For those who have been here a while, you know my struggles with my Hypoparathyroidism. You know how going on my daily injection of Natpara has been a life saver. It was all coming together. I even made it back to the trails.
Then life throws a fast, hard, curve ball.
Natpara is being recalled.
Out of nowhere. My Natpara community is collectively freaking out. Righthly so. Apparently according to the press release “When the septum is repeatedly punctured, it is possible that small rubber fragments may detach into the cartridge.” Sounds like it might be a problem but what could a little rubber hurt.
Danger Will Robertson. Danger.
The bigger danger is now that this medicine which has given me me back will no longer be available. Then the bigger danger is when you come off this medicine, you have to substantially increase your pre Natpara dosage of Calcitrol and Calcium. I hope my kidneys don’t mind. I hope my levels stable quickly.
As I said to my husband, I guess I’m back to my daily naps, fatigue, leg cramps, muscle spasms and all the other fun side effects that Natpara helped with. And you know you are a marathon runner, when you also think, “Well crap, there goes my marathon finish time. ” And no I wasn’t training for a PR, but I was hoping for a decent time while enjoying the day. I hope I can continue to train as I have been because it’s been pretty good.
So one step forward. Two Steps back. Coming off this (or any) medicine is no joke. I’ve got to follow doctors orders. I’ve got to be smart about it. Go back to being a world class guesser as the only way to know if your calcium is low is through blood work. They really need to come up with a finger prick like a diabetic.
So while training has been going good and I will continue to do what I need to do, it might not all be as pretty as I hope it will be. I’m hoping that my friends will still run the trails with me because after this setback I think I need them more than before.
Life is not garaunteed and it is filled with ups and downs. My roller coaster ride is just on a bit of a rickety part of the track and maybe the downhill won’t be as bad as I think. Either way, I’ve got my seatbelt on and I’m ready for the ride. It’s the only way to live… Hands in the air and just enjoying the ride.
So I need to process this. I need to deal with this. I need to accept this. I need to call pharmacy and fill some scripts. For all my…. I can’t go back talk. I guess I’m going back.