The More You Know…

This is NOT an excuse post.

This is NOT a whoa is me post.

This is NOT a pity party post.

This is NOT a I want you to feel sorry for me post.

If you know me personally, you know that to be true.  That’s just not who I am.

What this is is an informational post.

This is JUST my reality post.

This is JUST an informational post.

This is a JUST so you know and can understand post.

This is for those who have asked but I didn’t explain it right in person post because I didn’t want to sound like I was whining post.

I stand by my previous assertions that I am an athlete and a runner.

That did not change when my thyroid was removed.

But as we know it was more than my thyroid.

So here’s the deal….

You’ve heard me say that my Parathryoid Glands no longer work.

Yes, you’ve heard me say that I have low calcium.

What the Hell does that actually mean.

To be honest, I’m still trying to figure it all out too.    When I say that I have low calcium, I don’t mean like you go for your annual check up and your doctor says that you need to take calcium supplements. While I do need to take supplements, there is more to it than that as I have glands that no longer function.   To borrow someone’s analogy…..   “It is like a bicycle chain with a link missing. Without taking calcium the chain falls off the gears.”

or this

From the American Association of Endocrine Surgeons

“Normal parathyroid glands work like the thermostat in your home to keep blood calcium levels in a very tightly controlled range. When the blood calcium level is too low, PTH is released to bring the calcium level back up to normal. When the calcium level is normal or gets a little too high, normal parathyroids will stop releasing PTH. Proper calcium balance is crucial to the normal functioning of the heart, nervous system, kidneys, and bones.”

So what does all that mean for me.    It means that my body is out of whack.   I’ve said before it’s like being diabetic except I’m always monitoring my calcium levels.   Except that there is no at home test for it.   I have to just know the symptoms.   Now even though I pop my calcium pills usually every 4 hours during a normal day and other medications and take more on days that I run, it still really isn’t enough.   The goal is not to get my calcium levels in the normal range.   The goal is to take just enough to be in the ALMOST normal range.   Just enough that I don’t have the major complications of low calcium.

The bodies nerves and muscles go hand and hand with calcium levels.   So keeping my levels low (but high enough) kind of keeps me a state of feeling like I’ve got a touch of the flu.   Some days it’s better that others, but body aches, achy joints, sometimes headaches, brain fog and fatigue are just part of the new norm.   Those are the good days.   Since it’s really just a guessing game, there are times when it goes too low that depression can creep in too.  Good times.   If I were to stop taking the calcium, my body would literally crash.

Seriously.  No joke.

Before I knew what I was dealing with my calcium went so low that my hands cramped up where I could not bend my finger.   Believe it or not I was really trying.

Tetany

At the time, I did not know that if left untreated until my doctor told me that it could lead to passing out with seizures and even heart arrhythmia.  If it were to get this low again, I would need an infusion of calcium.   The most severe complication is heart failure.   so this is why I am always popping my pills.   I luckily have not experienced that level of tetany since right after surgery.  I do on occasion feel twinges in in my face, but nothing like this.

The body is an amazing thing and until you need to think about it, you really do not realize how interconnected everything is.   So even when my levels are “good,” it really just means that they are “good enough” to keep the MAJOR symptoms away.   The other symptoms are just part of the new normal.

So I may sound like I’m a parrot or paranoid about my calcium, but for now it’s in the forefront of my mind.  The complications which I’m avoiding.   The levels.   The symptoms.    Plus I am in the learning stage.   There is so much that goes into not just dealing with non working Parathyroid glands, but also dealing with the hormone adjustment of not having a thryoid gland.    I’m looking at and already taking other supplements that will help with symptoms.   Plus I’m researching the best diet for me.   As an athlete fueling has always been important, but now I’m looking into better ways to fuel my body.

You know what they say…

The more you know..

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