I’m a pretty positive person. I usually take a wait and see approach to life. Usually don’t focus on the negative. That being said, life is messy and complicated and as much as we want to you can’t always post about rainbows and puppy dogs.
I see people on social media who post nothing but positive things. Even going so far as to apologize if something is miscontrud as negative. I am not judging them as that is their choice, but to me it’s not a real choice as life is not all good or all bad. Pretending otherwise is just that pretending.
Sometimes people are crappy. Sometimes XYZ is Crappy. Sometimes life is crappy. Sometimes you don’t want to put on a happy face and sometimes your just not feeling it. That’s life unless your Mr Rogers. It’s ok to get mad. It’s ok to express frustration, disappointment, and even be what might be considered negative. That’s life as long as you don’t just focus on the negative, that’s ok. It’s a balance.
Life has it’s ups. Life has it’s downs. In order to appreciate the ups, you must acknowledge the downs. Acknowledging the downs does not mean that suddenly you are going to be negative Nelly. It just means you are acknowledging that life is complicated and we don’t live Stepford Lives. I can appreciate the good, while acknowledging the suck.
So right now, I still feel like I’m in a holding pattern. Counting the days till the magic juice runs dry. That is 4. Part of me doesn’t like the holding pattern I’m in. Part of me is grateful for it as it has given me time to prepare….. talk to my doctor, order my meds, plan. But now I’ve done all these things, so now it’s just enjoy these 4 days and worry about day 5.
I’m also angry because I accepted the new normal of having to inject myself every day and take just a few calcium supplements a day. I’m angry because I thought this was going to last more than the 5 months and I should have started sooner. I’m angry because of the lack of information on how long this will take and when the medicine may be available again. I’m angry because I felt like I had my life back.
I’m also feeling a little defeated. Finally start getting things together and now this. And again, I know it could be worse and I’ve been lucky Some people might also think I’m being dramatic. Those people would be wrong and really don’t know the truth of this disorder, my life, or what I do to make things look easy. That being said, you would never say to a diabetic, “Well you’ve only a little diabetics.” Yes, I’m lucky in my symptoms. I’m lucky that I’ve been able to do so much. I’m lucky that my schedule will allow be self care as needed, but I still have Hypopara with all that comes with that.
I’m also nervous and these next 4 days I will probably see more Hypopara stories to make me slightly more. As I said before coming off the Natpara is no joke. In my Hypopara support group, someone tracked that there are already 14 who have had to go to ER with 7 being admitted. Again, don’t know what will happen, but it is a little nerve racking. I, honestly, don’t expect that to happen to me because I’ve never had to in the past. I’m hoping for a smooth transition, but it’s always in the back of your mind. If there is one thing Hypopara people spend a lot of time worrying about is their calcium levels, symptoms, and how to handle it all.
Here’s the crux of it too…….. I’ve got about 7 more weeks till the NYC Marathon. Training for a marathon is no joke under any circumstances. I’ve trained before without Natpara, but I use the word train loosely. I’ve trained prior to being Hypopara. I will admit that there comes a point in every training cycle where it kind of sucks, but you know you’ve got to do it. I can do it again. That being said, I’m going to be doing the dance of adjusting my meds while finishing my training. And did I ever mention that sweat and exercise effect your calcium levels. I’m sure I mentioned it. Luckily, I am usually in tune to my symptoms, have a doctor I can text if symptomatic, and am pretty good about keeping my levels. All while working and taking care of my family. Hmmm.
Lastly, I’ve still got $800 to raise for Sandy Hook Promise in these next few weeks while doing everything else.
Easy Peasy Lemon Squeezy.
So while I’m being super Negative Nelly that is also not the true story. Yes, all of these feelings, worries, thoughts are valid but there is another side to the coin. I know that I am lucky. I know that it will work out. I’m optimistic that things will go smoothly. That levels will remain stable and I will just keep on keeping on.
You can recognize the negative while embracing the positive. I always say….. Hope for the Best. Prepare for the worst. Most of all accept it all.