Tag Archive | low calcium

Sometimes I Forget

Sep1

When you are a healthy runner, you can still run into issues with your training. You can over train. You can become dehydrated. You do so many things wrong, but usually there is some wiggle room. When you have Hypopara (or any other health issue), you might not have so much wiggle room. Sometimes you forget that too.

Today was a day to remind me of that. A day where I got the not so gentle reminder that there isn’t as much wiggle room as I would like to pretend. It is easy to forget these things. It is easy to pretend that you just take extra calcium and meds just because. Especially when for the most part you are stable. Yes, you sometimes get gentle reminders that you need to take some more meds….. a “dancing” of your leg muscles, a little tingle here or there, but nothing crazy.

Training has been going well. I haven’t necessarily been following the plan perfectly, but enough that I feel comfortable with it. Enough to know that I can run a half in 3 weeks and continue with it to run the Hat Trick in October. I’ve done multiple back to back runs. Some of them have even been a run in the evening followed by run the next morning. All Good.

Yesterday I went for a training run with my friend. We did an easy 6 miles. No issues. Run itself was comfortable and left feeling like I could run more. We did it!

This morning I left for another 5 miles. I was adding some hills, since the Hat Trick has lots of them. I wasn’t going to race. I wasn’t going to be fast. My goal was to try to be steady. Figure out a walk/run plan. I was about half mile out when I realized that I forgot my water. It was hot and humid, but I figured lets just keep going. So I did…..

Like all runners, I monitored the way my body was feeling during the run. Today I was really just focused on completing the miles, watching pace to make sure I wasn’t running too fast, and trying a new walk/run plan (8 to 1). I was trying to run a smart training run.

During the run there were times I felt the tingles that sometimes come when running. I adjusted. I just wanted to push to 5 miles watching my heart rate and pace. I’ve felt these tingles before. These are just little warning bells, but nothing crazy. Once I hit the 5 miles, I walked.

I had 1/2 mile to go and figured a walk would be a good cool down. The tingles became more intense, but again nothing crazy. As soon as I got in the house I made my ice water with electrolyte powder. While sometimes after a hard workout I will take some extra calcium, thankfully today I also took an extra Calcitriol. Minutes later both my hands seized up with tetney or as I call it, the claw hand. I could not open. I could not close. I also having severe tingling and pressure in both arms and lips/face.

I admit it, I got very nervous especially because I was home alone and would be for hours. I wasn’t sure if I was going to pass out. I asked Siri to call the friend I ran with yesterday. She is familiar with my issues and as a bonus she is a PT who understands the body. I tied to be calm, but I think she knew I was freaked out and how I was feeling as I was swearing up a storm. I even gave her my address and unlocked the back door just in case I stopped talking to her. This was no joke. This was the worst crash I’ve ever had…. NO I AM NOT BEING DRAMATIC. Those who have been here understand.

Luckily as we stayed on the phone with my friend little by little my hands became my own. I would happily tell her, “my pinky and tall finger are moving!” It slowly released me after quickly grabbing on. She said she knew when I was feeling better when I stopped swearing.

Once my body was my own again, I texted my doctor. She called minutes after getting my text. I love her so:). We talked about what happened. What I needed to do as far as meds. She felt that we would rather go on side of dealing with high calcium than low…. Although the high never came. She gave me instructions on what to do if the tetney came back…. It was go to ER for possible calcium infusion. Thankfully that never came either.

I am ok now. I literally did nothing for the rest of the day. Resting. Eating calcium rich foods as well as following the regime she gave me for meds.

So today was a reminder. Be smarter. Be prepared. Most of all know that even if one day something works, that Hypopara does what it wants when it wants. That being said, I know hope is on the horizon. Hopefully in 6 months to a year I can be on the hormone replacement. Until then, I am thankful this is (for me) a very rare moment.

Stay safe.

Stay healthy

Most of all…

Never give up.

Hitting 5 miles.

Nov17

Some people might think because I run marathons that I never suffer from issues from my Hypoparthyridism. They would be wrong. It just is part of the routine now.

Case in point

Claw hand

Yesterday, while cleaning kitchen. Not doing anything out of the ordinary. Unless you count really doing a deep clean. Hmmmm

I think the difference is that while running though, I really pay attention and adjust. During build up of the miles in my training for marathon, I pat attention to the signals. Monitoring when hands start to get tingly. Pay attention to how hard to push before adding more calcium. It is all so random to be honest and changes all the time. Things that always effect it though are temperatures when running, pace and how hard I’m pushing, time of day, time on feet, and really what the calcium Gods decide. At least that last one feels pretty accurate.

One thing that I realized during a training run is definitely extra calcium is required before mile 10. It is always better to keep the levels up than try to recover from when the hands start to tingle. During training if it was a longer run, I would make sure to take my morning dose of calcium and calcitriol before running. If it was a shorter run, I would take it as soon as I got home. If it was a LOOOONG training run, I might add extra calcium powder (Calez) to my water. If it was a hot day, I would do the same. Regardless though, I always kept a pack of the powder with me because some days I needed it and some days I didn’t, Really is a crap shoot.

On marathon day and the day before, I did some preparation. In eventing before the marathon, I took an extra dose of my Calcitriol because normally I aim to keep my blood calcium levels at just below or at the the low end of normal. So I didn’t want to go into the marathon with low calcium already. Then the morning of before I left at the super early hour of 6:00 AM, I took my morning dose which normally I don’t take until 10ish. Then I packed with me my normal meds but taking an extra dose with me as it was going to be a long and hard day. I wasn’t starting until 12:00, so I had to bob and weave before the bob and weaving actually began. So around 11:00 am or so, I took another dose of calcium and calcitriol which really would have been my normal time. Then I made sure to add Calez to one of my water bottles to have along the course. I saved another dose of my calcium, calcitriol and magnesium for when I finished. Easy Peasy Lemon Squeezy.

I will say that I think for once I ran a smart race. It helped that I ran the first 16-17 miles with a friend. I think we kept each other in check. We ran paces that were sustainable. We ran smart. We also walked when needed but also encouraged each other to push ourselves to run. I ran a much smarter race when I was running with her. I would have loved to have run the whole thing with her, but we split up when she needed to stop for a bathroom pit stop. At that point, I really was afraid that if I stopped that it would be too hard to start up again. My legs were dead. My foot was hurting. Stopping was not an option for me unless I wanted to call it a day.

So I kept on going……

And going……

And going…..

At first I did not run as smart as I did when I was with Rosa, but I caught on to my stupidity. So I tried to run smarter. I walked more than I probably would have than if I was with her, but the pain was real.

But so was the joy….

The bottom line though was I still got where I wanted to get which was the finish line.

Yes, I know you’ve seen this photo before, but I do so love it.

Everyone who runs a marathon has hardships that they push through to get to the finish line. It wouldn’t be a marathon without it. This is just part of mine. Before becoming Hypopara, I didn’t have to take into account medications and added calcium, but that doesn’t mean there weren’t different challenges. As they say…….

If marathons were easy everyone would do them. I’m just too stubborn not to do what I have to do to get to the finish.