer and I do feel more like myself. More energy and other symptoms disappearing too. I will say that I’ve also noticed that my running has improved too in the sense that I’m actually able to run:)

I ran a local 5K in May, United for a Cause. I finished in 30:41 which is a 9:54 pace. This was my first race on Natpara. I had done a St Barts 5K in early March where I finished in 31:18 with a pace of 10:04. While it may appear that my races were similar, it really couldn’t be further from the truth. The first 5K, I had to prepare by making sure that I took my meds and calcium prior to the event. Plus I had calcium in my water. I also rested a few days before event and pushed myself to the limit for this event. On top of that, the two courses could not have been more different. The St Barts event was a fairly flat course with really only one hill at the mid point. The United for a Cause was a constant up and down of hills. Also the St Barts event is first thing in morning while United for a Cause is in evening. Comparing the two actual events is like comparing and apple and orange.

Now with that being said, there were also very notable differences in recovery. Where St Barts left me exhausted and needing downtime, there was no such recovery needed for United for a Cause other than stretching. I felt fine….. no twitching muscles, no need of extra calcium, no need of extra I felt like me.

It’s funny though how in life acceptance is a funny things. I don’t mean funny as full belly laugh, but funny in that you go back-and-forth with acceptance. I really thought that I had reached a stage of acceptance for being hypopara. I was wrong. I think I was just holding on to that everything would disappear with the Natpara and poof everything that comes with hypopara would be gone – no more monitoring for sypmtoms, balancing pills, and anxiety of what comes next.

All that being said, I did have unrealistic expectations for Natpara. I really thought of it as a magic pill or in this case magic shot where I would no longer have any symptoms or even think about having Hypopara. It would all just disappear. Now don’t get me wrong, it has been life changing I have also been able to stop taking Calcitroil and have lowered my calcium supplement intake while having great calcium levels. That being said, I still need to juggle supplements and symptoms.

I’m back to relearning what my body needs with my calcium intake. I pretty much knew what I needed when before starting and now I’m kind of back to square one. I’ve got it pretty down pat without heavy exercise, but as the miles increase I will need to add some more calcium to my routine especially during the hot summer months. It will all be worth it though and already is. I keep saying that I can’t go back and am so thankful to be able to feel like myself again.

So once again I’m back to the acceptance stage, but it is easier to accept when your feeling so much better.

New Beginnings

Life is filled with one new beginning after another. The road to life has many turns, backtracking, ups & downs and hopefully always moving forwards. There are many stops along the way, but the trick is not to idle too long or you may get stuck in one place.

Each journey along the road is a start of something new filled challenges, hopes, dreams and sometimes set backs. When we come to the beginning of a new road, we can either face the challenge, avoid it, change direction or drive into it. Sometimes starting a new journey is familiar. Some times it can be scary. Often a journey begins with hope.

I am about to embark on a few new journeys. Two familiar, yet not the same. One totally new and even with planning, research, and knowledge still a little frightening, exciting, and unknown.

The first journey is the beginning of my NYC Marathon training for Sandy Hook Promise. This is a journey that I faced before, yet it will still be a different road with new challenges, thrills, and hopes. This journey is scary not just for the training of the marathon but the fundraising aspect of it.

For the marathon running, I have been there done this as the saying goes. That being said, I have not done the 2019 marathon whose weather, training, and everything in between still has not been written. I am embarking on a 28 week training plan that has already started. The plan I have chosen is a basic marathon training plan with a slow build up, but will get me to the finish line. For now, I am not setting any training goals other than to finish better than last years 6 plus hour marathon. I also, for now, am not in a place to think about more than just a basic marathon training plan nor do I want to do more than be prepared.

For the marathon fundraising, I have been there done that once before; but again that was last year. This year my goal once again is $3,000 which is a scary goal that I am committed to hitting. For those who have never run as a charity runner, when you make this commitment it is not I will try. It is do and if you don’t hit your mark, you have signed a contract that you will personally make the payment. This is why you must be committed to the cause you are fundraising to which I am. I have been a believer in Sandy Hook Promise since they first organized and I signed up with them. That being said, it is a scary prospect as a mother of 3 children, one finishing his first year of college, one who is currently looking at colleges, to make a commitment like this. So far I’ve raised $50…. Gulp…… That being said, I have just started and this fundraiser is a marathon in itself.

Feel free to make a donation to this worthy cause though at…..https://www.crowdrise.com/o/en/campaign/sandy-hook-promise-foundation-nyc-2019/christinechaillet

Lastly I will also be starting a new adventure in my treatment of Hypoparathyroidism. The medication, Natpara, awaits in proper temperature in my refrigerator for the Natpara Nurse to come Monday to teach me how to prepare the mediation and give myself the daily injections. This is an exciting road that I’m hoping does not have too many bumps as I work out proper dosage and also adjust calcium supplements and Calcitrol dosage. I’m not expecting this to go without a hitch but hoping that it is easy transition. Once I start this treatment and get levels/dosage where they should be with any luck much of the issues that come from not producing the PTH hormone will be gone and my body can go back to factory settings.

Fingers crossed!

New beginnings are a part of life and I’m happy to be taking these paths right now.