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This week I had my 6 month check up with my endocrinologist. Not surprising, my blood calcium level was low. The good news is that it is just below the low end of normal. Yeah me. The good part though is by maintaining this low level that my 24 hour urine calcium level was normal which is something I haven’t seen in 2 years. At my highest this level was more than double what it should be. So since my Natpara is gone, I bounce in the low blood calcium levels to protect my kidneys for the higher output levels. Go me.

All was good at the appointment. When I commented to my doctor that I was “happy” with levels to protect kidneys, she reminded me that we also have to worry that if we allow my blood calcium levels to get to low we have heart issues. Did you know that if your calcium is important for heart health. Such a balancing act that makes life so fun.
I am good about balancing these things. (seriously Mom… no worries). I am also very lucky that I’ve never had any issues with my kidneys or heart. I pay attention. I adjust. I pop pills all day and adjust as needed. As said before, I really think being a marathon runner prior to surgery helped me learn to tune into my body. All those long runs adjusting fuel, pace, and runs gave me an inside track on how to listen to my body with calcium levels.

I have a few running magnets on my car. I have one that says 50K. Sometimes I think that I should take it off as I only ran one, but it is a reminder of what I once could do and maybe one day will do again. It makes me proud and a little sad at the same time. At my “peak” I finished this event in 7 hours and seven minutes. Obviously, I did not run the entire time, but I did run enough to actually complete it. I’ve run a sub 2 half marathon and a 26:26 5K.

I am no longer at my peak. I’m no longer close to my peak. Today I struggle through 5 miles which used to me my normal run. I used to run every day in training. Teaching myself to run on tired legs. Now I have to pace myself as my legs are tired before I even start. I can’t run every day, but have been trying to walk at least a mile every day.  It sucks. And yes, I know, that it could be worse but  this is my pity party. I miss the “old” me and I when I was on Natpara I kind of felt like her.   Sometimes I get annoyed at my missed opportunities.   Blowing my 4:30 marathon because I didn’t pace myself.   Thinking I would get another shot at it.   I was wrong.

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When you have an invisible illness no matter what it is often times people think you are exaggerating, it’s all in your head, or think you are just complaining. It is easier for people to understand when they can see the toll an illness takes on a person, but often times people with invisible illnesses keep a lot to themselves. What is the point… You know what you need to do and you just handle it.

Al my life I’ve struggled and overcome the impossible. I’ve come back from the bottom and realized that in life you really only have two choices….. Keep moving forward or give up.

I’ve been wondering if it is time to give up running, but I get so much out of it that I think that is not a valid option. I’ve been lower before. I’ve crawled my way from the depths of depression where I realized that giving up is not an option. The truth of the matter is when you come back from that, you realize that your only option in life is to keep pushing forward one step at a time.

Today’s run was hard. The heat effects me. I felt tingles in the lips (low calcium). My legs were cramping. I thought about just walking home. I realized that most of my problem with running really is my ego. I can run fast in short bursts. I can’t run fast for the long haul. I need to readjust, refocus, and learn to pace again. If the truth is that running is worth pushing myself than I really need to push myself smarter. So with that, I added some calez (powdered calcium) to my water, cut myself some slack, and reassessed what I realistically want from running.

Unrealistically…. I still want that 25 minute 5K or that 4:30 marathon I was chasing that I will never get. Realistically, I just want to keep running. I need to let go of expectations, excuses, and ego……. easier said than done especially when I was on Natpara injections which made me feel like my old self for a bit.

I’ve been picked over. I’ve been picked last. I’ve been ignored. I’ve been on the outside looking in. I’ve been on bumpy roads in life….. And while none of these are good and no one wants these things to happen to them or anyone they love…… When you’ve been dealt these hands , they do make you stronger. I root for the underdog, because I’ve been the underdog. While not that now, I do know that if I can get through all the things that brought me to where I am today; I can get through this.

Luckily there are no races on the calendar. There is no training. There is just getting miles in and keeping myself moving. This year will give me time. To think of what goals I want when there are goals to be hand. To be smart. Most of all to just keep running…
Most of all no matter what….
To never give up.

 

And I know that some of you have heard this before and might hear it again.   I am only human and some days you move forward and some days you move backwards but as long as you have more forward moving days than backwards, you are doing ok.

2 thoughts on “

  1. Thank you so much for posting this! I was diagnosed with hypoparathyroidism over 5 years ago. I love running but it has been a struggle especially now that my Natpara was recalled. I wish I could do more than I can. I hate that my body has limitations. Your post gave me hope and it is nice to know someone else is dealing with the same thing.

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